Facilitating treatment engagement for early psychosis through peer-delivered decision support : intervention development and protocol for pilot evaluation
Thomas, Elizabeth C., Suarez, John, Lucksted, Alicia, Siminoff, Laura A., Hurford, Irene, Dixon, Lisa B., O’Connell, Maria, Penn, David and Salzer, Mark S.. (2021). Facilitating treatment engagement for early psychosis through peer-delivered decision support : intervention development and protocol for pilot evaluation. Pilot and Feasibility Studies. 7(1), pp. 1-13. https://doi.org/10.1186/s40814-021-00927-8
|Authors||Thomas, Elizabeth C., Suarez, John, Lucksted, Alicia, Siminoff, Laura A., Hurford, Irene, Dixon, Lisa B., O’Connell, Maria, Penn, David and Salzer, Mark S.|
Background: Emerging adults with early psychosis demonstrate high rates of service disengagement from critical early intervention services. Decision support interventions and peer support have both been shown to enhance service engagement but are understudied in this population. The purposes of this article are to describe the development of a novel peer-delivered decision coaching intervention for this population and to report plans for a pilot study designed to gather preliminary data about its feasibility, acceptability, and potential impact.
Methods: The intervention was developed based on formative qualitative data and in collaboration with a diverse team of researchers, key stakeholders, and expert consultants. The pilot trial will utilize a single-group (N = 20), pre-post, convergent mixed-methods design to explore whether and how the intervention addresses decision-making needs (the primary intervention target). The impact of the intervention on secondary outcomes (e.g., engagement in the program) will also be assessed. Additionally, through observation and feedback from the peer decision coach and study participants, we will evaluate the feasibility of research and intervention procedures, and the acceptability of information and support from the peer decision coach.
Discussion: The peer-delivered decision coaching intervention holds promise for assisting young people with making informed and values-consistent decisions about their care, and potentially enhancing service engagement within this traditionally difficult-to-engage population. If the intervention demonstrates feasibility and acceptability, and pilot data show its potential for improving treatment decision-making, our work will also lay the foundation for a new evidence base regarding roles for peer specialists on early intervention teams.
|Keywords||First-episode psychosis; Young adults; Peer support; Coordinated specialty care; Shared decision making|
|Year||01 Jan 2021|
|Journal||Pilot and Feasibility Studies|
|Journal citation||7 (1), pp. 1-13|
|Digital Object Identifier (DOI)||https://doi.org/10.1186/s40814-021-00927-8|
|Web address (URL)||https://pilotfeasibilitystudies.biomedcentral.com/articles/10.1186/s40814-021-00927-8|
|Open access||Open access|
|Research or scholarly||Research|
File Access Level
|Online||24 Oct 2021|
|Publication process dates|
|Accepted||12 Oct 2021|
|Deposited||07 Sep 2023|
© The Author(s) 2021. Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativeco mmons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
Thomas, E.C., Suarez, J., Lucksted, A. et al. Facilitating treatment engagement for early psychosis through peer-delivered decision support: intervention development and protocol for pilot evaluation. Pilot Feasibility Stud 7, 189 (2021). https://doi.org/10.1186/s40814-021-00927-8
This trial was registered with ClinicalTrials.gov (Identifier: NCT04532034) on 28 August 2020 as Temple University Protocol Record 261047, Facilitating Engagement in Evidence-Based Treatment for Early Psychosis.
|Place of publication||United Kingdom|
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