Ethics considerations in global mobile phone-based surveys of noncommunicable diseases : A conceptual exploration
Journal article
Ali, Joseph, Labrique, Alain B., Gionfriddo, Kara, Pariyo, George, Gibson, Dustin G., Pratt, Bridget, Deutsch-Feldman, Molly and Hyder, Adnan A.. (2017). Ethics considerations in global mobile phone-based surveys of noncommunicable diseases : A conceptual exploration. Journal of Medical Internet Research. 19(5), p. Article e110. https://doi.org/10.2196/jmir.7326
Authors | Ali, Joseph, Labrique, Alain B., Gionfriddo, Kara, Pariyo, George, Gibson, Dustin G., Pratt, Bridget, Deutsch-Feldman, Molly and Hyder, Adnan A. |
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Abstract | Mobile phone coverage has grown, particularly within low- and middle-income countries (LMICs), presenting an opportunity to augment routine health surveillance programs. Several LMICs and global health partners are seeking opportunities to launch basic mobile phone–based surveys of noncommunicable diseases (NCDs). The increasing use of such technology in LMICs brings forth a cluster of ethical challenges; however, much of the existing literature regarding the ethics of mobile or digital health focuses on the use of technologies in high-income countries and does not consider directly the specific ethical issues associated with the conduct of mobile phone surveys (MPS) for NCD risk factor surveillance in LMICs. In this paper, we explore conceptually several of the central ethics issues in this domain, which mainly track the three phases of the MPS process: predata collection, during data collection, and postdata collection. These include identifying the nature of the activity; stakeholder engagement; appropriate design; anticipating and managing potential harms and benefits; consent; reaching intended respondents; data ownership, access and use; and ensuring LMIC sustainability. We call for future work to develop an ethics framework and guidance for the use of mobile phones for disease surveillance globally. |
Keywords | ethics; mobile phone survey; mHealth; noncommunicable diseases; research ethics; bioethics |
Year | 2017 |
Journal | Journal of Medical Internet Research |
Journal citation | 19 (5), p. Article e110 |
Publisher | JMIR Publications Inc. |
ISSN | 1438-8871 |
Digital Object Identifier (DOI) | https://doi.org/10.2196/jmir.7326 |
Scopus EID | 2-s2.0-85019893449 |
Open access | Published as ‘gold’ (paid) open access |
Research or scholarly | Research |
Page range | 1-11 |
Publisher's version | License File Access Level Open |
Output status | Published |
Publication dates | |
Online | 2017 |
Publication process dates | |
Deposited | 21 Oct 2021 |
https://acuresearchbank.acu.edu.au/item/8wx63/ethics-considerations-in-global-mobile-phone-based-surveys-of-noncommunicable-diseases-a-conceptual-exploration
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Publisher's version
OA_Ali_2017_Ethics_considerations_in_global_mobile_phone.pdf | |
License: CC BY 2.0 | |
File access level: Open |
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