Spinal muscular atrophy type 1: Is long-term mechanical ventilation ethical?

Journal article

Ryan, Monique, Kilham, Henry, Tobin, Bernadette, Jacobs, Stephen and Isaacs, David. (2007). Spinal muscular atrophy type 1: Is long-term mechanical ventilation ethical? Journal of Paediatrics and Child Health. 43(4), pp. 237 - 242. https://doi.org/10.1111/j.1440-1754.2007.01052.x

Authors	Ryan, Monique, Kilham, Henry, Tobin, Bernadette, Jacobs, Stephen and Isaacs, David
Abstract	We present a baby with spinal muscular atrophy type 1, an inherited disorder causing progressive weakness, leading to complete paralysis of respiratory, facial and limb muscles. Without intervention, death occurs in infancy due to respiratory failure. Mechanical ventilatory support can prolong life, but the child’s quality of life is highly debatable. We discuss the appropriateness of initiating and continuing intensive care for this child and others in a similar position.
Keywords	autonomy; competence; end‐of‐life; futility; quality of life
Year	2007
Journal	Journal of Paediatrics and Child Health
Journal citation	43 (4), pp. 237 - 242
Publisher	Blackwell Publishers Inc
ISSN	1034-4810
Digital Object Identifier (DOI)	https://doi.org/10.1111/j.1440-1754.2007.01052.x
Scopus EID	2-s2.0-34147092115
Page range	237 - 242
Publisher's version	File Access Level Controlled
Place of publication	Australia

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