Who’s included? The role of the Clinical Research Nurse in enabling research participation for under-represented and under-served groups

Journal article


Beer, Kelly, Gentgall, Melanie, Templeton, Nicola, Whitehouse, Claire and Straiton, Nicola. (2022). Who’s included? The role of the Clinical Research Nurse in enabling research participation for under-represented and under-served groups. Journal of Research in Nursing. 27(1-2), pp. 143-154. https://doi.org/10.1177/17449871221077076
AuthorsBeer, Kelly, Gentgall, Melanie, Templeton, Nicola, Whitehouse, Claire and Straiton, Nicola
Abstract

Background: There is a global call for more inclusive clinical research that is representative of all populations, particularly those historically under-represented or under-served. A lack of broad representation results in disproportionate health outcomes and limits the applicability and translation of research findings.

Aim:Identify and describe barriers to participation across the research lifecycle and consider the role of the Clinical Research Nurse (CRN) in promoting inclusivity, including for Aboriginal and Torres Strait Islander Peoples within Australia.

Discussion: Review of recent literature and best practice identified barriers to research participation across the research process; at system, participant and practitioner levels. This discussion paper explores the role of the CRN; acting as enablers, facilitators and navigators, to mitigate participation barriers.

Conclusion: With their comprehensive understanding of the research process, clinical care pathways, reflective practices and participant-centred approaches, CRNs are uniquely positioned to advocate for greater equity in access to clinical research and to motivate stakeholders across the research enterprise to embed inclusive approaches in the design, conduct and dissemination of research.

Implications for Practice: An in-depth understanding of the research process, self, and cultural norms of the populations they serve is essential for CRNs to effectively advocate for equity in access to research.

KeywordsAustralia; community-based participatory research; cultural diversity; health equity; health services accessibility; nurses’ role
Year01 Jan 2022
JournalJournal of Research in Nursing
Journal citation27 (1-2), pp. 143-154
PublisherSage Publications Ltd. (UK)
ISSN1744-9871
Digital Object Identifier (DOI)https://doi.org/10.1177/17449871221077076
Web address (URL)https://journals.sagepub.com/doi/10.1177/17449871221077076
Open accessPublished as non-open access
Research or scholarlyResearch
Page range143-154
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All rights reserved
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Controlled
Output statusPublished
Publication dates
Online01 Apr 2022
Publication process dates
Deposited15 Nov 2024
Additional information

© The Author(s) 2022.

Place of publicationUnited Kingdom
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