Measure of early vision use : Development of a new assessment tool for children with cerebral palsy

Journal article

Deramore Denver, Belinda, Froude, Elspeth, Rosenbaum, Peter and Imms, Christine. (2022). Measure of early vision use : Development of a new assessment tool for children with cerebral palsy. Disability and Rehabilitation. 44(15), pp. 4055-4065. https://doi.org/10.1080/09638288.2021.1890241
AuthorsDeramore Denver, Belinda, Froude, Elspeth, Rosenbaum, Peter and Imms, Christine
Abstract

Purpose
To report the development of an assessment tool to describe “how vision is used” for children with cerebral palsy.

Method
Measurement development consisted of three steps: (i) an online survey to explore the relevance and comprehensiveness of visual behaviours identified in a previous conceptualisation study; (ii) construction of items and a rating scale for the new measure; and (iii) cognitive interviews to explore comprehensibility and refine the measure in preparation for field testing. Survey respondents were 130 parents of children with cerebral palsy, eight adults with cerebral palsy, and 108 clinicians (n = 246). Nine parents participated in the interviews.

Results
The new tool, the Measure of Early Vision Use, is a 14-item descriptive measure of typical performance of visual behaviours observable in everyday activities, as rated by parent/caregiver observation. Each item is rated on a 4-point ordinal scale.

Conclusions
This new measure is conceptually grounded within the Activity level domain of the International Classification of Functioning, Disability and Health as a measure of a single visual ability construct. The target population is children with cerebral palsy, and using parent report the Measure of Early Vision Use describes both strengths and limitations in using vision. This study addressed the selection of items and response options for the new scale, and provides evidence to support content relevance, comprehensiveness and comprehensibility from key stakeholders. Further research will explore psychometric properties and clinical utility.

Implications for rehabilitation
The ability to use vision in daily activities is relevant to the development and learning of all children, so the availability of a method for describing visual abilities has potential for diverse research and clinical purposes.

The Measure of Early Vision Use is a parent-report tool that provides a criterion-referenced method for quantifying and describing how children use vision in typical daily activities to support intervention planning.

Clinicians and parents wishing to measure vision use in children with cerebral palsy can be confident about the rigorous methods used to develop this tool, including consultation with key stakeholders.

Keywordsmeasurement; vision; cerebral palsy; measure of early vision use; validity; children
Year2022
JournalDisability and Rehabilitation
Journal citation44 (15), pp. 4055-4065
PublisherTaylor & Francis
ISSN0963-8288
Digital Object Identifier (DOI)https://doi.org/10.1080/09638288.2021.1890241
PubMed ID33689557
Scopus EID2-s2.0-85102478760
Page range4055-4065
FunderNational Health and Medical Research Council (NHMRC)
Publisher's version
License
All rights reserved
File Access Level
Controlled
Output statusPublished
Publication dates
Online10 Mar 2021
Publication process dates
Accepted10 Feb 2021
Deposited10 Aug 2021
Grant ID1057997
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Contextual influences of parenting behaviors for children with neurodevelopmental disorders : results from a Canadian national survey
Arim, R, Garner, Rochelle, Brehaut, Jamie, Lach, Lucyna, MacKenzie, M, Rosenbaum, Peter and Kohen, Dafna. (2012). Contextual influences of parenting behaviors for children with neurodevelopmental disorders : results from a Canadian national survey. Disability and Rehabilitation. 34(26), pp. 2222 - 2233. https://doi.org/10.3109/09638288.2012.680650
Working memory and amnesia : The role of stimulus novelty
Rose, Nathan, Olsen, Rosanna, Craik, Fergus and Rosenbaum, R. (2012). Working memory and amnesia : The role of stimulus novelty. Neuropsychologia. 50(1), pp. 11 - 18. https://doi.org/10.1016/j.neuropsychologia.2011.10.016
Development of an outcome measurement system for service planning for children and youth with special needs
Kertoy, M, Russell, Dianne, Rosenbaum, Peter, Jaffer, S, Law, Mary, McCauley, D and Gorter, J. (2012). Development of an outcome measurement system for service planning for children and youth with special needs. Child: Care, Health and Development. 39(5), pp. 750 - 759. https://doi.org/10.1111/j.1365-2214.2012.01409.x
Inter-relationships of functional status in cerebral palsy : analyzing gross motor function, manual ability, and communication function classification systems in children
Cooley Hidecker, Mary Jo, Ho, Nhan Thi, Dodge, Nancy, Hurvitz, Edward, Slaughter, Jamie, Seif Workinger, Marilyn, Kent, Raymond, Rosenbaum, Peter, Lenski, Madeleine and Messaros, Bridget. (2012). Inter-relationships of functional status in cerebral palsy : analyzing gross motor function, manual ability, and communication function classification systems in children. Developmental Medicine and Child Neurology. 54(8), pp. 737 - 742. https://doi.org/10.1111/j.1469-8749.2012.04312.x
Generic patient-reported outcomes in child health research : a review of conceptual content using World Health Organization definitions
Fayed, Nora, Kraus De Camargo, Olaf, Kerr, Elizabeth, Rosenbaum, Peter, Dubey, Ankita, Bostan, Cristina, Faulhaber, Markus, Raina, P and Cieza, Alarcos. (2012). Generic patient-reported outcomes in child health research : a review of conceptual content using World Health Organization definitions. Developmental Medicine and Child Neurology. 54(8), pp. 1085 - 1093. https://doi.org/10.1111/j.1469-8749.2012.04393.x
Prospective study of the participation patterns of Grade 6 and Year 8 students in Victoria, Australia in activities outside of school
McMullan, Sarah, Chin, Rachel, Froude, Elspeth Heather and Imms, Christine. (2012). Prospective study of the participation patterns of Grade 6 and Year 8 students in Victoria, Australia in activities outside of school. Australian Occupational Therapy Journal. 59(3), pp. 197 - 208. https://doi.org/10.1111/j.1440-1630.2012.01013.x
The 'F-words' in childhood disability : I swear this is how we should think!
Rosenbaum, Peter and Gorter, J. (2012). The 'F-words' in childhood disability : I swear this is how we should think! Child: Care, Health and Development. 38(4), pp. 457 - 463. https://doi.org/10.1111/j.1365-2214.2011.01338.x
Rasch analysis of the PedsQL : an increased understanding of the properties of a rating scale
Amin, Leila, Rosenbaum, Peter, Barr, Ronald, Sung, Lillian, Klaassen, Robert, Dix, David and Klassen, Anne. (2012). Rasch analysis of the PedsQL : an increased understanding of the properties of a rating scale. Journal of Clinical Epidemiology. 65(10), pp. 1117 - 1123. https://doi.org/10.1016/j.jclinepi.2012.04.014
Translating evidence into practice: the role of scholarly journals
Froude, Elspeth. (2012). Translating evidence into practice: the role of scholarly journals. Australian Occupational Therapy Journal. 59(3), pp. 171 - 171. https://doi.org/10.1111/j.1440-1630.2012.01021.x
Parent views of the positive contributions of elementary and high school-aged children with autism spectrum disorders and Down syndrome
King, G, Zwaigenbaum, Lonnie, Bates, A, Baxter, D and Rosenbaum, Peter. (2012). Parent views of the positive contributions of elementary and high school-aged children with autism spectrum disorders and Down syndrome. Child: Care, Health and Development. 38(6), pp. 817 - 828. https://doi.org/10.1111/j.1365-2214.2011.01312.x
Behavioural problems in school age children with cerebral palsy
Brossard-Racine, Marie, Hall, Nick, Majnemer, Annette, Shevell, Michael, Law, Mary, Poulin, Chantal and Rosenbaum, Peter. (2012). Behavioural problems in school age children with cerebral palsy. European Journal of Paediatric Neurology. 16(1), pp. 35 - 41. https://doi.org/10.1016/j.ejpn.2011.10.001
Context therapy :a new intervention approach for children with cerebral palsy
Darrah, Johanna, Law, Mary, Pollock, Nancy, Wilson, Brenda, Russell, Dianne, Walter, Stephen, Rosenbaum, Peter and Galupppi, Barbara. (2011). Context therapy :a new intervention approach for children with cerebral palsy. Developmental Medicine and Child Neurology. 53(7), pp. 615 - 620. https://doi.org/10.1111/j.1469-8749.2011.03959.x
Family and quality of life :key elements in interventon in children with cerebral palsy
Rosenbaum, Peter. (2011). Family and quality of life :key elements in interventon in children with cerebral palsy. Developmental Medicine and Child Neurology. 53(4), pp. 68 - 70. https://doi.org/10.1111/j.1469-8749.2011.04068.x
Changes over time in the health of caregivers of children with health problems: Growth-curve findings from a 10-year Canadian population-based study
Brehaut, Jamie, Garner, Rochelle, Miller, Anton, Lach, Lucyna, Klassen, Anne, Rosenbaum, Peter and Kohen, Dafna. (2011). Changes over time in the health of caregivers of children with health problems: Growth-curve findings from a 10-year Canadian population-based study. American Journal of Public Health. 101(12), pp. 2308 - 2315. https://doi.org/10.2105/AJPH.2011.300298
Social Participation of Adolescents with Cerebral Palsy :Trade-offs and Choices
Stewart, Debra, Lawless, John, Shimmell, Lorie, Palisano, Robert, Freeman, Matthew, Rosenbaum, Peter and Russell, Dianne. (2011). Social Participation of Adolescents with Cerebral Palsy :Trade-offs and Choices. Physical & Occupational Therapy in Pediatrics. 32(2), pp. 167 - 179. https://doi.org/10.3109/01942638.2011.631100
Leisure Participation Patterns of Children in Victoria Australia
Chin, Rachel, McMullen, Sarah, Froude, Elspeth Heather and Imms, Christine. (2011). Leisure Participation Patterns of Children in Victoria Australia. Australian Occupational Therapy Journal. 58(Suppl s1), pp. 101 - 101. https://doi.org/10.1111/j.1440-1630.2011.00938.x
Factors Influencing Children's Readiness to Enter School :Views From Early Childhood Educators
Froude, Elspeth Heather, Imms, Christine, Merrigan, C, Joffe, Beverly, Heine, Chyrisse and Serry, Tanya. (2011). Factors Influencing Children's Readiness to Enter School :Views From Early Childhood Educators. Australian Occupational Therapy Journal. 58(Suppl s1), pp. 23 - 23.
Parenting children with neurodevelopmental disorders and/or behaviour problems
Garner, Rochelle, Kohen, Dafna, Arim, R, Lach, Lucyna, MacKenzie, M, Brehaut, Jamie and Rosenbaum, Peter. (2011). Parenting children with neurodevelopmental disorders and/or behaviour problems. Child: Care, Health and Development. 39(3), pp. 412 - 421. https://doi.org/10.1111/j.1365-2214.2011.01347.x
Quality of abstracts in the context of a systematic review on parenting of children with chronic health conditions and disabilities
Cimino, Traci, Lach, Lucyna, Mechan, Kate, Saini, Michael, Nimigon-Young, Jodie, McNeill, Ted, Nicholas, David and Rosenbaum, Peter. (2011). Quality of abstracts in the context of a systematic review on parenting of children with chronic health conditions and disabilities. Journal of Evidence-Based Social Work: advances in practice, programming, research, and policy. 8, pp. 369 - 378. https://doi.org/10.1080/15433714.2010.531228
Parent views of the positive contributions of elementary and high school-aged children with autism spectrum disorders and Down syndrome
King, G, Zwaigenbaum, Lonnie, Bates, A, Baxter, D and Rosenbaum, Peter. (2011). Parent views of the positive contributions of elementary and high school-aged children with autism spectrum disorders and Down syndrome. Child: Care, Health and Development. 36(6), pp. 817 - 828. https://doi.org/10.1111/j.1365-2214.2011.01312.x
Focus on function :a cluster, randomized controlled trial comparing child-verus context-focused intervention for young children with cerebral palsy
Law, Mary, Darrah, Johanna, Pollock, Nancy, Wilson, Brenda, Russell, Dianne, Walter, Stephen, Rosenbaum, Peter and Galuppi, Barbara. (2011). Focus on function :a cluster, randomized controlled trial comparing child-verus context-focused intervention for young children with cerebral palsy. Developmental Medicine and Child Neurology. 53(7), pp. 621 - 629. https://doi.org/10.1111/j.1469-8749.2011.03962.x
The 'F-words' in childhood disability :I swear this is how we should think!
Rosenbaum, Peter and Gorter, J. (2011). The 'F-words' in childhood disability :I swear this is how we should think! Child: Care, Health and Development. 38(4), pp. 457 - 463. https://doi.org/10.1111/j.1365-2214.2011.01338.x
Outcomes in pediatric neurology :a review of conceptual issues and recommendations The 2010 Ronnie Mac Keith Lecture
Ronen, Gabriel, Fayed, Nora and Rosenbaum, Peter. (2011). Outcomes in pediatric neurology :a review of conceptual issues and recommendations The 2010 Ronnie Mac Keith Lecture. Developmental Medicine and Child Neurology. 53(4), pp. 305 - 312. https://doi.org/10.1111/j.1469-8749.2011.03919.x
Developing and validating the Communicaton Function Classification System for individuals with cerebral palsy
Cooley Hidecker, Mary Jo, Paneth, Nigel, Rosenbaum, Peter, Kent, Raymond, Lillie, Janet, Eulenberg, John, Chester, JR Ken, Johnson, Brenda, Michalsen, Lauren and Evatt, Morgan. (2011). Developing and validating the Communicaton Function Classification System for individuals with cerebral palsy. Developmental Medicine and Child Neurology. 53(8), pp. 704 - 710. https://doi.org/10.1111/j.1469-8749.2011.03996.x
Exploring Issues of Participation Among Adolescents with Cerebral Palsy :What's Important to Them?
Livingston, Michael, Stewart, Debra, Rosenbaum, Peter and Russell, Dianne. (2011). Exploring Issues of Participation Among Adolescents with Cerebral Palsy :What's Important to Them? Physical & Occupational Therapy in Pediatrics. 31(3), pp. 275 - 287. https://doi.org/10.3109/01942638.2011.565866
Indicators of distress in families of children with cerebral palsy
Majnemer, Annette, Shevell, Michael, Law, Mary, Poulin, Chantal and Rosenbaum, Peter. (2011). Indicators of distress in families of children with cerebral palsy. Disability and Rehabilitation. 34(14), pp. 1202 - 1207. https://doi.org/10.3109/09638288.2011.638035
Early Autism Detection :Are we ready for routine screening?
Al-Qabandi, Mona, Gorter, J and Rosenbaum, Peter. (2011). Early Autism Detection :Are we ready for routine screening? Pediatrics. 128(1), pp. 1 - 7. https://doi.org/10.1542/peds.2010-1881
Features and impacts of five multidisciplinary community-university research partnerships
King, Gillian, Servais, Michelle, Forchuk, Cheryl, Chalmers, Heather, Currie, Melissa, Law, Mary, Specht, Jacqueline, Rosenbaum, Peter, Willoughby, Teena and Kertoy, M. (2010). Features and impacts of five multidisciplinary community-university research partnerships. Health and Social Care in the Community. 18(1), pp. 59 - 69. https://doi.org/10.1111/j.1365-2524.2009.00874.x
The ICF model of functioning and disability : Incorporating quality of life and human development
McDougall, Janette, Wright, Virgina and Rosenbaum, Peter. (2010). The ICF model of functioning and disability : Incorporating quality of life and human development. Developmental Neurorehabilitation. 13(3), pp. 204 - 211. https://doi.org/10.3109/17518421003620525
Disease characteristics and psychosocial factors : Explaining the expression of quality of life in childhood epilepsy
Ronen, Gabriel, Streiner, David, Verhey, Leonard, Lach, Lucyna, Boyle, Michael, Cunningham, Charles and Rosenbaum, Peter. (2010). Disease characteristics and psychosocial factors : Explaining the expression of quality of life in childhood epilepsy. Epilepsy & Behavior. 18(1-2), pp. 88 - 93. https://doi.org/10.1016/j.yebeh.2010.02.023
Cerebral palsy long term medical, functional, educational and psychosocial outcomes
Mesterman, Ronit, Leitner, Yael, Yifat, Rachel, Gilutz, Gabi, Levi-Hakeini, Ofra, Bitchonsky, Ora, Rosenbaum, Peter and Harel, Shaul. (2010). Cerebral palsy long term medical, functional, educational and psychosocial outcomes. Journal of Child Neurology. 25(1), pp. 36 - 42. https://doi.org/10.1177/0883073809336677
Evaluation of the Australian adaptation of the Keeping It Together (KIT-Australia) information package with carers of children with special needs
Stewart, Janeen, Galvin, Jane, Froude, Elspeth and Lentin, Primrose. (2010). Evaluation of the Australian adaptation of the Keeping It Together (KIT-Australia) information package with carers of children with special needs. Australian Occupational Therapy Journal. 57(4), pp. 268 - 275. https://doi.org/10.1111/j.1440-1630.2010.00858.x
Promoting the use of measurement tools in practice : A mixed methods study of the activities and experiences of physical therapist knowlege brokers
Rivard, Lisa, Russell, Dianne, Roxborough, Lori, Ketelaar, Marjolijn, Bartlett, Doreen and Rosenbaum, Peter. (2010). Promoting the use of measurement tools in practice : A mixed methods study of the activities and experiences of physical therapist knowlege brokers. Physical Therapy. 90(11), pp. 1580 - 1590. https://doi.org/10.2522/ptj.20090408
Development of the FOCUS (Focus on the Outcomes of Communication under six), a communication outcome measure for preschool children
Thomas-Stonell, Nancy, Oddson, Bruce, Robertson, Bernadette and Rosenbaum, Peter. (2010). Development of the FOCUS (Focus on the Outcomes of Communication under six), a communication outcome measure for preschool children. Developmental Medicine and Child Neurology. 52(1), pp. 47 - 53. https://doi.org/10.1111/j.1469-8749.2009.03410.x
Children's participation in home, school and community life after acquired brain injury
Galvin, Jane, Froude, Elspeth and McAleer, Jennifer. (2010). Children's participation in home, school and community life after acquired brain injury. Australian Occupational Therapy Journal. 57(2), pp. 118 - 126. https://doi.org/10.1111/j.1440-1630.2009.00822.x
Using knowledge brokers to facilitate the uptake of pediatric measurement tools into clinical practice : a before-after intervention study
Russell, Dianne, Rivard, Lisa, Walter, Stephen, Rosenbaum, Peter, Roxborough, Lori, Cameron, Dianne, Darrah, Johanna, Bartlett, Doreen, Hanna, Steven and Avery, Lisa. (2010). Using knowledge brokers to facilitate the uptake of pediatric measurement tools into clinical practice : a before-after intervention study. Implementation Science. 5(92), pp. 1 - 17. https://doi.org/10.1186/1748-5908-5-92
Level of motivation in mastering challenging tasks in children with cerebral palsy
Majnemer, Annette, Shevell, Michael, Law, Mary, Poulin, Chantal and Rosenbaum, Peter. (2010). Level of motivation in mastering challenging tasks in children with cerebral palsy. Developmental Medicine and Child Neurology. 52(12), pp. 1120 - 1126. https://doi.org/10.1111/j.1469-8749.2010.03732.x
Validation of the measure of processes of care for adults : a measure of client-centred care
Bamm, Elena, Rosenbaum, Peter and Stratford, Paul. (2010). Validation of the measure of processes of care for adults : a measure of client-centred care. International Journal for Quality in Health Care. 22(4), pp. 302 - 309. https://doi.org/10.1093/intqhc/mzq031
Promoting the use of measurement tools in practice : A mixed methods study of the activities and experiences of physical therapist knowlege brokers
Rivard, Lisa, Russell, Dianne, Roxborough, Lori, Ketelaar, Marjolijn, Bartlett, Doreen and Rosenbaum, Peter. (2010). Promoting the use of measurement tools in practice : A mixed methods study of the activities and experiences of physical therapist knowlege brokers. Physical Therapy. 90(11), pp. 1580 - 1590. https://doi.org/10.2522/ptj.20090408
Validation of the measure of processes of care for adults : a measure of client-centred care
Bamm, Elena, Rosenbaum, Peter and Stratford, Paul. (2010). Validation of the measure of processes of care for adults : a measure of client-centred care. International Journal for Quality in Health Care. 22(4), pp. 302 - 309. https://doi.org/10.1093/intqhc/mzq031
Probability of walking, wheeled mobility, and assisted mobility in children and adolescents with cerebral palsy
Palisano, Robert, Hanna, Steven, Rosenbaum, Peter and Tieman, Beth. (2010). Probability of walking, wheeled mobility, and assisted mobility in children and adolescents with cerebral palsy. Developmental Medicine and Child Neurology. 52(1), pp. 66 - 71. https://doi.org/10.1111/j.1469-8749.2009.03454.x
Probability of walking, wheeled mobility, and assisted mobility in children and adolescents with cerebral palsy
Palisano, Robert, Hanna, Steven, Rosenbaum, Peter and Tieman, Beth. (2010). Probability of walking, wheeled mobility, and assisted mobility in children and adolescents with cerebral palsy. Developmental Medicine and Child Neurology. 52(1), pp. 66 - 71. https://doi.org/10.1111/j.1469-8749.2009.03454.x
Using knowledge brokers to facilitate the uptake of pediatric measurement tools into clinical practice : a before-after intervention study
Russell, Dianne, Rivard, Lisa, Walter, Stephen, Rosenbaum, Peter, Roxborough, Lori, Cameron, Dianne, Darrah, Johanna, Bartlett, Doreen, Hanna, Steven and Avery, Lisa. (2010). Using knowledge brokers to facilitate the uptake of pediatric measurement tools into clinical practice : a before-after intervention study. Implementation Science. 5(92), pp. 1 - 17. https://doi.org/10.1186/1748-5908-5-92
Development of the FOCUS (Focus on the Outcomes of Communication under six), a communication outcome measure for preschool children
Thomas-Stonell, Nancy, Oddson, Bruce, Robertson, Bernadette and Rosenbaum, Peter. (2010). Development of the FOCUS (Focus on the Outcomes of Communication under six), a communication outcome measure for preschool children. Developmental Medicine and Child Neurology. 52(1), pp. 47 - 53. https://doi.org/10.1111/j.1469-8749.2009.03410.x
Leisure activity preferences for 6 : to 12 - year old children with cerebral palsy
Majnemer, Annette, Shikako-Thomas, Keiko, Chokron, Nathalie, Law, Mary, Shevell, Michael, Chilingaryan, Gevorg, Poulin, Chantal and Rosenbaum, Peter. (2010). Leisure activity preferences for 6 : to 12 - year old children with cerebral palsy. Developmental Medicine and Child Neurology. 52(2), pp. 167 - 173. https://doi.org/10.1111/j.1469-8749.2009.03393.x
Level of motivation in mastering challenging tasks in children with cerebral palsy
Majnemer, Annette, Shevell, Michael, Law, Mary, Poulin, Chantal and Rosenbaum, Peter. (2010). Level of motivation in mastering challenging tasks in children with cerebral palsy. Developmental Medicine and Child Neurology. 52(12), pp. 1120 - 1126. https://doi.org/10.1111/j.1469-8749.2010.03732.x
Features and impacts of five multidisciplinary community-university research partnerships
King, Gillian, Servais, Michelle, Forchuk, Cheryl, Chalmers, Heather, Currie, Melissa, Law, Mary, Specht, Jacqueline, Rosenbaum, Peter, Willoughby, Teena and Kertoy, M.. (2010). Features and impacts of five multidisciplinary community-university research partnerships. Health and Social Care in the Community. 18(1), pp. 59 - 69. https://doi.org/10.1111/j.1365-2524.2009.00874.x
Development and validation of item sets to improve efficiency of administration of the 66-item Gross Motor Function Measure in children with cerebral palsy
Russell, Dianne, Avery, Lisa, Walter, Stephen, Hanna, Steven, Bartlett, Doreen, Rosenbaum, Peter, Palisano, Robert and Gorter, J. (2010). Development and validation of item sets to improve efficiency of administration of the 66-item Gross Motor Function Measure in children with cerebral palsy. Developmental Medicine and Child Neurology. 52(2), pp. 48 - 54. https://doi.org/10.1111/j.1469-8749.2009.03481.x
Development and validation of item sets to improve efficiency of administration of the 66-item Gross Motor Function Measure in children with cerebral palsy
Russell, Dianne, Avery, Lisa, Walter, Stephen, Hanna, Steven, Bartlett, Doreen, Rosenbaum, Peter, Palisano, Robert and Gorter, J. (2010). Development and validation of item sets to improve efficiency of administration of the 66-item Gross Motor Function Measure in children with cerebral palsy. Developmental Medicine and Child Neurology. 52(2), pp. 48 - 54. https://doi.org/10.1111/j.1469-8749.2009.03481.x
The ICF model of functioning and disability : Incorporating quality of life and human development
McDougall, Janette, Wright, Virgina and Rosenbaum, Peter. (2010). The ICF model of functioning and disability : Incorporating quality of life and human development. Developmental Neurorehabilitation. 13(3), pp. 204 - 211. https://doi.org/10.3109/17518421003620525
Leisure activity preferences for 6 : to 12 - year old children with cerebral palsy
Majnemer, Annette, Shikako-Thomas, Keiko, Chokron, Nathalie, Law, Mary, Shevell, Michael, Chilingaryan, Gevorg, Poulin, Chantal and Rosenbaum, Peter. (2010). Leisure activity preferences for 6 : to 12 - year old children with cerebral palsy. Developmental Medicine and Child Neurology. 52(2), pp. 167 - 173. https://doi.org/10.1111/j.1469-8749.2009.03393.x
Cerebral palsy long term medical, functional, educational and psychosocial outcomes
Mesterman, Ronit, Leitner, Yael, Yifat, Rachel, Gilutz, Gabi, Levi-Hakeini, Ofra, Bitchonsky, Ora, Rosenbaum, Peter and Harel, Shaul. (2010). Cerebral palsy long term medical, functional, educational and psychosocial outcomes. Journal of Child Neurology. 25(1), pp. 36 - 42. https://doi.org/10.1177/0883073809336677
Facilitating access to evidence - a benefit to the profession
Froude, Elspeth and Craik, C.. (2010). Facilitating access to evidence - a benefit to the profession. Australian Occupational Therapy Journal. 57(6), pp. 355 - 355.
Disease characteristics and psychosocial factors : Explaining the expression of quality of life in childhood epilepsy
Ronen, Gabriel, streiner, David, Verhey, Leonard, Lach, Lucyna, Boyle, Michael, Cunningham, Charles and Rosenbaum, Peter. (2010). Disease characteristics and psychosocial factors : Explaining the expression of quality of life in childhood epilepsy. Epilepsy & Behavior. 18(1), pp. 88 - 93. https://doi.org/10.1016/j.yebeh.2010.02.023
Writing for the reader
Froude, Elspeth. (2010). Writing for the reader. Australian Occupational Therapy Journal. 57(2), pp. 75 - 75.
Cerebral Palsy in the 21st Century: Is there anything left to say?
Rosenbaum, Peter. (2009). Cerebral Palsy in the 21st Century: Is there anything left to say? Neuropediatrics: Journal of pediatric neurobiology, neurology and neurosurgery. 40(2), pp. 56 - 60. https://doi.org/10.1055/s-0029-1234104
Stability and decline in gross motor function among children and youth with cerebral palsy aged 2 to 21 years
Hanna, Steven E., Rosenbaum, Peter L., Bartlett, Doreen J., Palisano, Robert, Walter, Stephen D., Avery, Lisa and Russell, Dianne J.. (2009). Stability and decline in gross motor function among children and youth with cerebral palsy aged 2 to 21 years. Developmental Medicine and Child Neurology. 51(4), pp. 295 - 302. https://doi.org/10.1111/j.1469-8749.2008.03196.x
Cerebral palsy in the 21st Century: What's new?
Rosenbaum, Peter. (2009). Cerebral palsy in the 21st Century: What's new? In C Morris and D Condie (Ed.). Recent Developmens in Healthcare for Cerebral Palsy: Implications and Opportunities for Orthotics. United Kingdom: International Society for Prosthetics and Orthotics. pp. 25 - 39
Predicted and observed outcomes in preschool children following speech and language treatment: Parent and clinician perspectives
Thomas-Stonell, Nancy L., Oddson, Bruce, Robertson, Bernadette and Rosenbaum, Peter. (2009). Predicted and observed outcomes in preschool children following speech and language treatment: Parent and clinician perspectives. Journal of Communication Disorders. 42(1), pp. 29 - 42. https://doi.org/10.1016/j.jcomdis.2008.08.002
A measure of community members perceptions of the impacts of research partnerships in health and social services
King, Gillian, Servais, Michelle, Kertoy, Marilyn, Specht, Jacqueline, Currie, Melissa, Rosenbaum, Peter, Law, Mary, Forchuk, Cheryl, Chalmers, Heather and Willoughby, Teena. (2009). A measure of community members perceptions of the impacts of research partnerships in health and social services. Evaluation and Program Planning. 32(3), pp. 289 - 299. https://doi.org/10.1016/j.evalprogplan.2009.02.002
Belief systems of families of children with autism spectrum disorders or down syndrome
King, Gillian, Baxter, Donna, Rosenbaum, Peter, Zwaigenbaum, Lonnie and Bates, Anita. (2009). Belief systems of families of children with autism spectrum disorders or down syndrome. Focus on Autism and Other Developmental Disabilities. 24(1), pp. 50 - 64. https://doi.org/10.1177/1088357608329173
The health and psychosocial functioning of caregivers of children with neurodevelopmental disorders
Lach, Lucyna M., Kohen, Dafna E., Garner, Rochelle E., Brehaut, Jamie C., Miller, Anton R., Klassen, Anne F. and Rosenbaum, Peter. (2009). The health and psychosocial functioning of caregivers of children with neurodevelopmental disorders. Disability and Rehabilitation. 31(8), pp. 607 - 618. https://doi.org/10.1080/09638280802242163
Quality of life in childhood epilepsy: What is the level of agreement between youth and their parents?
Verhey, Leonard H., Kulik, D. M., Ronen, Gabriel M., Rosenbaum, Peter, Lach, L. and Streiner, David L.. (2009). Quality of life in childhood epilepsy: What is the level of agreement between youth and their parents? Epilepsy & Behavior. 14(2), pp. 407 - 410. https://doi.org/10.1016/j.yebeh.2008.12.008
Impact of fundoplication versus gastrojejunal feeding tubes on mortality and in preventing aspiratiion pneumonia in young children with neurologic impairment who have gastroesophageal reflux disease
Srivastava, Rajendu, Downey, Earl C., O'Gorman, Molly, Feola, Peter, Samore, Matthew, Holubkov, Richard, Mundorff, Michael, James, Brent C., Rosenbaum, Peter, Young, Paul C. and Dean, Jonathan M.. (2009). Impact of fundoplication versus gastrojejunal feeding tubes on mortality and in preventing aspiratiion pneumonia in young children with neurologic impairment who have gastroesophageal reflux disease. Pediatrics. 123(1), pp. 338 - 345. https://doi.org/10.1542/peds.2007-1740
Health among caregivers of children with health problems: Findings from a Canadian population-based study
Brehaut, Jamie C., Kohen, Dafna, Garner, Rochelle E., Miller, Anton R., Lach, Lucy M., Klassen, Anne F. and Rosenbaum, Peter. (2009). Health among caregivers of children with health problems: Findings from a Canadian population-based study. American Journal of Public Health. 99(7), pp. 1254 - 1262. https://doi.org/10.2105/AJPH.2007.129817
A randomized controlled trial of the impact of therapeutic horse riding on the quality of life, health, and function of children with cerebral palsy
Rosenbaum, Peter. (2009). A randomized controlled trial of the impact of therapeutic horse riding on the quality of life, health, and function of children with cerebral palsy. Developmental Medicine and Child Neurology. 51(2), pp. 88 - 88. https://doi.org/10.1111/j.1469-8749.2008.03259.x
Mobility experiences of adolescents with cerebral palsy
Palisano, Robert J., Shimmell, Lorie J., Stewart, Debra A., Lawless, John J., Rosenbaum, Peter L. and Russell, Dianne J.. (2009). Mobility experiences of adolescents with cerebral palsy. Physical & Occupational Therapy in Pediatrics. 29(2), pp. 135 - 155. https://doi.org/10.1080/01942630902784746
Use of the GMFCS in infants with CP: The need for reclassification at age 2 years or older
Gorter, Jan Willem, Ketelaar, Marjolijn, Rosenbaum, Peter, Helders, Paul J.M. and Palisano, Robert. (2009). Use of the GMFCS in infants with CP: The need for reclassification at age 2 years or older. Developmental Medicine and Child Neurology. 51(1), pp. 46 - 52. https://doi.org/10.1111/j.1469-8749.2008.03117.x
Putting child development back into developmental disabilities
Rosenbaum, Peter. (2009). Putting child development back into developmental disabilities. Developmental Medicine and Child Neurology. 51(4), pp. 251 - 251. https://doi.org/10.1111/j.1469-8749.2009.03275.x
Quality of life instruments for children and adolescents with neurodisabilities: How to choose the appropriate instrument
Waters, Elizabeth, Davis, Elise, Ronen, Gabriel M., Rosenbaum, Peter, Livingston, Michael H. and Saigal, Saroj. (2009). Quality of life instruments for children and adolescents with neurodisabilities: How to choose the appropriate instrument. Developmental Medicine and Child Neurology. 51(8), pp. 660 - 669. https://doi.org/10.1111/j.1469-8749.2009.03324.x
Proposed motor development assessment protocol for epidemiological studies in children
Rosenbaum, Peter L., Missiuna, C., Echeverria, D. and Knox, S. S.. (2009). Proposed motor development assessment protocol for epidemiological studies in children. Journal of Epidemiology and Community Health. 63(1), pp. 27 - 36. https://doi.org/10.1136/jech.2007.070896
Childhood disability and social policies
Rosenbaum, Peter. (2009). Childhood disability and social policies. British Medical Journal. 338(7703), pp. 1089 - 1090. https://doi.org/10.1136/bmj.b1020
Sensory processing abilities of children who have sustained traumatic brain injuries
Galvin, Jane, Froude, Elspeth and Imms, Christine. (2009). Sensory processing abilities of children who have sustained traumatic brain injuries. American Journal of Occupational Therapy. 63(6), pp. 701 - 709. https://doi.org/10.5014/ajot.63.6.701
The quality of life for the young adult with neurodisability: Overview and reprise
Rosenbaum, Peter. (2009). The quality of life for the young adult with neurodisability: Overview and reprise. Developmental Medicine and Child Neurology. 51(8), pp. 679 - 682. https://doi.org/10.1111/j.1469-8749.2009.03323.x
The relationship between physical performance and self-perception in children with and without cerebral palsy
Ziebell, Melanie, Imms, Christine, Froude, Elspeth, McCoy, Anne and Galea, Mary. (2009). The relationship between physical performance and self-perception in children with and without cerebral palsy. Australian Occupational Therapy Journal. 56(1), pp. 24 - 32. https://doi.org/10.1111/j.1440-1630.2008.00775.x
Reliability in the ratings of quality of life between parents and their children of school age with cerebral palsy
Majnemer, Annette, Shevell, Michael, Law, Mary, Poulin, Chantal and Rosenbaum, Peter. (2008). Reliability in the ratings of quality of life between parents and their children of school age with cerebral palsy. Quality of Life Research. 17(9), pp. 1163 - 1171. https://doi.org/10.1007/s11136-008-9394-6
Children's quality of life: Separating the person from the disorder
Rosenbaum, Peter. (2008). Children's quality of life: Separating the person from the disorder. Archives of Disease in Childhood. 93(2), pp. 100 - 101. https://doi.org/10.1136/adc.2007.132167
Families of children with chronic conditions: Opportunities to widen the scope of pediatric practice
Rosenbaum, Peter. (2008). Families of children with chronic conditions: Opportunities to widen the scope of pediatric practice. Journal of Pediatrics. 153(3), pp. 304 - 305. https://doi.org/10.1016/j.jpeds.2008.04.010
Health-related quality of life of children with epilepsy in Hong Kong: How does it compare with that of youth with epilepsy in Canada?
Yam, Winnie K. L., Ronen, Gabriel M., Cherk, Sharon W.W., Rosenbaum, Peter, Chan, K. Y., Streiner, David L., Cheng, Sally W.W., Fung, C. W., Ho, Jackson C.S., Kwong, Karen L., Ma, Louis C. K., Ma, David K. H., Tsui, K. W., Wong, Virginia and Wong, Theresa Y. L.. (2008). Health-related quality of life of children with epilepsy in Hong Kong: How does it compare with that of youth with epilepsy in Canada? Epilepsy & Behavior. 12(3), pp. 419 - 426. https://doi.org/10.1016/j.yebeh.2007.11.007
Development of the gross motor function classification system for cerebral palsy
Rosenbaum, Peter L., Palisano, Robert J., Bartlett, Doreen J., Galuppi, Barbara E. and Russell, Dianne J.. (2008). Development of the gross motor function classification system for cerebral palsy. Developmental Medicine and Child Neurology. 50(4), pp. 249 - 253. https://doi.org/10.1111/j.1469-8749.2008.02045.x
Effects of powered mobility on self-initiated behaviours of very young children with locomotor disability (1986)
Rosenbaum, Peter. (2008). Effects of powered mobility on self-initiated behaviours of very young children with locomotor disability (1986). Developmental Medicine and Child Neurology. 50(9), pp. 644 - 644. https://doi.org/10.1111/j.1469-8749.2008.03081.x
Adolescents with cerebral palsy: Stability in measurement of quality of life and health-related quality of life over 1 year
Livingston, Michael H. and Rosenbaum, Peter. (2008). Adolescents with cerebral palsy: Stability in measurement of quality of life and health-related quality of life over 1 year. Developmental Medicine and Child Neurology. 50(9), pp. 696 - 701. https://doi.org/10.1111/j.1469-8749.2008.03053.x
A home for medically complex children: The role of hospital programs
Cohen, Eyal, Friedman, Jeremy, Nicholas, David, Adams, Sherri and Rosenbaum, Peter. (2008). A home for medically complex children: The role of hospital programs. Journal for Healthcare Quality. 30(3), pp. 7 - 15. https://doi.org/10.1111/j.1945-1474.2008.tb01137.x
Family-centered theory: Origins, development, barriers and supports to implementation in rehabilitation medicine
Bamm, Elena L. and Rosenbaum, Peter. (2008). Family-centered theory: Origins, development, barriers and supports to implementation in rehabilitation medicine. Archives of Physical Medicine and Rehabilitation. 89(8), pp. 1618 - 1624. https://doi.org/10.1016/j.apmr.2007.12.034
Content validity of the expanded and revised Gross Motor Function Classification System
Palisano, Robert J., Rosenbaum, Peter, Bartlett, Doreen J. and Livingston, Michael H.. (2008). Content validity of the expanded and revised Gross Motor Function Classification System. Developmental Medicine and Child Neurology. 50(10), pp. 744 - 750. https://doi.org/10.1111/j.1469-8749.2008.03089.x
Participation and enjoyment of leisure activities in school-aged children with cerebral palsy
Majnemer, Annette, Shevell, Michael, Law, Mary, Birnbaum, Rena, Chilingaryan, Gevorg, Rosenbaum, Peter and Poulin, Chantal. (2008). Participation and enjoyment of leisure activities in school-aged children with cerebral palsy. Developmental Medicine and Child Neurology. 50(10), pp. 751 - 758. https://doi.org/10.1111/j.1469-8749.2008.03068.x
An investigation of Bilateral Isokinematic Training and Neurodevelopmental Therapy in improving use of the affected hand in children with hemiplegia
Sheppard, Loretta, Mudie, Heather and Froude, Elspeth. (2007). An investigation of Bilateral Isokinematic Training and Neurodevelopmental Therapy in improving use of the affected hand in children with hemiplegia. Physical & Occupational Therapy in Pediatrics. 27(1), pp. 5 - 25.
Therapeutic practice resulted in moderate improvement in handwriting ability for children with poor handwriting when compared with sensorimotor intervention, but not when compared with a control group
Wallen, Margaret and Froude, Elspeth. (2007). Therapeutic practice resulted in moderate improvement in handwriting ability for children with poor handwriting when compared with sensorimotor intervention, but not when compared with a control group. Australian Occupational Therapy Journal. 54(3), pp. 239 - 244.
Gross Motor Function Measure (GMFM-66 & GMFM-88) users manual
Russell, Dianne J., Rosenbaum, Peter, Wright, Marilyn and Avery, Lisa M.. (2002). Gross Motor Function Measure (GMFM-66 & GMFM-88) users manual Mac Keith Press.