Scoping the ethics of dementia research within an Australian human research context

Journal article


Dowson, Leslie, Doyle, Colleen and Rayner, Victoria. (2013) Scoping the ethics of dementia research within an Australian human research context. Journal of law and medicine. 21, pp. 210 - 216.
AuthorsDowson, Leslie, Doyle, Colleen and Rayner, Victoria
Abstract

Research with people with dementia can be ethically challenging because of the effects of dementia on cognitive function. A narrative literature review of ethical human dementia research was conducted, highlighting ethical challenges that can be categorised under the following themes: substitute judgment; how capacity can vary due to risks; barriers to recruiting people with dementia; how to determine capacity to give consent; and gaining assent rather than consent from participants. The results of the review were further analysed in relation to the Australian National Statement on Ethical Conduct in Human Research (National Statement). Gaps in the National Statement include: how capacity should be determined; what defines best interests; how assent and dissent by someone with dementia should be determined and respected; and whether or not people with dementia should be included in high-risk research.

Year2013
JournalJournal of law and medicine
Journal citation21, pp. 210 - 216
Scopus EID2-s2.0-84891657316
Page range210 - 216
Research GroupSchool of Nursing, Midwifery and Paramedicine
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https://acuresearchbank.acu.edu.au/item/86706/scoping-the-ethics-of-dementia-research-within-an-australian-human-research-context

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