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Proposal for a candidate core set of fitness and strength tests for patients with childhood or adult idiopathic inflammatory myopathies
Van Der Stap, Djamilla K. D. Rider, Lisa G. Alexanderson, Helene Huber, Adam M. Gualano, Bruno Gordon, Patrick Van Der Net, Janjaap Mathiesen, Pernille Johnson, Liam G. Ernste, Floranne C.
Van Der Stap, Djamilla K. D.
Rider, Lisa G.
Alexanderson, Helene
Huber, Adam M.
Gualano, Bruno
Gordon, Patrick
Van Der Net, Janjaap
Mathiesen, Pernille
Johnson, Liam G.
Ernste, Floranne C.
Author
Van Der Stap, Djamilla K. D.
Rider, Lisa G.
Alexanderson, Helene
Huber, Adam M.
Gualano, Bruno
Gordon, Patrick
Van Der Net, Janjaap
Mathiesen, Pernille
Johnson, Liam G.
Ernste, Floranne C.
Feldman, Brian M.
Houghton, Kristin M.
Singh-Grewal, Davinder
Kutzbach, Abraham Garcia
Munters, Li Alemo
Takken, Tim
Rider, Lisa G.
Alexanderson, Helene
Huber, Adam M.
Gualano, Bruno
Gordon, Patrick
Van Der Net, Janjaap
Mathiesen, Pernille
Johnson, Liam G.
Ernste, Floranne C.
Feldman, Brian M.
Houghton, Kristin M.
Singh-Grewal, Davinder
Kutzbach, Abraham Garcia
Munters, Li Alemo
Takken, Tim
Abstract
Objective. Currently there are no evidence-based recommendations regarding fitness and strength tests for patients with childhood or adult idiopathic inflammatory myopathies (IIM). This hinders clinicians and researchers in choosing the appropriate fitness- or muscle strength-related outcome measures for these patients. Through a Delphi survey, we aimed to identify a candidate core set of fitness and strength tests for children and adults with IIM. Methods. Fifteen experts participated in a Delphi survey that consisted of 5 stages to achieve a consensus. Using an extensive search of published literature and through the work of experts, a candidate core set based on expert opinion and clinimetrics properties was developed. Members of the International Myositis Assessment and Clinical Studies Group were invited to review this candidate core set during the final stage, which led to a final candidate core set. Results. A core set of fitness- and strength-related outcome measures was identified for children and adults with IIM. For both children and adults, different tests were identified and selected for maximal aerobic fitness, submaximal aerobic fitness, anaerobic fitness, muscle strength tests, and muscle function tests. Conclusion. The core set of fitness- and strength-related outcome measures provided by this expert consensus process will assist practitioners and researchers in deciding which tests to use in patients with IIM. This will improve the uniformity of fitness and strength tests across studies, thereby facilitating the comparison of study results and therapeutic exercise program outcomes among patients with IIM.
Keywords
Exercise, Fitness, Myositis, Outcome measures, Instruments
Date
2016
Type
Journal article
Journal
Journal of Rheumatology
Book
Volume
43
Issue
1
Page Range
169-176
Article Number
ACU Department
School of Behavioural and Health Sciences
Faculty of Health Sciences
Faculty of Health Sciences
Relation URI
Source URL
Event URL
Open Access Status
Published as green open access
License
File Access
Controlled
Open
Open