What constitutes fair shared decision-making in global health research collaborations?
Journal article
Pratt, Bridget. (2020). What constitutes fair shared decision-making in global health research collaborations? Bioethics. 34(9), pp. 984-993. https://doi.org/10.1111/bioe.12793
Authors | Pratt, Bridget |
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Abstract | Funders (located primarily in high-income countries) and high-income country researchers have historically dominated decision-making within global health research collaborations: from setting agendas and research design to determining how data are collected and analysed and what happens with findings and outputs. The ethical principle of shared decision-making has been proposed as a way to help address these imbalances within collaborations and to reduce semicolonial and exploitative forms of global health research. It is important to be clear about what shared decision-making means in order to ensure that it is not done in a tokenistic, shallow way. Thus far, the principle’s content has not been examined and articulated in detail. This paper aims to start the process of delineating a concept of fair shared decision-making as a minimum standard for global health research. Using two hypothetical case examples, the paper will demonstrate that global health research practice is often inconsistent with ideal shared decision-making. In such instances, it can be difficult to decide whether shared decision-making within collaborations is fair. The paper describes how the two cases do not meet criteria for unfair or non-ideal shared decision-making, despite having potentially morally troubling features. The nuances of these examples of research practice help to generate clearer ideas about how to judge fairness in shared decision-making. The paper concludes by presenting ideas about when soft power can be fairly employed between high-income-country and low- and middle-income-country partners and what fair compromise agreements may look like in shared decision-making. |
Keywords | collaboration; ethics; fairness; global health research; partnership; shared decision-making |
Year | 2020 |
Journal | Bioethics |
Journal citation | 34 (9), pp. 984-993 |
Publisher | Wiley |
ISSN | 0269-9702 |
Digital Object Identifier (DOI) | https://doi.org/10.1111/bioe.12793 |
Scopus EID | 2-s2.0-85088807886 |
Research or scholarly | Research |
Page range | 984-993 |
Funder | Australian Research Council (ARC) |
Publisher's version | License All rights reserved File Access Level Controlled |
Output status | Published |
Publication dates | |
Online | 30 Jul 2020 |
Publication process dates | |
Accepted | 29 Jun 2020 |
Deposited | 29 Oct 2021 |
ARC Funded Research | This output has been funded, wholly or partially, under the Australian Research Council Act 2001 |
Grant ID | ARC/DE170100414 |
https://acuresearchbank.acu.edu.au/item/8wy10/what-constitutes-fair-shared-decision-making-in-global-health-research-collaborations
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