Physical activity preferences of people living with brain injury : Formative qualitative research to develop a discrete choice experiment

Journal article

Haynes, Abby, Howard, Kirsten, Johnson, Liam, Williams, Gavin, Clanchy, Kelly, Tweedy, Sean, Scheinberg, Adam, Chagpar, Sakina, Wang, Belinda, Vassallo, Gabrielle, Ashpole, Rhys, Sherrington, Catherine and Hassett, Leanne. (2023). Physical activity preferences of people living with brain injury : Formative qualitative research to develop a discrete choice experiment. Patient. 16(4), pp. 385-398. https://doi.org/10.1007/s40271-023-00628-9
AuthorsHaynes, Abby, Howard, Kirsten, Johnson, Liam, Williams, Gavin, Clanchy, Kelly, Tweedy, Sean, Scheinberg, Adam, Chagpar, Sakina, Wang, Belinda, Vassallo, Gabrielle, Ashpole, Rhys, Sherrington, Catherine and Hassett, Leanne
Abstract

Background and Objective
The World Health Organization physical activity guidelines for people living with disability do not consider the needs of people living with moderate-to-severe traumatic brain injury. This paper describes the qualitative co-development of a discrete choice experiment survey to inform the adaption of these guidelines by identifying the physical activity preferences of people living with moderate-to-severe traumatic brain injury in Australia.

Methods
The research team comprised researchers, people with lived experience of traumatic brain injury and health professionals with expertise in traumatic brain injury. We followed a four-stage process: (1) identification of key constructs and initial expression of attributes, (2) critique and refinement of attributes, (3) prioritisation of attributes and refinement of levels and (4) testing and refining language, format and comprehensibility. Data collection included deliberative dialogue, focus groups and think-aloud interviews with 22 purposively sampled people living with moderate-to-severe traumatic brain injury. Strategies were used to support inclusive participation. Analysis employed qualitative description and framework methods.

Results
This formative process resulted in discarding, merging, renaming and reconceptualising attributes and levels. Attributes were reduced from an initial list of 17 to six: (1) Type of activity, (2) Out-of-pocket cost, (3) Travel time, (4) Who with, (5) Facilitated by and (6) Accessibility of setting. Confusing terminology and cumbersome features of the survey instrument were also revised. Challenges included purposive recruitment, reducing diverse stakeholder views to a few attributes, finding the right language and navigating the complexity of discrete choice experiment scenarios.

Conclusions
This formative co-development process significantly improved the relevance and comprehensibility of the discrete choice experiment survey tool. This process may be applicable in other discrete choice experiment studies.

Year2023
JournalPatient
Journal citation16 (4), pp. 385-398
PublisherSpringer
ISSN1178-1653
Digital Object Identifier (DOI)https://doi.org/10.1007/s40271-023-00628-9
PubMed ID37204699
Scopus EID2-s2.0-85159824335
PubMed Central IDPMC10196322
Open accessPublished as ‘gold’ (paid) open access
Page range385-398
Funder Medical Research Future Fund (MRFF), Australian Government
Publisher's version
License
File Access Level
Open
Output statusPublished
Publication dates
Online19 May 2023
Publication process dates
Accepted31 Mar 2023
Deposited08 Aug 2023
Grant IDAPP2009099
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