Understanding the social and emotional dimensions of HIV self-management : A qualitative study of newly diagnosed people living with HIV in Queensland, Australia

Journal article


Hollingdrake, Olivia, Dean, Judith, Mutch, Allyson, Lui, Chi-Wai, Howard, Chris and Fitzgerald, Lisa. (2022). Understanding the social and emotional dimensions of HIV self-management : A qualitative study of newly diagnosed people living with HIV in Queensland, Australia. Journal of the Association of Nurses in AIDS Care. 33(2), pp. 106-117. https://doi.org/10.1097/JNC.0000000000000272
AuthorsHollingdrake, Olivia, Dean, Judith, Mutch, Allyson, Lui, Chi-Wai, Howard, Chris and Fitzgerald, Lisa
Abstract

Understanding of HIV self-management increasingly focuses on treatment adherence and associated health-related behaviors, yet people living with HIV (PLWH) seldom perform these actions in a social vacuum. Thus, delivering comprehensive self-management support programs for PLWH requires an understanding of the social and emotional dimensions of HIV self-management. Through thematic analysis of in-depth interviews with 35 newly diagnosed PLWH, this descriptive qualitative study highlights these dimensions and their effect on experiences of HIV diagnosis and care. HIV self-management involves interpersonal interactions that affect efforts to seek support and reimagine one's personal identity in a changed reality. Managing disclosures and navigating stigma constitute everyday work for many PLWH. Because stigma continues to impede care engagement and well-being for PLWH, health practitioners must extend focus beyond viral suppression and prioritize support for emotional and social self-management. Nurses can create safe, nonstigmatizing spaces for conversations about HIV, uphold the rights of PLWH around disclosure, and ensure that PLWH are connected to peer support services.

Keywordsdisclosure; emotional support; HIV; qualitative research; self-management; stigma
Year2022
JournalJournal of the Association of Nurses in AIDS Care
Journal citation33 (2), pp. 106-117
PublisherLippincott Williams & Wilkins
ISSN1552-6917
Digital Object Identifier (DOI)https://doi.org/10.1097/JNC.0000000000000272
Scopus EID2-s2.0-85125211865
Research or scholarlyResearch
Page range106-117
Publisher's version
License
All rights reserved
File Access Level
Controlled
Output statusPublished
Publication dates
Online2022
Publication process dates
Deposited09 Jun 2022
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https://acuresearchbank.acu.edu.au/item/8xy43/understanding-the-social-and-emotional-dimensions-of-hiv-self-management-a-qualitative-study-of-newly-diagnosed-people-living-with-hiv-in-queensland-australia

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"They're my go-to people" : A qualitative study of support networks for people recently diagnosed with HIV in Queensland, Australia
Hollingdrake, Olivia, Lui, Chi-Wai, Dean, Judith A., Mutch, Allyson, Howard, Chris and Fitzgerald, Lisa. (2022). "They're my go-to people" : A qualitative study of support networks for people recently diagnosed with HIV in Queensland, Australia. Journal of the Association of Nurses in AIDS Care. 33(6), pp. 624-637. https://doi.org/10.1097/JNC.0000000000000351