Understanding the family's perspective : Parenting a child with cerebral palsy : A problem-based approach to assessment and management

Book chapter

Bourke-Taylor, Helen. (2010). Understanding the family's perspective : Parenting a child with cerebral palsy : A problem-based approach to assessment and management. In In Dodd, Karen J., Imms, Christine and Taylor, Nicholas F. (Ed.). Physiotherapy and occupational therapy for people with cerebral palsy : A problem-based approach to assessment and management pp. 31-39 Mac Keith Press.
AuthorsBourke-Taylor, Helen
EditorsDodd, Karen J., Imms, Christine and Taylor, Nicholas F.
Abstract

[Extract] This chapter describes the experience of parents who are raising a child with cerebral palsy. Families that include a member with cerebral palsy are as diverse as those found within any other community and may be bringing up other children in the family as well. The siblings too must be considered within the family dynamics, increasing the responsibilities of and concerns for parents. Professionals, particularly therapists, working with individuals with cerebral palsy should be guided by models that recognize the inextricable influence that family context has on planned interventions. Palisano et al (2004) described three of the most influential models that emphasize family context. They are the person occupation environment (PEO) model, family-centred care (FCC) and the International Classification of Functioning, Disability and Health (ICF).

Page range31-39
Year2010
Book titlePhysiotherapy and occupational therapy for people with cerebral palsy : A problem-based approach to assessment and management
PublisherMac Keith Press
Place of publicationLondon, United Kingdom
ISBN9781898683681
Web address (URL)https://ebookcentral.proquest.com/lib/acu/detail.action?docID=3329181
Research GroupSchool of Allied Health
Publisher's version
License
All rights reserved
File Access Level
Controlled
Output statusPublished
Publication dates
Print08 Mar 2010
Permalink -

https://acuresearchbank.acu.edu.au/item/8q3q1/understanding-the-family-s-perspective-parenting-a-child-with-cerebral-palsy-a-problem-based-approach-to-assessment-and-management

Log in to edit

Restricted files

Publisher's version

  • 97
    total views
  • 0
    total downloads
  • 0
    views this month
  • 0
    downloads this month
These values are for the period from 19th October 2020, when this repository was created.

Export as

Related outputs

Evaluating the feasibility, fidelity, and preliminary effectiveness of a school-based intervention to improve the school participation and feelings of connectedness of elementary school students on the autism spectrum
Hodges, Amy, Cordier, Reinie, Joosten, Annette, Bourke-Taylor, Helen and Chen, Yu-Wei. (2022). Evaluating the feasibility, fidelity, and preliminary effectiveness of a school-based intervention to improve the school participation and feelings of connectedness of elementary school students on the autism spectrum. PLoS ONE. 17(6), p. Article e0269098. https://doi.org/10.1371/journal.pone.0269098
The readiness of Australian health care students to encounter patients experiencing partner abuse
Sawyer, Simon, Schneider, Michal, Western, Deborah, Bourke-Taylor, Helen, Farnworth, Lousie, Lawerence, Katherine, Lentin, Primrose, McLelland, Gayle, Melvin, Glenn, Recoche, Katrina, Schweitzer, Ronald, Simmonds, Janette, Storr, Michael, Thomacos, Nikos, Williams, Angela and Williams, Brett. (2022). The readiness of Australian health care students to encounter patients experiencing partner abuse. Journal of Interpersonal Violence. 37(11-12), pp. NP9575-NP9590. https://doi.org/10.1177/0886260520981136
School participation: The shared perspectives of parents and educators of primary school students on the autism spectrum
Hodges, Amy, Joosten, Annette, Bourke-Taylor, Helen and Cordier, Reinie. (2020). School participation: The shared perspectives of parents and educators of primary school students on the autism spectrum. Research in Developmental Disabilities. 97, pp. 1 - 12. https://doi.org/10.1016/j.ridd.2019.103550
Recovery in the first six months after hand and upper limb burns : A prospective cohort study
Ghalayini, Grace, O'Brien, Lisa and Bourke-Taylor, Helen M.. (2019). Recovery in the first six months after hand and upper limb burns : A prospective cohort study. Australian Occupational Therapy Journal. 66(2), pp. 201-209. https://doi.org/10.1111/1440-1630.12538
The impact of carer status on participation in healthy activity and self-reported health among Australian women over 50 years
Farrugia, Teagan Jade, Hewitt, Alana, Bourke-Taylor, Helen and Joosten, Annette V.. (2019). The impact of carer status on participation in healthy activity and self-reported health among Australian women over 50 years. Australian Occupational Therapy Journal. 66(1), pp. 23 - 32. https://doi.org/10.1111/1440-1630.12491
Developing student social skills using restorative practices: A new framework called H.E.A.R.T
Kehoe, Michelle, Bourke-Taylor, Helen and Broderick, David. (2018). Developing student social skills using restorative practices: A new framework called H.E.A.R.T. Social Psychology of Education: an international journal. 21(1), pp. 189 - 207. https://doi.org/10.1007/s11218-017-9402-1
Descriptive profile of the academic integrity of Australian occupational therapy students
Brown, Ted, Isbel, Stephen, Bourke-Taylor, Helen, Gustafsson, Louise, McKinstry, Carol and Logan, Alexandra. (2018). Descriptive profile of the academic integrity of Australian occupational therapy students. Australian Occupational Therapy Journal. 65(4), pp. 285 - 294. https://doi.org/10.1111/1440-1630.12472
Patients' and healthcare professionals' perceptions of self-management support interactions: Systemic review and qualitative synthesis
Franklin, Marika, Lewis, Sophie, Willis, Karen, Bourke-Taylor, Helen and Smith, Lorraine. (2018). Patients' and healthcare professionals' perceptions of self-management support interactions: Systemic review and qualitative synthesis. Chronic Illness. 14(2), pp. 79 - 103. https://doi.org/10.1177/1742395317710082
Exploring similarities and differences among the self-reported academic integrity of Australian occupational therapy domestic and international students
Brown, Ted, Bourke-Taylor, Helen, Isbel, Stephen, Gustafsson, Louise, McKinstry, Carol, Logan, Alexandra and Etherington, Jamie. (2018). Exploring similarities and differences among the self-reported academic integrity of Australian occupational therapy domestic and international students. Nurse Education Today. 70, pp. 13 - 19. https://doi.org/10.1016/j.nedt.2018.08.005
Systematic review of the economic impact of cerebral palsy
Tonmukayakul, Utsana, Shih, Sophy T. F., Bourke-Taylor, Helen, Imms, Christine, Reddihough, Dinah, Cox, Liz and Carter, Rob. (2018). Systematic review of the economic impact of cerebral palsy. Research in Developmental Disabilities. 80, pp. 93 - 101. https://doi.org/10.1016/j.ridd.2018.06.012
Evaluating the psychometric quality of school connectedness measures: A systematic review
Hodges, Amy, Cordier, Reinie, Joosten, Annette, Bourke-Taylor, Helen and Speyer, Renee. (2018). Evaluating the psychometric quality of school connectedness measures: A systematic review. PLoS ONE. 13(9), pp. 1 - 27. https://doi.org/10.1371/journal.pone.0203373
Validity of the Assistance to Participate Scale with Parents of typically developing Australian children aged three to eight years
Joyce, Kahli Soriah, Bourke-Taylor, Helen and Wilkes-Gillan, Sarah. (2017). Validity of the Assistance to Participate Scale with Parents of typically developing Australian children aged three to eight years. Australian Occupational Therapy Journal. 64(5), pp. 381 - 390. https://doi.org/10.1111/1440-1630.12409
Evaluating the psychometric quality of social skills measures: A systematic review
Cordier, Reinie, Speyer, Renee, Chen, Yu-Wei, Wilkes-Gillan, Sarah, Brown, Ted, Bourke-Taylor, Helen, Doma, Kenji and Leicht, Anthony. (2015). Evaluating the psychometric quality of social skills measures: A systematic review. PLoS One (online). 10(7), pp. 1 - 32. https://doi.org/10.1371/journal.pone.0132299
Further validation of the Health Promoting Activities Scale with mothers of typically developing children
Bourke-Taylor, Helen Maree, Lalor, Aislinn, Famworth, Louise and Pallant, Julie. (2014). Further validation of the Health Promoting Activities Scale with mothers of typically developing children. Australian Occupational Therapy Journal. 61(5), pp. 308 - 315. https://doi.org/10.1111/1440-1630.12137
Children and Youth Instrument Development and Testing Articles Published in the American Journal of Occupational Therapy, 2009-2013 : A Content, Methodology, and Instrument Design Review
Brown, Ted and Bourke-Taylor, Helen. (2014). Children and Youth Instrument Development and Testing Articles Published in the American Journal of Occupational Therapy, 2009-2013 : A Content, Methodology, and Instrument Design Review. American Journal of Occupational Therapy. 68(5), pp. e154 - e217. https://doi.org/10.5014/ajot.2014.012237
Young Children with cerebral palsy : families self reported equipment needs and out of pocket expenditure
Bourke-Taylor, Helen, Cotter, C and Stephan, R. (2014). Young Children with cerebral palsy : families self reported equipment needs and out of pocket expenditure. Child: Care, Health and Development. 40(5), pp. 654 - 662. https://doi.org/10.1111/cch.12098
Relationship between sleep disruptions, health and care responsibilities among mothers of school-aged children with disabilities
Bourke-Taylor, Helen, Pallant, Julie, Law, Mary and Howie, Linsey. (2013). Relationship between sleep disruptions, health and care responsibilities among mothers of school-aged children with disabilities. Journal of Paediatrics and Child Health. https://doi.org/10.1111/jpc.12254
Update on the Child's Challenging Behaviour Scale following evaluation using rasch analysis
Bourke-Taylor, Helen, Pallant, Julie and Law, Mary. (2013). Update on the Child's Challenging Behaviour Scale following evaluation using rasch analysis. Child: Care, Health and Development. https://doi.org/10.1111/cch.12035
Update on the Child's Challenging Behaviour Scale following evaluation using rasch analysis
Bourke-Taylor, Helen, Pallant, Julie and Law, Mary. (2013). Update on the Child's Challenging Behaviour Scale following evaluation using rasch analysis. Child: Care, Health and Development. https://doi.org/10.1111/cch.12035
Relationship between sleep disruptions, health and care responsibilities among mothers of school-aged children with disabilities
Bourke-Taylor, Helen, Pallant, Julie, Law, Mary and Howie, Linsey. (2013). Relationship between sleep disruptions, health and care responsibilities among mothers of school-aged children with disabilities. Journal of Paediatrics and Child Health. https://doi.org/10.1111/jpc.12254
The Assistance to Participate Scale to measure play and leisure support for children with developmental disability : Update following Rasch analysis
Bourke-Taylor, Helen and Pallant, Julie. (2013). The Assistance to Participate Scale to measure play and leisure support for children with developmental disability : Update following Rasch analysis. Child: Care, Health and Development. https://doi.org/10.1111/cch.12047
The Assistance to Participate Scale to measure play and leisure support for children with developmental disability : Update following Rasch analysis
Bourke-Taylor, Helen and Pallant, Julie. (2013). The Assistance to Participate Scale to measure play and leisure support for children with developmental disability : Update following Rasch analysis. Child: Care, Health and Development. https://doi.org/10.1111/cch.12047
Investigation of the self reported health and health related behaviours of Victorian mothers of school aged children
Bourke-Taylor, Helen, Lalor, Aislinn, Farnworth, Louise, Pallant, Julie, Knightbridge, Elizabeth and McLelland, Gayle. (2013). Investigation of the self reported health and health related behaviours of Victorian mothers of school aged children. Journal of Primary Health Care. https://doi.org/10.1071/PY13056
Predicting mental health among mothers of school-aged children with developmental disabilities : The relative contribution of child, maternal and environmental factors
Bourke-Taylor, Helen, Pallant, Julie, Law, Mary and Howie, Linsey. (2012). Predicting mental health among mothers of school-aged children with developmental disabilities : The relative contribution of child, maternal and environmental factors. Research in Developmental Disabilities. 33(6), pp. 1732 - 1740. https://doi.org/10.1016/j.ridd.2012.04.011
Self reported mental health of mothers with a school-aged child with a disability in Victoria : A mixed method study
Bourke-Taylor, Helen, Howie, Linsey, Law, Mary and Pallant, Julie. (2012). Self reported mental health of mothers with a school-aged child with a disability in Victoria : A mixed method study. Journal of Paediatrics and Child Health. 48(2), pp. 153 - 159. https://doi.org/10.1111/j.1440-1754.2011.02060.x
Initial development of the health promoting activities scale to measure the leisure participation of mothers of children with disabilities
Bourke-Taylor, Helen, Law, Mary, Howie, Linsey and Pallant, Julie. (2012). Initial development of the health promoting activities scale to measure the leisure participation of mothers of children with disabilities. American Journal of Occupational Therapy. 66(1), pp. 1 - 10. https://doi.org/10.5014/ajot.2012.000521
Initial development of the health promoting activities scale to measure the leisure patricipation of mother's of children with disabilities
Bourke-Taylor, Helen, Law, Mary, Howie, Linsey and Pallant, Julie. (2012). Initial development of the health promoting activities scale to measure the leisure patricipation of mother's of children with disabilities. American Journal of Occupational Therapy. 66(1), pp. 1 - 10. https://doi.org/10.5014/ajot.2012.000521
Barriers to maternal workforce participation and relationship between paid work and health
Bourke-Taylor, Helen, Howie, Linsey and Law, Mary. (2011). Barriers to maternal workforce participation and relationship between paid work and health. Journal of Intellectual Disability Research. 55(5), pp. 511 - 520. https://doi.org/10.1111/j.1365-2788.2011.01407.x
Development of the Child's Challenging Behaviour Scale (CCBS) for mothers of school aged children with disabilities
Bourke-Taylor, Helen, Law, Mary, Howie, Linsey and Pallant, Julie. (2010). Development of the Child's Challenging Behaviour Scale (CCBS) for mothers of school aged children with disabilities. Child: Care, Health and Development. 36(4), pp. 491 - 498. https://doi.org/10.1111/j.1365-2214.2009.01055.x
Impact of caring for a school aged child with a disability : Understanding mothers' perspectives
Bourke-Taylor, Helen, Howie, Linsey and Law, Mary. (2010). Impact of caring for a school aged child with a disability : Understanding mothers' perspectives. Australian Occupational Therapy Journal. 57(2), pp. 127 - 136. https://doi.org/10.1111/j.1440-1630.2009.00817.x
Development of the Child's Challenging Behaviour Scale (CCBS) for mothers of school aged children with disabilities
Bourke-Taylor, Helen, Law, Mary, Howie, Linsey and Pallant, Julie. (2010). Development of the Child's Challenging Behaviour Scale (CCBS) for mothers of school aged children with disabilities. Child: Care, Health and Development. 36(4), pp. 491 - 498. https://doi.org/10.1111/j.1365-2214.2009.01055.x
Impact of caring for a school aged child with a disability : Understanding mothers' perspectives
Bourke-Taylor, Helen, Howie, Linsey and Law, Mary. (2010). Impact of caring for a school aged child with a disability : Understanding mothers' perspectives. Australian Occupational Therapy Journal. 57(2), pp. 127 - 136. https://doi.org/10.1111/j.1440-1630.2009.00817.x
Development of the Assistance to Participate Scale (APS) for children's play and leisure activities
Bourke-Taylor, Helen Maree, Law, Mary, Howie, Linsey and Pallant, Julie F.. (2009). Development of the Assistance to Participate Scale (APS) for children's play and leisure activities. Child: Care, Health and Development. 35(5), pp. 738 - 745. https://doi.org/10.1111/j.1365-2214.2009.00995.x
Conductive education: A functional skills program for children with cerebral palsy
Bourke-Taylor, Helen Maree, O'Shea, Roberta and Gaebler-Spira, Deborah. (2007). Conductive education: A functional skills program for children with cerebral palsy. Physical & Occupational Therapy in Pediatrics. 27(1), pp. 45 - 62. https://doi.org/10.1300/J006v27n01_04
Cultural differences: The experience of establishing an occupational therapy service in a developing community
Bourke-Taylor, Helen Maree and Hudson, Dawn. (2005). Cultural differences: The experience of establishing an occupational therapy service in a developing community. Australian Occupational Therapy Journal. 52(3), pp. 188 - 198. https://doi.org/10.1111/j.1440-1630.2005.00493.x
Melbourne assessment of unilateral upper limb function: Construct validity and correlation with the pediatric evaluation of disability inventory
Bourke-Taylor, Helen Maree. (2003). Melbourne assessment of unilateral upper limb function: Construct validity and correlation with the pediatric evaluation of disability inventory. Developmental Medicine and Child Neurology. 45(2), pp. 92 - 96. https://doi.org/10.1111/j.1469-8749.2003.tb00911.x