Assessing participation of children with acquired brain injury and cerebral palsy : A systematic review of measurement properties

Journal article

Resch, Christine, Van Kruijsbergen, Mette, Ketelaar, Marjolijn, Hurks, Petra, Adair, Brooke, Imms, Christine, De Kloet, Arend, Piskur, Barbara and Van Heugten, Caroline. (2020). Assessing participation of children with acquired brain injury and cerebral palsy : A systematic review of measurement properties. Developmental Medicine and Child Neurology. 62(4), pp. 434-443. https://doi.org/10.1111/dmcn.14465
AuthorsResch, Christine, Van Kruijsbergen, Mette, Ketelaar, Marjolijn, Hurks, Petra, Adair, Brooke, Imms, Christine, De Kloet, Arend, Piskur, Barbara and Van Heugten, Caroline
Abstract

Aim
To examine which instruments used to assess participation of children with acquired brain injury (ABI) or cerebral palsy (CP) align with attendance and/or involvement constructs of participation; and to systematically review measurement properties of these instruments in children with ABI or CP, to guide instrument selection.

Method
Five databases were searched. Instruments that quantified ‘attendance’ and/or ‘involvement’ aspects of participation according to the family of participation-related constructs were selected. Data on measurement properties were extracted and methodological quality of the studies assessed.

Results
Thirty-seven instruments were used to assess participation in children with ABI or CP. Of those, 12 measured attendance and/or involvement. The reliability, validity, and responsiveness of eight of these instruments were examined in 14 studies with children with ABI or CP. Sufficient measurement properties were reported for most of the measures, but no instrument had been assessed on all relevant properties. Moreover, most psychometric studies have marked methodological limitations.

Interpretation
Instruments to assess participation of children with ABI or CP should be selected carefully, as many available measures do not align with attendance and/or involvement. Evidence for measurement properties is limited, mainly caused by low methodological study quality. Future studies should follow recommended methodological guidelines.

What this paper adds
Twelve instruments used to assess participation of children with acquired brain injury (ABI) or cerebral palsy (CP) aligned with attendance/involvement.
Seven instruments have some psychometric evidence supporting their use with children with CP.
For children with ABI, only the Child and Adolescent Scale of Participation has shown preliminary evidence of measurement properties.

Year2020
JournalDevelopmental Medicine and Child Neurology
Journal citation62 (4), pp. 434-443
PublisherWiley-Blackwell Publishing Ltd.
ISSN0012-1622
Digital Object Identifier (DOI)https://doi.org/10.1111/dmcn.14465
Scopus EID2-s2.0-85078788169
Research or scholarlyResearch
Page range434-443
Publisher's version
License
File Access Level
Open
Output statusPublished
Publication dates
Online23 Jan 2020
Publication process dates
Accepted12 Dec 2019
Deposited20 Aug 2021
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