Use of guidelines when planning home care of a girl with severe congenital myopathy

Journal article

Gray, Kelly, Isaacs, David, Kilham, Henry, Tobin, Bernadette Margaret and Waters, Karen. (2016). Use of guidelines when planning home care of a girl with severe congenital myopathy. Journal of Paediatrics and Child Health. 52(1), pp. 7 - 10. https://doi.org/10.1111/jpc.13065

Authors	Gray, Kelly, Isaacs, David, Kilham, Henry, Tobin, Bernadette Margaret and Waters, Karen
Abstract	We use issues that arose in the management of a 4-year old girl with a congenital myopathy to consider the tension between respecting the choices and decisions of the child's parents and applying clinical practice guidelines that emphasise minimising risk to the child. This case raises the issue of when it is reasonable to override parents’ choice of management options.
Year	2016
Journal	Journal of Paediatrics and Child Health
Journal citation	52 (1), pp. 7 - 10
Publisher	Blackwell Publishing
ISSN	1034-4810
Digital Object Identifier (DOI)	https://doi.org/10.1111/jpc.13065
Scopus EID	2-s2.0-84955312826
Page range	7 - 10
Publisher's version	File Access Level Controlled
Place of publication	Australia

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