Challenging symptoms in children with rare life-limiting conditions: Findings from a prospective diary and interview study with families

Journal article


Malcolm, Cari, Hain, Richard, Gibson, Faith, Adams, Sally, Anderson, G. and Forbat, L.. (2012). Challenging symptoms in children with rare life-limiting conditions: Findings from a prospective diary and interview study with families. Acta Paediatrica. 101(9), pp. 985 - 992. https://doi.org/10.1111/j.1651-2227.2012.02680.x
AuthorsMalcolm, Cari, Hain, Richard, Gibson, Faith, Adams, Sally, Anderson, G. and Forbat, L.
Abstract

Aim:  The aim was to describe the nature, frequency, severity and management challenges of symptoms in children with two rare life-limiting conditions [Mucopolysaccharide ( MPS ) and Batten disease].

Year2012
JournalActa Paediatrica
Journal citation101 (9), pp. 985 - 992
PublisherWiley Blackwell Publishing
ISSN0803-5253
Digital Object Identifier (DOI)https://doi.org/10.1111/j.1651-2227.2012.02680.x
Scopus EID2-s2.0-84864702485
Page range985 - 992
Research GroupSchool of Nursing, Midwifery and Paramedicine
Publisher's version
File Access Level
Controlled
Place of publicationUnited Kingdom
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