Support for carers of young people with mental illness : Design and trial of a technology-mediated therapy
Journal article
Lederman, Reeva, Gleeson, John, Wadley, Greg, D'Alfonso, Simon, Rice, Simon, Santesteban-Echarri, Olga and Alvarez-Jimenez, Mario. (2019). Support for carers of young people with mental illness : Design and trial of a technology-mediated therapy. ACM Transactions on Computer-Human Interaction. 26(1), p. 4. https://doi.org/10.1145/3301421
Authors | Lederman, Reeva, Gleeson, John, Wadley, Greg, D'Alfonso, Simon, Rice, Simon, Santesteban-Echarri, Olga and Alvarez-Jimenez, Mario |
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Abstract | In this article, we show how a technology-mediated mental health therapy involving psycho-education, therapist moderators, and social networking can provide support for carers of young people with mental illness. This multi-faceted tool provides opportunities for users to adapt the system to their needs, leading us to refocus the goal of treatment adherence toward a relatively new phenomenon in HCI, concordance, which has not previously been examined in the HCI literature in relation to online mental-health tools. Concordance shares important links with the development of therapeutic alliance, which is centrally important to mental health therapy, and to Self-Determination Theory (SDT), which informed our approach to design. We present a three-month user study, which provides initial encouraging support for both the suitability of concordance as a lens for viewing user engagement and the idea that users can develop a therapeutic alliance with an online support system. This latter result is surprising as the phenomenon of therapeutic alliance generally describes a relationship between client and (human) clinician. Therapeutic alliance has previously been explored for face-to-face groups, and between individuals and online systems, but not for online groups. We show how even automated system behavior can encourage engagement from users and contribute to alliance formation, if the non-human parts of an online system are interactive. We argue that a design approach involving peer/moderator support as well as automated feedback, and which takes account of SDT, can provide support for therapeutic alliance. |
Keywords | HCI theory, concepts and models; empirical studies in interaction design; health care information systems; technology-mediated support; user-centered design; social networking; peer-support; self-determination theory; concordance; therapeutic alliance |
Year | 2019 |
Journal | ACM Transactions on Computer-Human Interaction |
Journal citation | 26 (1), p. 4 |
Publisher | Association for Computing Machinery |
ISSN | 1073-0516 |
Digital Object Identifier (DOI) | https://doi.org/10.1145/3301421 |
Scopus EID | 2-s2.0-85062327862 |
Research or scholarly | Research |
Page range | 1-33 |
Funder | National Health and Medical Research Council (NHMRC) |
Publisher's version | License All rights reserved File Access Level Controlled |
Output status | Published |
Publication dates | |
Online | 21 Feb 2019 |
Publication process dates | |
Deposited | 07 Jun 2021 |
Grant ID | NHMRC/1082934 |
https://acuresearchbank.acu.edu.au/item/8w355/support-for-carers-of-young-people-with-mental-illness-design-and-trial-of-a-technology-mediated-therapy
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