Enabling participation for disabled young people : Study protocol

Journal article

Carroll, Penelope, Witten, Karen, Calder-Dawe, Octavia, Smith, Melody, Kearns, Robin, Asiasiga, Lanuola, Lin, Judy, Kayes, Nicola and Mavoa, Suzanne. (2018). Enabling participation for disabled young people : Study protocol. BMC Public Health. 19, p. Article 712. https://doi.org/10.1186/s12889-018-5652-x
AuthorsCarroll, Penelope, Witten, Karen, Calder-Dawe, Octavia, Smith, Melody, Kearns, Robin, Asiasiga, Lanuola, Lin, Judy, Kayes, Nicola and Mavoa, Suzanne
Abstract

Background
Participation in community life is vital for health and wellbeing, promoting a sense of belonging, networks of social support and opportunities for physical activity. Disabled young people have lower levels of mobility and participation in recreational activities (physical, social and cultural), education and employment, than their peers without disabilities. This has implications for their health and wellbeing and life course opportunities. Previous research on the participation levels of disabled young people has primarily relied on parent/caregiver reports and been oriented to home and school environments. This study investigates how physical and social environmental factors cohere to support or restrict the everyday mobility and participation of disabled young people.

Methods/design
The study is located in Auckland, Aotearoa/New Zealand (NZ). Participants comprise 35 young people aged 12–25 years with mobility, vision or hearing impairments. A mixed-methods research design combines objective (global positioning systems, accelerometers, geographical information systems) and self-report measures (travel diaries, and questionnaires) to assess young people’s mobility and levels of participation in leisure/educational and employment activities with in-depth interviews exploring their everyday experiences of inclusion/exclusion, and factors enabling or constraining community participation. Parents/caregivers and disability sector key informant viewpoints on the community participation of disabled young people have also been gathered through in-depth interviews. Follow-up workshops with young people and parents/caregivers will identify pathways to increase participation and challenge current disabling practices.

Discussion
This study looks beyond barriers in the physical environment to the interplay of personal, social and physical factors that enable or constrain the community participation of disabled young people. In keeping with the study’s overarching goal of increasing opportunities for effective community participation and full citizenship of disabled young people, research methods were applied flexibily – negotiated and adapted to maximise each young person’s participation in light of their abilities and preferences.

Keywordsdisability; young people; community participation; inclusion; exclusion; wellbeing
Year2018
JournalBMC Public Health
Journal citation19, p. Article 712
PublisherBiomed Central Ltd
ISSN1471-2458
Digital Object Identifier (DOI)https://doi.org/10.1186/s12889-018-5652-x
PubMed ID29884146
Scopus EID2-s2.0-85048266096
PubMed Central IDPMC5994005
Open accessPublished as ‘gold’ (paid) open access
Research or scholarlyResearch
Page range1-11
FunderNational Health and Medical Research Council (NHMRC)
Publisher's version
License
File Access Level
Open
Output statusPublished
Publication dates
Online08 Jun 2018
Publication process dates
Accepted31 May 2018
Deposited06 Dec 2021
Grant IDNHMRC/1121035
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Associations between the neighborhood environment and moderate-to-vigorous walking in New Zealand children : Findings from the URBAN Study
McGrath, Leslie J., Hinckson, Erica A., Hopkins, Will G., Mavoa, Suzanne, Witten, Karen and Schofield, Grant. (2016). Associations between the neighborhood environment and moderate-to-vigorous walking in New Zealand children : Findings from the URBAN Study. Sports Medicine. 46(7), pp. 1003-1017. https://doi.org/10.1007/s40279-016-0533-x
Active transport, physical activity, and distance between home and school in children and adolescents
Duncan, Scott, White, Kate, Mavoa, Suzanne, Stewart, Tom, Hinckson, Erica and Schofield, Grant. (2016). Active transport, physical activity, and distance between home and school in children and adolescents. Journal of Physical Activity and Health. 13(4), pp. 447-453. https://doi.org/10.1123/jpah.2015-0054
Neighbourhood built environment associations with body size in adults : mediating effects of activity and sedentariness in a cross-sectional study of New Zealand adults
Oliver, Melody, Witten, Karen, Blakely, Tony, Parker, Karl, Badland, Hannah, Schofield, Grant, Ivory, Vivienne, Pearce, Jamie, Mavoa, Suzanne, Hinckson, Erica, Sweetsur, Paul and Kearns, Robin. (2015). Neighbourhood built environment associations with body size in adults : mediating effects of activity and sedentariness in a cross-sectional study of New Zealand adults. BMC Public Health. 15, pp. 1-11. https://doi.org/10.1186/s12889-015-2292-2
Assessing neighbourhood destination access for children : Development of the NDAI-C audit tool
Badland, Hannah, Donovan, Phil, Mavoa, Suzanne, Oliver, Melody, Chaudhury, Moushumi and Witten, Karen. (2015). Assessing neighbourhood destination access for children : Development of the NDAI-C audit tool. Environment and Planning B: Urban Analytics and City Science. 42(6), pp. 1148-1160. https://doi.org/10.1068/b140009p
Age-friendly cities and communities : Access to services for older people
Lowen, Tamara, Davern, Melanie, Mavoa, Suzanne and Brasher, Kathleen. (2015). Age-friendly cities and communities : Access to services for older people. Australian Planner. 52(4), pp. 255-265. https://doi.org/10.1080/07293682.2015.1047874
The development of policy-relevant transport indicators to monitor health behaviours and outcomes
Badland, Hannah, Mavoa, Suzanne, Villanueva, Karen, Roberts, Rebecca, Davern, Melanie and Giles-Corti, Billie. (2015). The development of policy-relevant transport indicators to monitor health behaviours and outcomes. Journal of Transport and Health. 2(2), pp. 103-110. https://doi.org/10.1016/j.jth.2014.07.005
Developing indicators of public open space to promote health and wellbeing in communities
Villanueva, Karen, Badland, Hannah, Hooper, Paula, Koohsari, Mohammad, Mavoa, Suzanne, Davern, Melanie, Roberts, Rebecca, Goldfeld, Sharon and Giles-Corti, Billie. (2015). Developing indicators of public open space to promote health and wellbeing in communities. Applied Geography. 57, pp. 112-119. https://doi.org/10.1016/j.apgeog.2014.12.003
Associations between the neighbourhood built environment and out of school physical activity and active travel : An examination from the Kids in the City study
Oliver, Melody, Mavoa, Suzanne, Badland, Hannah, Parker, Karl, Donovan, Phil, Kearns, Robin, Lin, En-Yi and Witten, Karen. (2015). Associations between the neighbourhood built environment and out of school physical activity and active travel : An examination from the Kids in the City study. Health & Place. 36, pp. 57-64. https://doi.org/10.1016/j.healthplace.2015.09.005
Environmental and socio-demographic associates of children's active transport to school : a cross-sectional from the URBAN Study
Oliver, Melody, Badland, Hannah, Mavoa, Suzanne, Witten, Karen, Kearns, Robin, Ellaway, Anne, Hinckson, Erica, Mackay, Lisa and Schluter, Philip. (2014). Environmental and socio-demographic associates of children's active transport to school : a cross-sectional from the URBAN Study. International Journal of Behavioral Nutrition and Physical Activity. 11, pp. 1-12. https://doi.org/10.1186/1479-5868-11-70
Do low-income neighbourhoods have the least green space? A cross-sectional study of Australia's most populous cities
Astell-Burt, Thomas, Feng, Xiaoqi, Mavoa, Suzanne, Badland, Hannah and Giles-Corti, Billie. (2014). Do low-income neighbourhoods have the least green space? A cross-sectional study of Australia's most populous cities. BMC Public Health. 14, pp. 1-11. https://doi.org/10.1186/1471-2458-14-292
Distance to school is associated with sedentary time in children : findings from the URBAN study
Hinckson, Erica, McGrath, Les, Hopkins, Will, Oliver, Melody, Badland, Hannah, Mavoa, Suzanne, Witten, Karen and Kearns, Robin. (2014). Distance to school is associated with sedentary time in children : findings from the URBAN study. Frontiers in Public Health. 2, pp. 1-9. https://doi.org/10.3389/fpubh.2014.00151
Developing a research and practice tool to measure walkability : a demonstration project
Giles-Corti, Billie, Macaulay, Gus, Middleton, Nick, Boruff, Bryan, Bull, Fiona, Butterworth, Iain, Badland, Hannah, Mavoa, Suzanne, Roberts, Rebecca and Christian, Hayley. (2014). Developing a research and practice tool to measure walkability : a demonstration project. Health Promotion Journal of Australia. 25(3), pp. 160-166. https://doi.org/10.1071/HE14050
What constitutes a 'trip'? Examining child journey attributes using GPS and self-report
Oliver, Melody, Mavoa, Suzanne, Badland, Hannah, Carroll, Penelope, Asiasiga, Lanuola, Tavae, N, Kearns, Robin and Witten, Karen. (2014). What constitutes a 'trip'? Examining child journey attributes using GPS and self-report. Children's Geographies. 12(2), pp. 249-256. https://doi.org/10.1080/14733285.2014.890370
Utility of passive photography to objectively audit built environment features of active transport journeys : an observational study
Oliver, Melody, Doherty, Aiden, Kelly, Paul, Badland, Hannah, Mavoa, Suzanne, Shepherd, Janine, Kerr, Jacqueline, Marshall, Simon, Hamilton, Alexander and Foster, Charlie. (2013). Utility of passive photography to objectively audit built environment features of active transport journeys : an observational study. International Journal of Health Geographics. 12(20), pp. 1-7. https://doi.org/10.1186/1476-072X-12-20
Using simple agent-based modeling to inform and enhance neighborhood walkability
Badland, Hannah, White, Marcus, MacAulay, Gus, Eagleson, Serryn, Mavoa, Suzanne, Pettit, Christopher and Giles-Corti, Billie. (2013). Using simple agent-based modeling to inform and enhance neighborhood walkability. International Journal of Health Geographics. 12, pp. 1-10. https://doi.org/10.1186/1476-072X-12-58
Portable Global Positioning System Receivers : Static Validity and Environmental Conditions
Duncan, Scott, Stewart, Tom, Oliver, Melody, Mavoa, Suzanne, MacRae, Deborah, Badland, Hannah and Duncan, Mitch. (2013). Portable Global Positioning System Receivers : Static Validity and Environmental Conditions. American Journal of Preventive Medicine. 44(2), pp. 1-11. https://doi.org/10.1016/j.amepre.2012.10.013
Using SenseCam Images to Assess the Environment
Mavoa, Suzanne, Oliver, Melody, Kerr, Jacqueline, Doherty, Aiden and Witten, Karen. (2013). Using SenseCam Images to Assess the Environment. United States: Association for Computing Machinery. pp. 84 https://doi.org/10.1145/2526667.2526683
Neighborhood built environment and transport and leisure physical activity : findings using objective exposure and outcome measures in New Zealand
Witten, Karen, Blakely, Tony, Bagheri, Nasser, Badland, Hannah, Ivory, Vivienne, Pearce, Jamie, Mavoa, Suzanne, Hinckson, Erica and Schofield, Grant. (2012). Neighborhood built environment and transport and leisure physical activity : findings using objective exposure and outcome measures in New Zealand. Environmental Health Perspectives. 120(7), pp. 971-977. https://doi.org/10.1289/ehp.1104584
Association of neighbourhood residence and preferences with the built environment, work-related travel behaviours, and health implications for employed adults : Findings from the URBAN study
Badland, Hannah, Oliver, Melody, Kearns, Robin, Mavoa, Suzanne, Witten, Karen, Duncan, Mitch and Batty, G. David. (2012). Association of neighbourhood residence and preferences with the built environment, work-related travel behaviours, and health implications for employed adults : Findings from the URBAN study. Social Science and Medicine. 75(8), pp. 1469-1476. https://doi.org/10.1016/j.socscimed.2012.05.029
GIS based destination accessibility via public transit and walking in Auckland, New Zealand
Mavoa, Suzanne, Witten, Karen, McCreanor, Tim and O'Sullivan, David. (2012). GIS based destination accessibility via public transit and walking in Auckland, New Zealand. Journal of Transport Geography. 20(1), pp. 15-22. https://doi.org/10.1016/j.jtrangeo.2011.10.001
Linking GPS and travel diary data using sequence alignment in a study of children's independent mobility
Mavoa, Suzanne, Oliver, Melody, Witten, Karen and Badland, Hannah. (2011). Linking GPS and travel diary data using sequence alignment in a study of children's independent mobility. International Journal of Health Geographics. 10, pp. 1-10. https://doi.org/10.1186/1476-072X-10-64
Social and recreational travel : The destinations, travel modes and CO2 emissions of New Zealand households
Witten, Karen, Huakau, John and Mavoa, Suzanne. (2011). Social and recreational travel : The destinations, travel modes and CO2 emissions of New Zealand households. Social Policy Journal of New Zealand : te puna whakaaro. (37), pp. 1-13.
Kids in the city study : research design and methodology
Oliver, Melody, Witten, Karen, Kearns, Robin, Mavoa, Suzanne, Badland, Hannah, Carroll, Penelope, Drumheller, Chelsea, Tavae, Nicola, Asiasiga, Lanuola, Jelley, Su, Kaiwai, Hector, Opit, Simon, Lin, En-Yi, Sweetsur, Paul, Barnes, Helen, Mason, Nic and Ergler, Christina. (2011). Kids in the city study : research design and methodology. BMC Public Health. 11, pp. 1-12. https://doi.org/10.1186/1471-2458-11-587