Advocacy, support and survivorship in prostate cancer
Journal article
Dunn, J., Casey, C., Sandoe, D., Hyde, M. K., Cheron-Sauer, M. C., Lowe, A., Oliffe, J. L. and Chambers, S. K.. (2018). Advocacy, support and survivorship in prostate cancer. European Journal of Cancer Care. 27(2), p. Article: e12644. https://doi.org/10.1111/ecc.12644
Authors | Dunn, J., Casey, C., Sandoe, D., Hyde, M. K., Cheron-Sauer, M. C., Lowe, A., Oliffe, J. L. and Chambers, S. K. |
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Abstract | Across Australia, prostate cancer support groups (PCSG) have emerged to fill a gap in psychosocial care for men and their families. However, an understanding of the triggers and influencers of the PCSG movement is absent. We interviewed 21 SG leaders (19 PC survivors, two partners), of whom six also attended a focus group, about motivations, experiences, past and future challenges in founding and leading PCSGs. Thematic analysis identified four global themes: illness experience; enacting a supportive response; forming a national collective and challenges. Leaders described men's feelings of isolation and neglect by the health system as the impetus for PCSGs to form and give/receive mutual help. Negotiating health care systems was an early challenge. National affiliation enabled leaders to build a united voice in the health system and establish a group identity and collective voice. Affiliation was supported by a symbiotic relationship with tensions between independence, affiliation and governance. Future challenges were group sustainability and inclusiveness. Study findings describe how a grassroots PCSG movement arose consistent with an embodied health movement perspective. Health care organisations who seek to leverage these community resources need to be cognisant of SG values and purpose if they are to negotiate effective partnerships that maximise mutual benefit. |
Keywords | health advocacy; men's health; peer support; prostate cancer survivors |
Year | 2018 |
Journal | European Journal of Cancer Care |
Journal citation | 27 (2), p. Article: e12644 |
Publisher | Wiley (John Wiley & Sons) |
ISSN | 0961-5423 |
Digital Object Identifier (DOI) | https://doi.org/10.1111/ecc.12644 |
Scopus EID | 2-s2.0-85044385609 |
Open access | Published as ‘gold’ (paid) open access |
Research or scholarly | Research |
Page range | 1-10 |
Funder | Australian Research Council (ARC) |
Publisher's version | License File Access Level Open |
Output status | Published |
Publication dates | |
Online | 01 Feb 2017 |
Publication process dates | |
Accepted | 05 Dec 2016 |
Deposited | 27 Oct 2021 |
ARC Funded Research | This output has been funded, wholly or partially, under the Australian Research Council Act 2001 |
https://acuresearchbank.acu.edu.au/item/8wxx3/advocacy-support-and-survivorship-in-prostate-cancer
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Publisher's version
Dunn_2018_Advocacy_support_and_survivorship_in_prostate.pdf | |
License: CC BY-NC-ND 4.0 | |
File access level: Open |
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