Effect of targeted movement interventions on pain and quality of life in children with dyskinetic cerebral palsy : A pilot single subject research design to test feasibility of parent-reported assessments

Journal article


Smith, Nadine, Garbellini, Simon, Bear, Natasha, Thornton, Ashleigh, Watts, Peta and Gibson, Noula. (2022). Effect of targeted movement interventions on pain and quality of life in children with dyskinetic cerebral palsy : A pilot single subject research design to test feasibility of parent-reported assessments. Disability and Rehabilitation. 45(10), pp. 1646-1654. https://doi.org/10.1080/09638288.2022.2072007
AuthorsSmith, Nadine, Garbellini, Simon, Bear, Natasha, Thornton, Ashleigh, Watts, Peta and Gibson, Noula
Abstract

Purpose
To determine the feasibility of using parent-reported outcome measures of the Paediatric Pain Profile (PPP), Sleep Disturbance Scale for Children (SDSC) and Care and Comfort Hypertonicity Questionnaire (CCHQ) as repeated outcome measures of change at weekly intervals for children with dyskinetic cerebral palsy (CP). The secondary aim was to explore the efficacy of individualised movement intervention.

Material and methods
In this pilot feasibility study a single subject research design was utilised. Three children with dyskinetic CP, completed 5 weeks of parent-reported baseline assessments, 8 weekly sessions of intervention and 5 weeks of follow up.

Results
All children completed 18 weeks of the study, with no missing data. There was evidence of parent-reported improvements in their child’s pain and care and comfort between the baseline and intervention phases.

Conclusions
The PPP, SDSC and CCHQ were feasible to assess pain, sleep and comfort before and after an intervention in children with dyskinetic CP. There is preliminary evidence that individualised movement intervention as little as once a week may help improve pain, sleep and improve ease of care and comfort.

Keywordsdyskinetic cerebral palsy; dystonia; movement therapy; pain; single subject research design; feasibility study
Year2022
JournalDisability and Rehabilitation
Journal citation45 (10), pp. 1646-1654
PublisherTaylor & Francis
ISSN0963-8288
Digital Object Identifier (DOI)https://doi.org/10.1080/09638288.2022.2072007
PubMed ID35544592
Scopus EID2-s2.0-85130276044
Web address (URL)https://www.tandfonline.com/doi/full/10.1080/09638288.2022.2072007
Open accessPublished as ‘gold’ (paid) open access
Research or scholarlyResearch
Page range1646-1654
Publisher's version
License
File Access Level
Open
Output statusPublished
Publication dates
Online11 May 2022
Publication process dates
Accepted23 Apr 2022
Deposited27 Mar 2023
Permalink -

https://acuresearchbank.acu.edu.au/item/8yy27/effect-of-targeted-movement-interventions-on-pain-and-quality-of-life-in-children-with-dyskinetic-cerebral-palsy-a-pilot-single-subject-research-design-to-test-feasibility-of-parent-reported

Download files


Publisher's version
OA_Smith_2022_Effect_of_targeted_movement_interventions_on.pdf
License: CC BY-NC-ND 4.0
File access level: Open

  • 19
    total views
  • 13
    total downloads
  • 3
    views this month
  • 2
    downloads this month
These values are for the period from 19th October 2020, when this repository was created.

Export as

Related outputs

Prescribing upper limb orthoses for children with cerebral palsy: Exploring decision making and a hand deformity classification to guide orthosis prescription
Simon Garbellini. (2020). Prescribing upper limb orthoses for children with cerebral palsy: Exploring decision making and a hand deformity classification to guide orthosis prescription [PhD Thesis]. Australian Catholic University School of Allied Health https://doi.org/10.26199/acu.8vyv5
Prescribing upper limb orthoses for children with cerebral palsy: a Q methodology study of occupational therapists’ decision making
Simon Garbellini, Melinda Randall, Michael Steele, Catherine Elliott and Christine Imms. (2019). Prescribing upper limb orthoses for children with cerebral palsy: a Q methodology study of occupational therapists’ decision making. Disability and Rehabilitation. 42(18), pp. 1-11. https://doi.org/10.1080/09638288.2019.1573931
Rationale for prescription, and effectiveness of, upper limb orthotic intervention for children with cerebral palsy: A systematic review
Garbellini, Simon, Robert, Yvette, Randall, Melinda, Elliott, Catherine M. and Imms, Christine. (2018). Rationale for prescription, and effectiveness of, upper limb orthotic intervention for children with cerebral palsy: A systematic review. Disability and Rehabilitation. 40(12), pp. 1361 - 1371. https://doi.org/10.1080/09638288.2017.1297498
The neurological hand deformity classification for children with cerebral palsy
Georgiades, Melissa, Elliott, Catherine M., Wilton, Judith, Blair, Eve, Blackmore, Marie and Garbellini, Simon. (2014). The neurological hand deformity classification for children with cerebral palsy. Australian Occupational Therapy Journal. 61(6), pp. 394 - 402. https://doi.org/10.1111/1440-1630.12150