Challenges in the management of people with heart failure with preserved ejection fraction (HFpEF) in primary care : A qualitative study of general practitioner perspectives

Journal article


Hossain, Muhammad Z., Chew-Graham, Carolyn A., Sowden, Emma, Blakeman, Thomas, Wellwood, Ian, Tierney, Stephanie and Deaton, Christi. (2022). Challenges in the management of people with heart failure with preserved ejection fraction (HFpEF) in primary care : A qualitative study of general practitioner perspectives. Chronic Illness. 18(2), pp. 410-425. https://doi.org/10.1177/1742395320983871
AuthorsHossain, Muhammad Z., Chew-Graham, Carolyn A., Sowden, Emma, Blakeman, Thomas, Wellwood, Ian, Tierney, Stephanie and Deaton, Christi
Abstract

Objectives
To explore the perspectives of general practitioners (GPs) on the identification and management of people, including those from ethnic minority groups, with Heart Failure with Preserved Ejection Fraction (HFpEF).

Methods
Qualitative study. Semi-structured, face-to-face or telephone interviews and focus groups were conducted with 35 GPs in England, which were audio-recorded and transcribed verbatim. Framework analysis was used to manage and interpret data.

Results
Themes presented reflect four inter-related challenges: GPs’ 1) lack of understanding HFpEF, impacting on 2) difficulties in communicating the diagnosis, leading to 3) uncertainty in managing people with HFpEF, further hindered by (4) discontinuity across the primary/secondary interface. All were considered more challenging by GPs when managing people from different cultures and languages.

Discussion
HFpEF is not well understood by GPs, leading to diagnostic difficulty, management uncertainty and potential inequity in care offered. People with HFpEF are seen as complex, with multiple long-term conditions and requiring personalised care. Challenges in their management occur across the healthcare system. This study has identified learning needs for GPs around identification and on-going support for people with HFpEF in primary care. It will contribute to the development of more flexible and patient-centred pathways across the primary/secondary care interface.

Keywordsgeneral practitioners; primary care; heart failure; HFpEF; qualitative methods
Year2022
JournalChronic Illness
Journal citation18 (2), pp. 410-425
PublisherSAGE Publications
ISSN1742-3953
Digital Object Identifier (DOI)https://doi.org/10.1177/1742395320983871
PubMed ID33401942
Scopus EID2-s2.0-85098869950
PubMed Central IDPMC9163769
Open accessPublished as ‘gold’ (paid) open access
Page range410-425
FunderNational Institute for Health Research (NIHR)
Publisher's version
License
File Access Level
Open
Output statusPublished
Publication dates
Online05 Jan 2021
Publication process dates
Accepted09 Dec 2020
Deposited01 Dec 2022
Grant IDPrimary Care Research Grant 384
Permalink -

https://acuresearchbank.acu.edu.au/item/8y827/challenges-in-the-management-of-people-with-heart-failure-with-preserved-ejection-fraction-hfpef-in-primary-care-a-qualitative-study-of-general-practitioner-perspectives

Download files


Publisher's version
OA_Hossain_2022_Challenges_in_the_management_of_people.pdf
License: CC BY 4.0
File access level: Open

  • 53
    total views
  • 51
    total downloads
  • 0
    views this month
  • 1
    downloads this month
These values are for the period from 19th October 2020, when this repository was created.

Export as

Related outputs

Effect of abnormal body weight on mortality and functional recovery in adults after stroke : An umbrella review
Holland, Stephanie A, Wellwood, Ian and Kuys, Suzanne Shanelle. (2024). Effect of abnormal body weight on mortality and functional recovery in adults after stroke : An umbrella review. International Journal of Stroke. 19(4), pp. 397-405. https://doi.org/10.1177/17474930231212972
Spatiotemporal Gait Parameters in Adults With Premanifest and Manifest Huntington's Disease : A Systematic Review
Browning, Sasha, Holland, Stephanie, Wellwood, Ian and Bilney, Belinda Elizabeth. (2023). Spatiotemporal Gait Parameters in Adults With Premanifest and Manifest Huntington's Disease : A Systematic Review. Journal of Movement Disorders. 16(3), pp. 307-320. https://doi.org/10.14802/jmd.23111
Community health programs delivered through information and communications technology in high-income countries : Scoping review
Beks, Hannah, King, Olivia, Clapham, Renee, Alston, Laura, Glenister, Kristen, McKinstry, Carol, Quilliam, Claire, Wellwood, Ian, Williams, Catherine and Shee, Anna Wong. (2022). Community health programs delivered through information and communications technology in high-income countries : Scoping review. Journal of Medical Internet Research. 24(3), p. Article e26515. https://doi.org/10.2196/26515
Timely community palliative and end-of-life care : A realist synthesis
Petrova, Mila, Wong, Geoff, Kuhn, Isla, Wellwood, Ian and Barclay, Stephen. (2021). Timely community palliative and end-of-life care : A realist synthesis. BMJ Supportive and Palliative Care. pp. 1-15. https://doi.org/10.1136/bmjspcare-2021-003066
Diagnosis of patients with heart failure with preserved ejection fraction in primary care : Cohort study
Forsyth, Faye, Brimicombe, James, Cheriyan, Joseph, Edwards, Duncan, Hobbs, F. D. Richard, Jalaludeen, Navazh, Mant, Jonathan, Pilling, Mark, Schiff, Rebekah, Taylor, Clare J., Zaman, M. Justin, Deaton, Christi, OPTIMISE HFpEF investigators and collaborators and Wellwood, Ian*. (2021). Diagnosis of patients with heart failure with preserved ejection fraction in primary care : Cohort study. ESC Heart Failure. 8(6), pp. 4562-4571. https://doi.org/10.1002/ehf2.13612
Changes in muscle strength and physical function in older patients during and after hospitalisation : A prospective repeated-measures cohort study
Hartley, Peter, Romero-Ortuno, Roman, Wellwood, Ian and Deaton, Christi. (2021). Changes in muscle strength and physical function in older patients during and after hospitalisation : A prospective repeated-measures cohort study. Age and Ageing. 50(1), pp. 153-160. https://doi.org/10.1093/ageing/afaa103
Understanding the management of heart failure with preserved ejection fraction : A qualitative multiperspective study
Sowden, Emma, Blakeman, Thomas, Hossain, Muhammad Z, Chew-Graham, Carolyn A, Tierney, Stephanie, Wellwood, Ian, Rosa, Francesca and Deaton, Christi. (2020). Understanding the management of heart failure with preserved ejection fraction : A qualitative multiperspective study. British Journal of General Practice. 70(701), pp. 880-889. https://doi.org/10.3399/bjgp20X713477
Identifying priorities for physiotherapy research in the UK : The James Lind Alliance Physiotherapy Priority Setting Partnership
Rankin, Gabrielle, Summers, Rachael, Cowan, Katherine, Barker, Karen, Button, Kate, Carroll, Sean Paul, Fashanu, Billy, Moran, Fidelma, O'Neill, Brenda, ten Hove, Ruth, Waterfield, Jackie, Westwater-Wood, Sarah and Wellwood, Ian. (2020). Identifying priorities for physiotherapy research in the UK : The James Lind Alliance Physiotherapy Priority Setting Partnership. Physiotherapy. 107, pp. 161-168. https://doi.org/10.1016/j.physio.2019.07.006
Unmet need for social and emotional support and lack of recalled screening is associated with depression in the long-term course after stroke
Padberg, Inken, Hotter, Benjamin, Liebenau, Andrea, Knispel, Petra, Lehnerer, Sophie, Heel, Sabine, Wellwood, Ian and Meisel, Andreas. (2020). Unmet need for social and emotional support and lack of recalled screening is associated with depression in the long-term course after stroke. Risk Management and Healthcare Policy. 13, pp. 285-293. https://doi.org/10.2147/RMHP.S228265
Developing an intervention to increase REferral and uptake to pulmonary REhabilitation in primary care in patients with chronic obstructive pulmonary disease (the REsTORE study) : Mixed methods study protocol
Early, Frances, Wilson, Patricia, Deaton, Christi, Wellwood, Ian, Dickerson, Terry, Ward, James, Jongepier, Lianne, Barlow, Ruth, Singh, Sally J., Benson, John, Brimicombe, James, Kim, Lois, Haque, Hena and Fuld, Jonathan. (2019). Developing an intervention to increase REferral and uptake to pulmonary REhabilitation in primary care in patients with chronic obstructive pulmonary disease (the REsTORE study) : Mixed methods study protocol. BMJ Open. 9(1), p. Article e024806. https://doi.org/10.1136/bmjopen-2018-024806
Evaluating diagnostic strategies for early detection of cancer : The CanTest framework
Walter, Fiona M., Thompson, Matthew J., Wellwood, Ian, Abel, Gary A., Hamilton, William, Johnson, Margaret, Lyratzopoulos, Georgios, Messenger, Michael P., Neal, Richard D., Rubin, Greg, Singh, Hardeep, Spencer, Anne, Sutton, Stephen, Vedsted, Peter and Emery, Jon D.. (2019). Evaluating diagnostic strategies for early detection of cancer : The CanTest framework. BMC Cancer. 19(1), p. Article 586. https://doi.org/10.1186/s12885-019-5746-6
Social work support and unmet social needs in life after stroke : A cross-sectional exploratory study
Lehnerer, Sophie, Hotter, Benjamin, Padberg, Inken, Knispel, Petra, Remstedt, Dike, Liebenau, Andrea, Grittner, Ulrike, Wellwood, Ian and Meisel, Andreas. (2019). Social work support and unmet social needs in life after stroke : A cross-sectional exploratory study. BMC Neurology. 19(1), p. Article 220. https://doi.org/10.1186/s12883-019-1451-y
Stroke survivors' and informal caregivers' experiences of primary care and community healthcare services - A systematic review and meta-ethnography
Pindus, Dominika M., Mullis, Ricky, Lim, Lisa, Wellwood, Ian, Rundell, A. Viona, Aziz, Noor Azah Abd and Mant, Jonathan. (2018). Stroke survivors' and informal caregivers' experiences of primary care and community healthcare services - A systematic review and meta-ethnography. PLoS ONE. 13(2), p. Article e0192533. https://doi.org/10.1371/journal.pone.0192533
Interventions to increase referral and uptake to pulmonary rehabilitation in people with COPD : A systematic review
Early, Frances, Wellwood, Ian, Kuhn, Isla, Deaton, Christi and Fuld, Jonathan. (2018). Interventions to increase referral and uptake to pulmonary rehabilitation in people with COPD : A systematic review. The International Journal of Chronic Obstructive Pulmonary Disease. 13, pp. 3571-3586. https://doi.org/10.2147/COPD.S172239
Identifying unmet needs in long-term stroke care using in-depth assessment and the Post-Stroke Checklist – The Managing Aftercare for Stroke (MAS-I) study
Hotter, Benjamin, Padberg, Inken, Liebenau, Andrea, Knispel, Petra, Heel, Sabine, Steube, Diethard, Wissel, Jörg, Wellwood, Ian and Meisel, Andreas. (2018). Identifying unmet needs in long-term stroke care using in-depth assessment and the Post-Stroke Checklist – The Managing Aftercare for Stroke (MAS-I) study. European Stroke Journal. 3(3), pp. 237-245. https://doi.org/10.1177/2396987318771174
Increasing efficiency of preclinical research by group sequential designs
Neumann, Konrad, Grittner, Ulrike, Piper, Sophie, Rex, Andre, Florez-Vargas, Oscar, Karystianis, George, Schneider, Alice, Wellwood, Ian, Siegerink, Bob, Ioannidis, John P. A., Kimmelman, Jonathan and Dirnagl, Ulrich. (2017). Increasing efficiency of preclinical research by group sequential designs. PLoS Biology. 15(3), p. Article e2001307. https://doi.org/10.1371/journal.pbio.2001307
Social work after stroke : Identifying demand for support by recording stroke patients' and carers' needs in different phases after stroke
Padberg, Inken, Knispel, Petra, Zöllner, Susanne, Sieveking, Meike, Schneider, Alice, Steinbrink, Jens, Heuschmann, Peter U., Wellwood, Ian and Meisel, Andreas. (2016). Social work after stroke : Identifying demand for support by recording stroke patients' and carers' needs in different phases after stroke. BMC Neurology. 16(1), p. Article 111. https://doi.org/10.1186/s12883-016-0626-z
Impact of heart rate on admission on mortality and morbidity in acute ischaemic stroke patients – results from VISTA
Nolte, C. H., Erdur, H., Grittner, U., Schneider, A., Piper, S. K., Scheitz, J. F., Wellwood, I., Bath, P. M. W., Diener, H.-C., Lees, K. R. and Endres, M.. (2016). Impact of heart rate on admission on mortality and morbidity in acute ischaemic stroke patients – results from VISTA. European Journal of Neurology. 23(12), pp. 1750-1756. https://doi.org/10.1111/ene.13115