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A patient-based self-examination survey for staging the severity of lymphoedema
Morris, Carol M. Lee, Teresa S. Czerniec, Sharon A. Mangion, Andrea J.
Morris, Carol M.
Lee, Teresa S.
Czerniec, Sharon A.
Mangion, Andrea J.
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Abstract
Background: A lymphoedema self-assessment tool can help therapists deliver appropriate advice, and prioritise patients who are on waiting lists or who cannot access a lymphoedema clinic. Aims: This pilot study aims to assess the validity and reliability of the Lymphoedema Self-Examination Survey (LYSES) and the relationship between outcomes obtained through LYSES and healthcare professionals' lymphoedema assessment. Methods: Participants with lymphoedema (n=54) completed the LYSES, with the same survey repeated 1 week later. Bioimpedance measurement and International Society of Lymphology (ISL) staging were conducted by lymphoedema healthcare professionals, blinded to each other. Results: There was little agreement between self-reports of elevation being helpful and ISL staging of ≤I (k= -0.154), substantial agreement between self-reports of indentation and ISL staging of II (k=0.631), and poor agreement between self-reports and healthcare professionals' reports of skin firmness and skin changes (>ISL stage IIb) (k=0.089 and k=0.466, respectively). Lymphoedema severity based on ISL staging was able to account for 31% of the variability in L-Dex rank scores (p=0.005). Conclusion: LYSES cannot be used as an accurate self-report survey
Keywords
bioimpedance, cancer, lymphoedema, lymphoedema staging, self-report
Date
2017
Type
Journal article
Journal
Journal of Lymphoedema
Book
Volume
12
Issue
1
Page Range
10-15
Article Number
ACU Department
School of Allied Health
Faculty of Health Sciences
Faculty of Health Sciences
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DOI
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Open Access Status
License
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Controlled