Priorities for cancer caregiver intervention research : A three-round modified Delphi study to inform priorities for participants, interventions, outcomes, and study design characteristics
Ugalde, Anna, Blaschke, Sarah-May, Schofield, Penelope, Lambert, Sylvie D., Aranda, Sanchia, Boltong, Anna, Chambers, Suzanne K., Krishnasamy, Meinir and Livingston, Patricia. (2020). Priorities for cancer caregiver intervention research : A three-round modified Delphi study to inform priorities for participants, interventions, outcomes, and study design characteristics. Psycho-Oncology. 29(12), pp. 2091-2096. https://doi.org/10.1002/pon.5404
|Authors||Ugalde, Anna, Blaschke, Sarah-May, Schofield, Penelope, Lambert, Sylvie D., Aranda, Sanchia, Boltong, Anna, Chambers, Suzanne K., Krishnasamy, Meinir and Livingston, Patricia|
• Twenty-five Delphi participants, consisting of healthcare, allied health or academics with extensive clinical practice, or research experience in caregiver research, completed surveys over three rounds.
• Round 1 contributions were varied and extensive and 125 codes were generated, and over round 2 and round 3, 49 items were assessed for priority and consensus.
• High priorities included participants identified as minority groups or disadvantaged, those who are isolated and those identified as needing support; interventions that are sustainable and tailored; outcomes that are important to caregivers and studies that assess the long-term impact of interventions.
• Optimising approaches to conduct these studies, complementing these findings with qualitative data, and including caregiver perspectives are important avenues of future work.
|Keywords||cancer; caregiver; carer; Delphi; experts|
|Journal citation||29 (12), pp. 2091-2096|
|Publisher||John Wiley & Sons, Ltd|
|Digital Object Identifier (DOI)||https://doi.org/10.1002/pon.5404|
|Research or scholarly||Research|
All rights reserved
File Access Level
|Online||09 Jul 2020|
|Publication process dates|
|Accepted||28 Apr 2020|
|Deposited||22 Nov 2021|
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