Consumer involvement in research – parent perceptions of partnership in cerebral palsy research : A qualitative study
Journal article
Headrick, Katie, Thornton, Marelle, Hogan, Amy, Deramore Denver, Belinda Jane, Drake, Gabrielle and Wallen, Margaret. (2023). Consumer involvement in research – parent perceptions of partnership in cerebral palsy research : A qualitative study. Disability and Rehabilitation. 45(3), pp. 483-493. https://doi.org/10.1080/09638288.2022.2034992
Authors | Headrick, Katie, Thornton, Marelle, Hogan, Amy, Deramore Denver, Belinda Jane, Drake, Gabrielle and Wallen, Margaret |
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Abstract | Purpose Materials and methods Results Conclusion IMPLICATIONS FOR REHABILITATION Parents provided guidance about the importance of starting, building and sustaining relationships in involving parents as research partners. Understanding the parent context, investing in relationships and acknowledgement of, and recognition for, contributions were considered important for building and sustaining effective partnerships. Flexible approaches to supporting parents as research partners was considered necessary for effective partnership. |
Keywords | cerebral palsy; consumer involvement; patient and public involvement; co-researcher; research partner; parents |
Year | 2023 |
Journal | Disability and Rehabilitation |
Journal citation | 45 (3), pp. 483-493 |
Publisher | Taylor & Francis |
ISSN | 0963-8288 |
Digital Object Identifier (DOI) | https://doi.org/10.1080/09638288.2022.2034992 |
PubMed ID | 35133223 |
Scopus EID | 2-s2.0-85124914195 |
Page range | 483-493 |
Publisher's version | License All rights reserved File Access Level Controlled |
Output status | Published |
Publication dates | |
Online | 08 Feb 2022 |
Publication process dates | |
Accepted | 21 Jan 2022 |
Deposited | 31 Oct 2023 |
https://acuresearchbank.acu.edu.au/item/8zxwz/consumer-involvement-in-research-parent-perceptions-of-partnership-in-cerebral-palsy-research-a-qualitative-study
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