Consumer involvement in research – parent perceptions of partnership in cerebral palsy research : A qualitative study

Journal article

Headrick, Katie, Thornton, Marelle, Hogan, Amy, Deramore Denver, Belinda Jane, Drake, Gabrielle and Wallen, Margaret. (2023). Consumer involvement in research – parent perceptions of partnership in cerebral palsy research : A qualitative study. Disability and Rehabilitation. 45(3), pp. 483-493. https://doi.org/10.1080/09638288.2022.2034992
AuthorsHeadrick, Katie, Thornton, Marelle, Hogan, Amy, Deramore Denver, Belinda Jane, Drake, Gabrielle and Wallen, Margaret
Abstract

Purpose
Identify perceptions of parents and caregivers of children with cerebral palsy about being consumer research partners and identify strategies to inform involvement of parents in cerebral palsy research.

Materials and methods
Twenty-two parents in New South Wales and Victoria (Australia) participated in this qualitative study. Seven interviews and three focus groups were completed. Interpretive description guided data analysis. Methodological rigor was enhanced through involving two consumer investigators in the research team, member checking, and multiple researchers completing data analysis and theme generation.

Results
Participants identified a range of factors that may influence their involvement in research partner roles. Main topics emerging from the data included “Research Is Better with Parents” and “Parents Benefit from Being Research Partners.” A third, “Parents as Research Partners,” contained the themes “Flexible Involvement,” “Starting Partnerships,” and “Building and Sustaining Partnerships.”

Conclusion
This study has provided a rich insight into how parents perceive and describe engaging as research partners. Parent-identified guidance will inform future partnerships aiming to enhance the quality of cerebral palsy research and outcomes for people with cerebral palsy and their families. The involvement of consumer investigators in this study was considered valuable for enhancing the quality and applicability of the research.

IMPLICATIONS FOR REHABILITATION
Parents believed that parent partnership in research has benefits for the research and for the consumers involved.

Parents provided guidance about the importance of starting, building and sustaining relationships in involving parents as research partners.

Understanding the parent context, investing in relationships and acknowledgement of, and recognition for, contributions were considered important for building and sustaining effective partnerships.

Flexible approaches to supporting parents as research partners was considered necessary for effective partnership.

Keywordscerebral palsy; consumer involvement; patient and public involvement; co-researcher; research partner; parents
Year2023
JournalDisability and Rehabilitation
Journal citation45 (3), pp. 483-493
PublisherTaylor & Francis
ISSN0963-8288
Digital Object Identifier (DOI)https://doi.org/10.1080/09638288.2022.2034992
PubMed ID35133223
Scopus EID2-s2.0-85124914195
Page range483-493
Publisher's version
License
All rights reserved
File Access Level
Controlled
Output statusPublished
Publication dates
Online08 Feb 2022
Publication process dates
Accepted21 Jan 2022
Deposited31 Oct 2023
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