Having a say in research directions : The role of community researchers in participatory research with communities of refugee and migrant background

Journal article


Hearn, Frances, Biggs, Laura, Brown, Stephanie, Tran, Lien, Shwe, Sherinald, Noe, Ta Mwe Paw, Toke, Shadow, Alias, May Alqas, Essa, Maryaan, Hydari, Shogoufa, Szwarc, Josef and Riggs, Elisha. (2022). Having a say in research directions : The role of community researchers in participatory research with communities of refugee and migrant background. International Journal of Environmental Research and Public Health. 19(8), p. Article 4844. https://doi.org/10.3390/ijerph19084844
AuthorsHearn, Frances, Biggs, Laura, Brown, Stephanie, Tran, Lien, Shwe, Sherinald, Noe, Ta Mwe Paw, Toke, Shadow, Alias, May Alqas, Essa, Maryaan, Hydari, Shogoufa, Szwarc, Josef and Riggs, Elisha
Abstract

Research teams in high-income countries often fail to acknowledge the capacity and contributions of Community Researchers. This qualitative exploratory study used decolonising methodology and the Foundation House ‘Refugee Recovery Framework’ to understand Community Researchers’ perceptions and experiences of their role, and how research teams can integrate the knowledge they bring into research. Purposive sampling was used to facilitate the recruitment of eight Community Researchers from five different community groups working in Melbourne, Victoria. Semi-structured interviews lasting forty to sixty minutes occurred between December 2020 and January 2021. Data were analysed using reflexive thematic analysis. Findings reported in this paper include eight themes: ‘nothing about us without us’; ‘open the door’; a safe space to share; every step of the way; this does not translate; finding the right way to ask; a trauma-informed approach; and support within the workplace. The knowledge obtained demonstrates that Community Researchers facilitate meaningful participation in research for women, families, and communities of refugee or migrant background. Community Researchers’ presence, knowledge, and skills are vital in establishing culturally safe research practices and developing accessible language to facilitate conversations about sensitive research topics across multiple languages. Community Researchers can make important contributions at all stages of research, including data collection and interpretation.

Keywordscommunity researcher; trauma-informed research; cross cultural research; refugee health; migrant health; decolonising methodology
Year2022
JournalInternational Journal of Environmental Research and Public Health
Journal citation19 (8), p. Article 4844
PublisherMultidisciplinary Digital Publishing Institute (MDPI AG)
ISSN1661-7827
Digital Object Identifier (DOI)https://doi.org/10.3390/ijerph19084844
PubMed ID35457711
Scopus EID2-s2.0-85128234633
PubMed Central IDPMC9024418
Open accessPublished as ‘gold’ (paid) open access
Page range1-14
FunderDepartment of Premier and Cabinet, Victorian Government
National Health and Medical Research Council (NHMRC)
Publisher's version
License
File Access Level
Open
Output statusPublished
Publication dates
Online15 Apr 2022
Publication process dates
Accepted07 Apr 2022
Deposited01 Nov 2023
Grant IDGNT1198270
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