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Scoping the ethics of dementia research within an Australian human research context
Dowson, Leslie Doyle, Colleen Rayner, Victoria
Dowson, Leslie
Doyle, Colleen
Rayner, Victoria
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Abstract
Research with people with dementia can be ethically challenging because of the effects of dementia on cognitive function. A narrative literature review of ethical human dementia research was conducted, highlighting ethical challenges that can be categorised under the following themes: substitute judgment; how capacity can vary due to risks; barriers to recruiting people with dementia; how to determine capacity to give consent; and gaining assent rather than consent from participants. The results of the review were further analysed in relation to the Australian National Statement on Ethical Conduct in Human Research (National Statement). Gaps in the National Statement include: how capacity should be determined; what defines best interests; how assent and dissent by someone with dementia should be determined and respected; and whether or not people with dementia should be included in high-risk research.
Keywords
Date
2013
Type
Journal article
Journal
Journal of Law and Medicine
Book
Volume
21
Issue
Page Range
210-216
Article Number
ACU Department
School of Behavioural and Health Sciences
Faculty of Health Sciences
Faculty of Health Sciences
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DOI
Source URL
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Open Access Status
License
File Access
Controlled