Stuttering on Instagram : What is the focus of stuttering-related Instagram posts and how do users engage with them?

Journal article

Jokar, Amir Hossein Rasoli, Roche, Steven and Karimi, Hamid. (2023). Stuttering on Instagram : What is the focus of stuttering-related Instagram posts and how do users engage with them? Journal of Fluency Disorders. 78, p. Article 106021. https://doi.org/10.1016/j.jfludis.2023.106021

Publication dates
Authors	Jokar, Amir Hossein Rasoli, Roche, Steven and Karimi, Hamid
Abstract	Purpose Instagram has become a popular platform for sharing and seeking health-related information, including stuttering. However, concerns have been raised about the accuracy, confidentiality, and potential negative impact of such information. This study aims to examine how stuttering is defined and understood on Instagram, and how users engage with related content. Methods We analyzed highly engaged Instagram posts with the hashtag "#Stuttering" published within a year and their corresponding comments using thematic analysis. Results The results revealed four main themes and nine sub-themes that highlighted different understandings of stuttering on Instagram, including the need for intervention, emotional impact on people who stutter, positive meanings, and mental health implications. User engagement varied based on the nature of the post, with users showing appreciation, objections, seeking advice, celebrating success stories, mocking, or advocating for people who stutter. Conclusion Although Instagram can serve as a means of normalizing stuttering and highlighting success stories, it raises concerns about the promotion of non-evidence-based treatments and the use of stuttering for political or entertainment purposes. This study emphasizes the need to critically evaluate health-related information presented on social media platforms. To provide reliable information to PWS and their families who seek information on social media, it is recommended to promote evidence-based information on stuttering through trustworthy organizations such as the National Stuttering Association or the Stuttering Foundation, particularly on special occasions like International Stuttering Awareness Day.
Keywords	social media; Instagram; internet; stuttering
Year	2023
Journal	Journal of Fluency Disorders
Journal citation	78, p. Article 106021
Publisher	Elsevier Inc.
ISSN	0094-730X
Digital Object Identifier (DOI)	https://doi.org/10.1016/j.jfludis.2023.106021
PubMed ID	37972424
Scopus EID	2-s2.0-85177238409
Open access	Published as ‘gold’ (paid) open access
Page range	1-14
Publisher's version	OA_Jokar_2023_Stuttering_on_Instagram_What_is_the.pdf License CC BY 4.0 File Access Level Open
Output status	Published
Online	14 Nov 2023
Publication process dates
Accepted	02 Nov 2023
Deposited	07 Apr 2025
Additional information	Crown Copyright © 2023 Published by Elsevier Inc. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).

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