Dignity, being and becoming in research ethics

Book chapter


Kirchhoffer, David G.. (2019). Dignity, being and becoming in research ethics. In In Kirchhoffer, David G. and Richards, Bernadette J. (Ed.). Beyond autonomy : Limits and alternatives to informed consent in research ethics and law pp. 117-132 Cambridge University Press. https://doi.org/10.1017/9781108649247.008
AuthorsKirchhoffer, David G.
EditorsKirchhoffer, David G. and Richards, Bernadette J.
Abstract

Since the end of World War II, most guidelines governing human research seem to have relied on the principle of respect for autonomy as a key, though not sole, criterion in assessing the moral validity of research involving human participants.1 One explanation for this apparent reliance on respect for autonomy may be that respect for autonomy, made effective through the practice of obtaining informed consent, functions as a useful proxy when dealing with competent adults for the more complex principle of respect for human dignity that underpins much of the moral discourse in this area. If this explanation holds, then assessment of the moral licitness of research involving human individuals whose autonomy is limited in some way requires a deeper analysis of the ‘thicker’ concepts of human dignity, since we cannot rely on respect for autonomy to do the work of respect for human dignity where autonomy (understood as a capacity to consent based on adequate information) is not present, is limited or is compromised.

Keywordsdignity; informed consent; research ethics; medical ethics
Page range117-132
Year2019
Book titleBeyond autonomy : Limits and alternatives to informed consent in research ethics and law
PublisherCambridge University Press
Place of publicationCambridge, United Kingdom
SeriesCambridge bioethics and law
ISBN978110849247
9781108491907
9781108741309
Digital Object Identifier (DOI)https://doi.org/10.1017/9781108649247.008
Research or scholarlyResearch
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Open
Output statusPublished
Publication dates
Print20 Sep 2019
Publication process dates
Deposited03 Mar 2022
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This material has been published in Beyond Autonomy: Limits and alternatives to informed consent in research ethics and law by Kirchhoffer, David G.; Richards, Bernadette
https://doi.org/10.1017/9781108649247.008

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