Communication surrounding initiation and withdrawal of non-invasive ventilation in adults with motor neurone disease

Journal article

Chapman, Charlotte, Bayes, Sara Jayne and Sim, Moira. (2022). Communication surrounding initiation and withdrawal of non-invasive ventilation in adults with motor neurone disease. International Journal of Palliative Nursing. 28(7), pp. 298-306. https://doi.org/10.12968/ijpn.2022.28.7.298
AuthorsChapman, Charlotte, Bayes, Sara Jayne and Sim, Moira
Abstract

Background: Motor neurone disease causes respiratory weakness that can lead to death. While non-invasive ventilation relieves symptoms, there are complex issues to consider prior to commencement.

Aim: To identify what is known and understood about the clinician communication of non-invasive ventilation by people with motor neurone disease.

Method: The Joanna Briggs Institute approach to systematic reviews was followed for literature retrieval and selection.

Data sources: Research literature published between 1990-2019 in English from the Medline, CINAHL, ProQuest Research Library and the Cochrane Library of Systematic Reviews databases were used.

Results: A total of two themes emerged: communication challenges doctors face when discussing non-invasive ventilation withdrawal, and the importance of well-timed, effective communication by clinicians-specifically the influence clinicians have on family decision-making.

Conclusions: Guidance on communications around palliative care, non-invasive ventilation introduction and withdrawal exist, however implementation is often not straightforward. Research into the communication surrounding non-invasive ventilation from those living with motor neuron disease, their families and clinicians is required to inform guideline implementation and practice.

Keywordsmotor neurone disease; non-invasive ventilation; palliative care; respiratory weakness
Year01 Jan 2022
JournalInternational Journal of Palliative Nursing
Journal citation28 (7), pp. 298-306
PublisherMA Healthcare Ltd
ISSN1357-6321
Digital Object Identifier (DOI)https://doi.org/10.12968/ijpn.2022.28.7.298
PubMed ID35861443
Scopus EID2-s2.0-85134722288
Web address (URL)https://www.magonlinelibrary.com/doi/full/10.12968/ijpn.2022.28.7.298
Open accessPublished as non-open access
Research or scholarlyResearch
Page range298-306
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All rights reserved
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Controlled
Output statusPublished
Publication dates
Print02 Jul 2022
Publication process dates
Deposited17 Jan 2023
Additional information

© 2022 MA Healthcare Ltd.

Place of publicationUnited Kingdom
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