The epilepsy specialist nurse : A mixed-methods case study on the role and activities

Journal article


Locatelli, Giulia, Ausili, Davide, Stubbings, Vibeke, Di Mauro, Stefania and Luciani, Michela. (2021). The epilepsy specialist nurse : A mixed-methods case study on the role and activities. Seizure : European Journal of Epilepsy. 85, pp. 57-63. https://doi.org/10.1016/j.seizure.2020.12.013
AuthorsLocatelli, Giulia, Ausili, Davide, Stubbings, Vibeke, Di Mauro, Stefania and Luciani, Michela
Abstract

Purpose
To describe the role and activities of epilepsy specialist nurses (ESNs) operating as a team in the setting of a hospital specialising in the diagnosis and management of seizure disorders.

Methods
We conducted a descriptive mixed-methods embedded single case study. We recruited 9 ESNs, 14 of their professional colleagues and 9 ‘key informants’ to analyse their perceptions of the role and activities of ESNs. We collected data through interviews, questionnaires, observations, and documentation. The study was conducted at the Filadelfia Epilepsy Hospital, Denmark.

Results
The team of ESNs offers holistic care to patients and their caregivers regarding the clinical, social, and emotional aspects of epilepsy. The ESNs are integrated in a multidisciplinary team and promote collaboration among the team members. ESNs also contribute to organisational aspects and perform research activities.

Conclusion
A structured group of ESNs can operate effectively and extensively in a specialised hospital setting. Our findings contribute to clarifying the description of the ESN’s role, and provide an example of how ESNs can be incorporated into a hospital’s organisational structure.

Keywordsepilepsy specialist nurse; clinical nurse specialist; advanced practice nursing; mixed methods; case study research
Year2021
JournalSeizure : European Journal of Epilepsy
Journal citation85, pp. 57-63
PublisherElsevier Ltd
ISSN1059-1311
Digital Object Identifier (DOI)https://doi.org/10.1016/j.seizure.2020.12.013
Scopus EID2-s2.0-85121030688
Page range57-63
Publisher's version
License
All rights reserved
File Access Level
Controlled
Output statusPublished
Publication dates
Online02 Jan 2021
Publication process dates
Accepted16 Dec 2020
Deposited07 Oct 2022
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