Communicating about loss: Experiences of older Australian adults with cerebral palsy and complex communication needs

Journal article


Dark, Leigha, Balandin, Susan and Clemson, Lindy. (2011). Communicating about loss: Experiences of older Australian adults with cerebral palsy and complex communication needs. Communication Disorders Quarterly. 32(3), pp. 176 - 189. https://doi.org/10.1177/1525740109353936
AuthorsDark, Leigha, Balandin, Susan and Clemson, Lindy
Abstract

Loss and grief is a universal human experience, yet little is known about how older adults with a lifelong disability, such as cerebral palsy, and complex communication needs (CCN) experience loss and manage the grieving process. In-depth interviews were conducted with 20 Australian participants with cerebral palsy and CCN to determine the types of loss experienced by this group in their later years, sources of support available to manage loss, and the role of communication as a barrier or facilitator to a successful grieving process. The results are discussed in light of current grief and loss theory, and clinical implications and opportunities for further research are suggested.

Keywordsloss; grief; older adults; cerebral palsy; complex communication needs
Year2011
JournalCommunication Disorders Quarterly
Journal citation32 (3), pp. 176 - 189
ISSN1525-7401
Digital Object Identifier (DOI)https://doi.org/10.1177/1525740109353936
Page range176 - 189
Research GroupSchool of Allied Health
Publisher's version
File Access Level
Controlled
Permalink -

https://acuresearchbank.acu.edu.au/item/8567q/communicating-about-loss-experiences-of-older-australian-adults-with-cerebral-palsy-and-complex-communication-needs

Restricted files

Publisher's version

  • 102
    total views
  • 0
    total downloads
  • 1
    views this month
  • 0
    downloads this month
These values are for the period from 19th October 2020, when this repository was created.

Export as

Related outputs

Factors that influence success when training videofluoroscopic swallowing study analysts
Edwards, Ann, Froude, Elspeth, Dark, Leigha and Carding, Paul. (2023). Factors that influence success when training videofluoroscopic swallowing study analysts. Speech, Language and Hearing. 26(3), pp. 223-234. https://doi.org/10.1080/2050571X.2023.2171952
State of the Evidence Traffic Lights 2019 : Systematic review of interventions for preventing and treating children with cerebral palsy
Novak, Iona, Morgan, Catherine, Fahey, Michael, Finch-Edmondson, Megan, Galea, Claire, Hines, Ashleigh, Langdon, Katherine, Namara, Maria Mc, Paton, Madison C. B., Popat, Himanshu, Shore, Benjamin, Khamis, Amanda, Stanton, Emma, Finemore, Olivia P., Tricks, Alice, te Velde, Anna, Dark, Leigha, Morton, Natalie and Badawi, Nadia. (2020). State of the Evidence Traffic Lights 2019 : Systematic review of interventions for preventing and treating children with cerebral palsy. Current Neurology and Neuroscience Reports. 20(3), pp. 1-21. https://doi.org/10.1007/s11910-020-1022-z
Selecting, developing and supporting key word sign vocabularies for children with developmental disabilities
Dark, Leigha, Brownlie, Elizabeth and Bloomberg, Karen. (2019). Selecting, developing and supporting key word sign vocabularies for children with developmental disabilities. In In Grove, Nicola and Launonen, Kaisa (Ed.). Manual Sign Acquisition in Children with Developmental Disabilities pp. 215 Nova Science Publishers.
Creating inter-professional collaboration opportunities within curriculum: an exploration of the impact on professional identity
Dark, Leigha and Sheppard, Loretta. (2017). Creating inter-professional collaboration opportunities within curriculum: an exploration of the impact on professional identity. Australia: Higher Education Research and Development Society of Australasia. pp. 128 - 140
Exploring the use of a community of practice to improve blended and flipped approaches to teaching and learning health sciences
Clarkson, Georgia and Dark, Leigha. (2017). Exploring the use of a community of practice to improve blended and flipped approaches to teaching and learning health sciences. Australia: Higher Education Research and Development Society of Australasia. pp. 73 - 83
Communication changes experienced by adults with cerebral palsy as they age
Dark, Leigha, Clemson, Lindy and Balandin, Susan. (2016). Communication changes experienced by adults with cerebral palsy as they age. International Journal of Speech-Language Pathology. 18(6), pp. 521 - 532. https://doi.org/10.3109/17549507.2016.1143976
Novak et al. reply
Novak, Iona, McIntyre, Sarah, Morgan, Catherine, Campbell, Lanie, Dark, Leigha, Morton, Natalie, Stumbles, Elise, Wilson, Salli-Ann and Goldsmith, Shona. (2014). Novak et al. reply. Developmental Medicine and Child Neurology. 56(4), pp. 403 - 406. https://doi.org/10.1111/dmcn.12426
A systematic review of interventions for children with cerebral palsy : state of the evidence
Novak, Iona, Mcintyre, Sarah, Morgan, Catherine, Campbell, Lanie, Dark, Leigha, Morton, Natalie, Stumbles, Elise, Wilson, Salli-Ann and Goldsmith, Shona. (2013). A systematic review of interventions for children with cerebral palsy : state of the evidence. Developmental Medicine and Child Neurology. https://doi.org/10.1111/dmcn.12246
Women with physical disability and the mammogram :An observational study to identify barriers and facilitators
Poulos, Ann, Balandin, Susan, Llewellyn, Gwynnyth, McCarthy, Louella and Dark, Leigha. (2011). Women with physical disability and the mammogram :An observational study to identify barriers and facilitators. Radiography. 17(1), pp. 14 - 19. https://doi.org/10.1016/j.radi.2010.07.001