Spinal muscular atrophy type 1: Is long-term mechanical ventilation ethical?

Journal article


Ryan, Monique, Kilham, Henry, Tobin, Bernadette, Jacobs, Stephen and Isaacs, David. (2007). Spinal muscular atrophy type 1: Is long-term mechanical ventilation ethical? Journal of Paediatrics and Child Health. 43(4), pp. 237 - 242. https://doi.org/10.1111/j.1440-1754.2007.01052.x
AuthorsRyan, Monique, Kilham, Henry, Tobin, Bernadette, Jacobs, Stephen and Isaacs, David
Abstract

We present a baby with spinal muscular atrophy type 1, an inherited disorder causing progressive weakness, leading to complete paralysis of respiratory, facial and limb muscles. Without intervention, death occurs in infancy due to respiratory failure. Mechanical ventilatory support can prolong life, but the child’s quality of life is highly debatable. We discuss the appropriateness of initiating and continuing intensive care for this child and others in a similar position.

Keywordsautonomy; competence; end‐of‐life; futility; quality of life
Year2007
JournalJournal of Paediatrics and Child Health
Journal citation43 (4), pp. 237 - 242
PublisherBlackwell Publishers Inc
ISSN1034-4810
Digital Object Identifier (DOI)https://doi.org/10.1111/j.1440-1754.2007.01052.x
Scopus EID2-s2.0-34147092115
Page range237 - 242
Publisher's version
File Access Level
Controlled
Place of publicationAustralia
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