Communication surrounding initiation and withdrawal of non-invasive ventilation in adults with motor neurone disease
Chapman, Charlotte, Bayes, Sara Jayne and Sim, Moira. (2022). Communication surrounding initiation and withdrawal of non-invasive ventilation in adults with motor neurone disease. International Journal of Palliative Nursing. 28(7), pp. 298-306. https://doi.org/10.12968/ijpn.2022.28.7.298
|Authors||Chapman, Charlotte, Bayes, Sara Jayne and Sim, Moira|
Background: Motor neurone disease causes respiratory weakness that can lead to death. While non-invasive ventilation relieves symptoms, there are complex issues to consider prior to commencement.
Aim: To identify what is known and understood about the clinician communication of non-invasive ventilation by people with motor neurone disease.
Method: The Joanna Briggs Institute approach to systematic reviews was followed for literature retrieval and selection.
Data sources: Research literature published between 1990-2019 in English from the Medline, CINAHL, ProQuest Research Library and the Cochrane Library of Systematic Reviews databases were used.
Results: A total of two themes emerged: communication challenges doctors face when discussing non-invasive ventilation withdrawal, and the importance of well-timed, effective communication by clinicians-specifically the influence clinicians have on family decision-making.
Conclusions: Guidance on communications around palliative care, non-invasive ventilation introduction and withdrawal exist, however implementation is often not straightforward. Research into the communication surrounding non-invasive ventilation from those living with motor neuron disease, their families and clinicians is required to inform guideline implementation and practice.
|Keywords||motor neurone disease; non-invasive ventilation; palliative care; respiratory weakness|
|Year||01 Jan 2022|
|Journal||International Journal of Palliative Nursing|
|Journal citation||28 (7), pp. 298-306|
|Publisher||MA Healthcare Ltd|
|Digital Object Identifier (DOI)||https://doi.org/10.12968/ijpn.2022.28.7.298|
|Web address (URL)||https://www.magonlinelibrary.com/doi/full/10.12968/ijpn.2022.28.7.298|
|Open access||Published as non-open access|
|Research or scholarly||Research|
All rights reserved
File Access Level
|02 Jul 2022|
|Publication process dates|
|Deposited||17 Jan 2023|
© 2022 MA Healthcare Ltd.
|Place of publication||United Kingdom|
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