The role of the family in supporting the self-management of chronic conditions : A qualitative systematic review

Journal article

Whitehead, Lisa, Jacob, Elisabeth, Towell, Amanda, Abu-qamar, Ma'en and Cole-Heath, Amanda. (2018). The role of the family in supporting the self-management of chronic conditions : A qualitative systematic review. Journal of Clinical Nursing. 27(1-2), pp. 22-30. https://doi.org/10.1111/jocn.13775
AuthorsWhitehead, Lisa, Jacob, Elisabeth, Towell, Amanda, Abu-qamar, Ma'en and Cole-Heath, Amanda
Abstract

Aims and objectives
To explore the contribution of family members in promoting and supporting the self-management of chronic conditions amongst adult family members.

Background
The prevalence of chronic disease continues to grow globally. The role of the family in chronic condition management and support for self-management has received little attention.

Design
A systematic review of qualitative literature using the Joanna Briggs Institute approach for qualitative systematic reviews.

Methods
Ovid (MEDLINE, CINAHL and PsycINFO) were searched for the period of database inception—2016. The QARI (Qualitative Assessment and Review Instrument) critical appraisal instrument was used to assess the quality of each study. Using the Joanna Briggs Institute-QARI data extraction tool, findings related to the family role in the self-management of chronic conditions were extracted and each finding rated according to Joanna Briggs Institute-QARI levels of credibility. Findings were categorised and synthesised to produce a final set of aggregated findings.

Results
Families were key in constructing an environment that was conducive to family engagement and support. Adaptation within the family included maintaining cohesion between family members, normalisation and contextualisation of the chronic condition.

Conclusions
Whilst evidence on the value of the family in promoting positive health outcomes is clear, research on how families can specifically support the self-management of chronic conditions is emerging.

Relevance to clinical practice
Family adaptability has been found to be the most powerful predictor of carer depression. Families may need support to change their home and family organisation to adapt to the challenges they face overtime. Change in roles and subsequent adaptation can be stressful, even for those family members at a distance. Nurses working in hospital and community settings can play an important role in assessing how families are adapting to living with chronic illness and to explore strategies to cope with challenges in the home setting.

Keywordsadults; chronic conditions; family; nursing; self-management; systematic review
Year2018
JournalJournal of Clinical Nursing
Journal citation27 (1-2), pp. 22-30
PublisherBlackwell Publishing Ltd
ISSN0962-1067
Digital Object Identifier (DOI)https://doi.org/10.1111/jocn.13775
Scopus EID2-s2.0-85017653407
Research or scholarlyResearch
Page range22-30
Publisher's version
License
All rights reserved
File Access Level
Controlled
Output statusPublished
Publication dates
Online11 Apr 2017
Publication process dates
Accepted23 Feb 2017
Deposited16 Jul 2021
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