Management strategies of mothers of school-age children with autism: implications for practice

Journal article

Joosten, Annette and Safe, Anneleise P.. (2014). Management strategies of mothers of school-age children with autism: implications for practice. Australian Occupational Therapy Journal. 61(4), pp. 249 - 258. https://doi.org/10.1111/1440-1630.12116
AuthorsJoosten, Annette and Safe, Anneleise P.
Abstract

Background/aim: Mothering children with autism results in mothers spending more time on daily tasks as well as managing the disorder. The need for mothers to self-manage often increases when the child is school aged. Mothers develop strategies, and occupational therapists and other health professional rely on or expect mothers to be involved in meeting the extra needs of their children with autism and other family members. Little is known about the strategies adopted by the mothers. The aim of this study was to explore the strategies mothers used to manage their roles and emotions, and their child’s behaviours.

Keywordsautism spectrum disorder; family-centredpractice; mothers; research related; self management; wellbeing
Year2014
JournalAustralian Occupational Therapy Journal
Journal citation61 (4), pp. 249 - 258
PublisherBlackwell Publishing Inc.
ISSN0045-0766
Digital Object Identifier (DOI)https://doi.org/10.1111/1440-1630.12116
Scopus EID2-s2.0-84929505669
Page range249 - 258
Research GroupSchool of Allied Health
Publisher's version
File Access Level
Controlled
Place of publicationAustralia
Permalink -

https://acuresearchbank.acu.edu.au/item/8q834/management-strategies-of-mothers-of-school-age-children-with-autism-implications-for-practice

Log in to edit

Restricted files

Publisher's version

  • 114
    total views
  • 0
    total downloads
  • 0
    views this month
  • 0
    downloads this month
These values are for the period from 19th October 2020, when this repository was created.

Export as

Related outputs

Sexuality and ageing : A mixed methods explorative study of older adult’s experiences, attitudes, and support needs
Portellos, Amelia, Lynch, Claire and Joosten, Annette. (2023). Sexuality and ageing : A mixed methods explorative study of older adult’s experiences, attitudes, and support needs. British Journal of Occupational Therapy. 86(7), pp. 515-526. https://doi.org/10.1177/03080226231164277
Exploring the perspectives of young adults with developmental disabilities about sexuality and sexual health
Coulter, Daina, Lynch, Claire and Joosten, Annette V.. (2023). Exploring the perspectives of young adults with developmental disabilities about sexuality and sexual health. Australian Occupational Therapy Journal. 70, p. 380–391. https://doi.org/10.1111/1440-1630.12862
Closing the gap between theory and practice : Conceptualisation of a school-based intervention to improve the school participation of primary school students on the autism spectrum and their typically developing peers
Hodges, Amy, Cordier, Reinie, Joosten, Annette and Bourke-Taylor, Helen. (2022). Closing the gap between theory and practice : Conceptualisation of a school-based intervention to improve the school participation of primary school students on the autism spectrum and their typically developing peers. Journal of Autism and Developmental Disorders. 52, pp. 3230-3245. https://doi.org/10.1007/s10803-021-05362-5
Evaluating the feasibility, fidelity, and preliminary effectiveness of a school-based intervention to improve the school participation and feelings of connectedness of elementary school students on the autism spectrum
Hodges, Amy, Cordier, Reinie, Joosten, Annette, Bourke-Taylor, Helen and Chen, Yu-Wei. (2022). Evaluating the feasibility, fidelity, and preliminary effectiveness of a school-based intervention to improve the school participation and feelings of connectedness of elementary school students on the autism spectrum. PLoS ONE. 17(6), p. Article e0269098. https://doi.org/10.1371/journal.pone.0269098
Exploring the implementation of the restraint and seclusion school policy with students with disability in Australian schools
Sexton, Georgia, Brown, Cherylee, Joosten, Annette and Hayward, Brent. (2022). Exploring the implementation of the restraint and seclusion school policy with students with disability in Australian schools. International Journal of Inclusive Education. pp. 1-19. https://doi.org/10.1080/13603116.2022.2150789
Experience of recently graduated occupational therapists in addressing sexuality with their clients
Spaseska, Claudia, Lynch, Claire, Joosten, Annette and Areskoug Josefsson, Kristina. (2022). Experience of recently graduated occupational therapists in addressing sexuality with their clients. Sexuality and Disability. 40, pp. 769-783. https://doi.org/10.1007/s11195-022-09762-y
Addressing sexuality : The comfort and preparedness of occupational therapy students
Lynch, Claire and Joosten, Annette V.. (2022). Addressing sexuality : The comfort and preparedness of occupational therapy students. Journal of Occupational Therapy Education. 6(1), pp. 1-16. https://doi.org/10.26681/jote.2022.060107
Occupational therapy practice contexts
Joosten, Annette, Darzins, Susan, Pépin, Geneviève, Roche, Natalie, Cahill, Liana and Harrington, Rosamund. (2021). Occupational therapy practice contexts. In In Brown, Ted, Bourke-Taylor, Helen M., Isbel, Stephen, Cordier, Reinie and Gustafsson, Louise (Ed.). Occupational therapy in Australia : Professional and practice issues pp. 305-323 Routledge.
Expert consensus on the development of a school-based intervention to improve the school participation and connectedness of elementary students on the autism spectrum : A delphi study
Hodges, Amy, Cordier, Reinie, Joosten, Annette and Bourke-Taylor, Helen. (2021). Expert consensus on the development of a school-based intervention to improve the school participation and connectedness of elementary students on the autism spectrum : A delphi study. Focus on Autism and Other Developmental Disabilities. 37(1), pp. 13-23. https://doi.org/10.1177/10883576211030483
Can we play together? A closer look at the peers of a peer-mediated intervention to improve play in children with autism spectrum disorder
Kent, Cally, Cordier, Reinie, Joosten, Annette, Wilkes-Gillan, Sarah and Bundy, Anita. (2021). Can we play together? A closer look at the peers of a peer-mediated intervention to improve play in children with autism spectrum disorder. Journal of Autism and Developmental Disorders. 50(8), pp. 2860-2873. https://doi.org/10.1007/s10803-020-04387-6
Can I learn to play? Randomized control trial to assess effectiveness of a peer-mediated intervention to improve play in children with autism spectrum disorder
Kent, Cally, Cordier, Reinie, Joosten, Annette, Wilkes-Gillan, Sarah and Bundy, Anita. (2021). Can I learn to play? Randomized control trial to assess effectiveness of a peer-mediated intervention to improve play in children with autism spectrum disorder. Journal of Autism and Developmental Disorders. 51, pp. 1823-1838. https://doi.org/10.1007/s10803-020-04671-5
Scoping review on noticing concerns in child development : A missing piece in the early intervention puzzle
Cuomo, Belinda, Joosten, Annette and Vaz, Sharmila. (2021). Scoping review on noticing concerns in child development : A missing piece in the early intervention puzzle. Disability and Rehabilitation. 43(18), pp. 2663-2672. https://doi.org/10.1080/09638288.2019.1707296
Mind the gap : Comparing perspectives of service providers to the needs of people with dementia living in the community
Morrisby, Claire, Ciccarelli, Marina and Joosten, Annette. (2020). Mind the gap : Comparing perspectives of service providers to the needs of people with dementia living in the community. Dementia. 20(4), pp. 1425-1441. https://doi.org/10.1177/1471301220947837
A systematic review and meta-analysis of interventions to improve play skills in children with autism spectrum disorder
Kent, Cally, Cordier, Reinie, Joosten, Annette, Wilkes-Gillan, Sarah, Bundy, Anita and Speyer, Renée. (2020). A systematic review and meta-analysis of interventions to improve play skills in children with autism spectrum disorder. Review Journal of Autism and Developmental Disorders. 7(1), pp. 91-118. https://doi.org/10.1007/s40489-019-00181-y
Can I join in? Multiple case study investigation of play performance generalisation for children with autism spectrum disorder from dyad to triad
Kent, Cally, Cordier, Reinie, Joosten, Annette, Wilkes-Gillan, Sarah and Bundy, Anita. (2020). Can I join in? Multiple case study investigation of play performance generalisation for children with autism spectrum disorder from dyad to triad. Australian Occupational Therapy Journal. 67(3), pp. 199 - 209. https://doi.org/10.1111/1440-1630.12635
School participation: The shared perspectives of parents and educators of primary school students on the autism spectrum
Hodges, Amy, Joosten, Annette, Bourke-Taylor, Helen and Cordier, Reinie. (2020). School participation: The shared perspectives of parents and educators of primary school students on the autism spectrum. Research in Developmental Disabilities. 97, pp. 1 - 12. https://doi.org/10.1016/j.ridd.2019.103550
Peer's pragmatic language outcomes following a peer-mediated intervention for children with autism: A randomised controlled trial
Parsons, Lauren, Cordier, Reinie, Munro, Natalie and Joosten, Annette. (2020). Peer's pragmatic language outcomes following a peer-mediated intervention for children with autism: A randomised controlled trial. Research in Developmental Disabilities. 99, p. Article 103591. https://doi.org/10.1016/j.ridd.2020.103591
The feasibility and appropriateness of a peer-to-peer, play-based intervention for improving pragmatic language in children with autism spectrum disorder
Lauren Parsons, Reinie Cordier, Natalie Munro and Annette Joosten. (2019). The feasibility and appropriateness of a peer-to-peer, play-based intervention for improving pragmatic language in children with autism spectrum disorder. International Journal of Speech-Language Pathology. 21(4), pp. 412-424. https://doi.org/10.1080/17549507.2018.1492630
A randomized controlled trial of a play-based, peer-mediated pragmatic language intervention for children with autism
Lauren Parsons, Reinie Cordier, Natalie Munro and Annette Joosten. (2019). A randomized controlled trial of a play-based, peer-mediated pragmatic language intervention for children with autism. Frontiers in Psychology. 10(1960), pp. 1-15. https://doi.org/10.3389/fpsyg.2019.01960
Needs of people with dementia and their spousal carers: A study of those living in the community
Morrisby, Claire, Joosten, Annette and Ciccarelli, Marina. (2019). Needs of people with dementia and their spousal carers: A study of those living in the community. Australasian Journal on Ageing. 38(2), pp. 43 - 49. https://doi.org/10.1111/ajag.12609
The impact of carer status on participation in healthy activity and self-reported health among Australian women over 50 years
Farrugia, Teagan Jade, Hewitt, Alana, Bourke-Taylor, Helen and Joosten, Annette V.. (2019). The impact of carer status on participation in healthy activity and self-reported health among Australian women over 50 years. Australian Occupational Therapy Journal. 66(1), pp. 23 - 32. https://doi.org/10.1111/1440-1630.12491
Preparing children with autism for transition to mainstream school and perspectives on supporting positive school experiences
Larcombe, Tegan J., Joosten, Annette V., Cordier, Reinie and Vaz, Sharmila. (2019). Preparing children with autism for transition to mainstream school and perspectives on supporting positive school experiences. Journal of Autism and Developmental Disorders. 49, pp. 3073 - 3088. https://doi.org/10.1007/s10803-019-04022-z
Applying Item Response Theory (IRT) modeling to an observational measure of childhood pragmatics: The Pragmatics Observational Measure-2
Cordier, Reinie, Munro, Natalie, Wilkes-Gillan, Sarah, Speyer, Renee, Parsons, Lauren and Joosten, Annette. (2019). Applying Item Response Theory (IRT) modeling to an observational measure of childhood pragmatics: The Pragmatics Observational Measure-2. Frontiers in Psychology. 10(408), pp. 1 - 17. https://doi.org/10.3389/fpsyg.2019.00408
Factor structure of the social communication questionnaire in preschool aged autistic children
Grove, Rachel, Paynter, Jessica, Joosten, Annette, Vivanti, Giacomo, Dissanayake, Cheryl and Eapen, Valsamma. (2019). Factor structure of the social communication questionnaire in preschool aged autistic children. Journal of Child and Family Studies. 28, pp. 3385 - 3391. https://doi.org/10.1007/s10826-019-01519-0
A play-based, peer-mediated pragmatic language intervention for school-aged children on the autism spectrum: Predicting who benefits most
Parsons, Lauren, Cordier, Reinie, Munro, Natalie and Joosten, Annette. (2019). A play-based, peer-mediated pragmatic language intervention for school-aged children on the autism spectrum: Predicting who benefits most. Journal of Autism and Developmental Disorders. 49, pp. 4219 - 4231. https://doi.org/10.1007/s10803-019-04137-3
Do services meet the needs of people with dementia and carers living in the community? A scoping review of the international literature
Morrisby, Claire, Joosten, Annette and Ciccarelli, Marina. (2018). Do services meet the needs of people with dementia and carers living in the community? A scoping review of the international literature. International Psychogeriatrics. 30(1), pp. 5 - 14. https://doi.org/10.1017/S1041610217001491
Intergenerational mentoring at Men's Sheds: A feasibility study
Wilson, Nathan J., Cordier, Reinie, Ciccarelli, Marina, MacCallum, Judith, Milbourn, Benjamin, Vaz, Sharmila, Joosten, Annette, Buchanan, Angus, Mcauliffe, Tomomi and Stancliffe, Roger J.. (2018). Intergenerational mentoring at Men's Sheds: A feasibility study. Journal of Applied Research in Intellectual Disabilities. 31(1), pp. 105 - 117. https://doi.org/10.1111/jar.12338
Assessing motor skills to inform a fetal alcohol spectrum disorder diagnosis focusing on persons older than 12 years: A systematic review of the literature
Safe, Bernadette, Joosten, Annette and Giglia, Roslyn. (2018). Assessing motor skills to inform a fetal alcohol spectrum disorder diagnosis focusing on persons older than 12 years: A systematic review of the literature. Canadian Journal of Clinical Pharmacology. 25(1), pp. 25 - 38. https://doi.org/10.22374/1710-6222.25.1.3
Factors associated with stress in families of children with autism spectrum disorder
Sim, Angela, Vaz, Sharmila, Cordier, Reinie, Joosten, Annette, Parsons, Dave, Smith, Cally and Falkmer, Torbjörn. (2018). Factors associated with stress in families of children with autism spectrum disorder. Developmental Neurorehabilitation. 21(3), pp. 155 - 165. https://doi.org/10.1080/17518423.2017.1326185
iPad applications that required a range of motor skills promoted motor coordination in children commencing primary school
Axford, Caitlin, Joosten, Annette V. and Harris, Courtenay. (2018). iPad applications that required a range of motor skills promoted motor coordination in children commencing primary school. Australian Occupational Therapy Journal. 65(2), pp. 146 - 155. https://doi.org/10.1111/1440-1630.12450
Peer-mediated intervention to improve play skills in children with autism spectrum disorder: A feasibility study
Kent, Cally, Cordier, Reinie, Joosten, Annette, Wilkes-Gillan, Sarah and Bundy, Anita. (2018). Peer-mediated intervention to improve play skills in children with autism spectrum disorder: A feasibility study. Australian Occupational Therapy Journal. 65(3), pp. 176 - 186. https://doi.org/10.1111/1440-1630.12459
Using Rasch Analysis to evaluate the reliability and validity of the Swallowing Quality of Life Questionnaire: An Item Response Theory approach
Cordier, Reinie, Speyer, Renee, Schindler, Antonio, Michou, Emilia, Heijnen, Bas Joris, Baijens, Laura, Karaduman, Ayse, Swan, Katina, Clavé, Pere and Joosten, Annette Veronica. (2018). Using Rasch Analysis to evaluate the reliability and validity of the Swallowing Quality of Life Questionnaire: An Item Response Theory approach. Dysphagia. 33, pp. 441 - 456. https://doi.org/10.1007/s00455-017-9873-4
Evaluating the psychometric quality of school connectedness measures: A systematic review
Hodges, Amy, Cordier, Reinie, Joosten, Annette, Bourke-Taylor, Helen and Speyer, Renee. (2018). Evaluating the psychometric quality of school connectedness measures: A systematic review. PLoS ONE. 13(9), pp. 1 - 27. https://doi.org/10.1371/journal.pone.0203373
A systematic review of pragmatic language interventions for children with autism spectrum disorder
Parsons, Lauren, Cordier, Reinie, Munro, Natalie, Joosten, Annette and Speyer, Renee. (2017). A systematic review of pragmatic language interventions for children with autism spectrum disorder. PLoS ONE. 12(4), pp. 1 - 37. https://doi.org/10.1371/journal.pone.0172242
Utilisation of evidence-based practices by ASD early intervention service providers
Paynter, Jessica M., Ferguson, Sarah, Fordyce, Kathryn, Joosten, Annette, Paku, Sofia, Stephens, Miranda, Trembath, David and Keen, Deb. (2017). Utilisation of evidence-based practices by ASD early intervention service providers. Autism. 21(2), pp. 167 - 180. https://doi.org/10.1177/1362361316633032
Gaze and visual search strategies of children with Asperger syndrome/high functioning autism viewing a magic trick
Joosten, Annette, Girdler, Sonya, Albrecht, Matthew A., Horlin, Chiara, Falkmer, Marita, Leung, Denise, Ordqvist, Anna, Fleischer, Håkan and Falkmer, Torbjorn. (2016). Gaze and visual search strategies of children with Asperger syndrome/high functioning autism viewing a magic trick. Developmental Neurorehabilitation. 19(2), pp. 95 - 102. https://doi.org/10.3109/17518423.2014.913081
Contemporary occupational therapy: Our occupational therapy models are essential to occupation centred practice
Joosten, Annette. (2015). Contemporary occupational therapy: Our occupational therapy models are essential to occupation centred practice. Australian Occupational Therapy Journal. 62(3), pp. 219 - 222. https://doi.org/10.1111/1440-1630.12186
Parents' Perspectives on Inclusive Schools for Children with Autism Spectrum Conditions
Falkmer, Marita, Anderson, Katie, Joosten, Annette and Falkmer, Torbjörn. (2015). Parents' Perspectives on Inclusive Schools for Children with Autism Spectrum Conditions. International Journal of Disability, Development and Education. 62(1), pp. 1 - 23. https://doi.org/10.1080/1034912X.2014.984589
Visual search strategies during facial recognition in children with ASD
Albrecht, Matthew A., Foster, Joanne, Joosten, Annette, Falkmer, Marita, Tang, Julia, Leung, Denise, Ordqvist, Anna and Falkmer, Torbjorn. (2014). Visual search strategies during facial recognition in children with ASD. Research in Autism Spectrum Disorders. 8(5), pp. 559 - 569. https://doi.org/10.1016/j.rasd.2014.01.014
Does video training increase adult and child joint attention and improve child outcomes? Two individual case studies in children with autism spectrum disorder
Benson, Rhianna L. and Joosten, Annette V.. (2014). Does video training increase adult and child joint attention and improve child outcomes? Two individual case studies in children with autism spectrum disorder. Journal of Intellectual and Developmental Disability. 39(4), pp. 301 - 314. https://doi.org/10.3109/13668250.2014.940861
Investigating the experiences in a school-based occupational therapy program to inform community-based paediatric occupational therapy practice
Rens, Lezahn and Joosten, Annette. (2014). Investigating the experiences in a school-based occupational therapy program to inform community-based paediatric occupational therapy practice. Australian Occupational Therapy Journal. 61(3), pp. 148 - 158. https://doi.org/10.1111/1440-1630.12093
The experiences of mothers of children with autism: Managing multiple roles
Safe, Anneleise P., Joosten, Annette V. and Molineux, Matthew. (2012). The experiences of mothers of children with autism: Managing multiple roles. Journal of Intellectual and Developmental Disability. 37(4), pp. 294 - 302. https://doi.org/10.3109/13668250.2012.736614
The motivation of stereotypic and repetitive Behavior: Examination of construct validity of the Motivation Assessment Scale.
Joosten, Annette and Bundy, Anita. (2008). The motivation of stereotypic and repetitive Behavior: Examination of construct validity of the Motivation Assessment Scale. Journal of Autism and Developmental Disorders. 38(7), pp. 1341 - 1348. https://doi.org/10.1007/s10803-007-0523-9