The experience of men and women with cystic fibrosis who have become a parent: A qualitative study
Journal article
Jessup, Melanie, Li, Anne, Fulbrook, Paul and Bell, Scott C.. (2018). The experience of men and women with cystic fibrosis who have become a parent: A qualitative study. Journal of Clinical Nursing. 27(44050), pp. 1702 - 1712. https://doi.org/10.1111/jocn.14229
Authors | Jessup, Melanie, Li, Anne, Fulbrook, Paul and Bell, Scott C. |
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Abstract | Aims and objectives: To explore the experiences of men and women with cystic fibrosis in becoming parents. Background: As lifespan for people with cystic fibrosis increases, and reproductive technology advances, having a child of their own becomes a possibility. Design: This study used a phenomenological framework. Methods: Seven Australian adults with cystic fibrosis were invited to describe their experiences of becoming parents in the context of a semi‐structured interview. Analysis of the data involved highlighting recurrent phrases and isolating emergent themes. Results: Two overarching themes characterised the participants’ experience: Counting the cost, as they recalled Concentric communication and Pathways to pregnancy; and Living the dream, as they cast a retrospective view over this, their major achievement, in the light of their Reaction: a dream comes true, Coping: a question of balance, Conjecture: the future redefined and Confidence: recalibrating. Conclusions: While advances in cystic fibrosis care and reproductive technology have increased the possibility of individuals with cystic fibrosis becoming parents, the passage to becoming a parent is a complex process. Relevance to clinical practice: These findings can inform health professionals to support the adaptive work necessary for families that include members with cystic fibrosis. A contemporary understanding of this phenomenon is necessary for facilitating clinically relevant communication. |
Keywords | chronic illness; cystic fibrosis; family caregivers; fathers; healthcare professionals; lifeshortening illness; mothers; parenting; pregnancy; qualitative research |
Year | 2018 |
Journal | Journal of Clinical Nursing |
Journal citation | 27 (44050), pp. 1702 - 1712 |
Publisher | Wiley-Blackwell |
ISSN | 0962-1067 |
Digital Object Identifier (DOI) | https://doi.org/10.1111/jocn.14229 |
Scopus EID | 2-s2.0-85045922339 |
Page range | 1702 - 1712 |
Research Group | School of Nursing, Midwifery and Paramedicine |
Publisher's version | File Access Level Controlled |
Place of publication | United Kingdom |
Editors | D. Jackson |
https://acuresearchbank.acu.edu.au/item/8qw23/the-experience-of-men-and-women-with-cystic-fibrosis-who-have-become-a-parent-a-qualitative-study
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