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Inclusion of marginalized groups and communities in global health research priority-setting
Pratt, Bridget
Pratt, Bridget
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Author
Pratt, Bridget
Abstract
Community engagement is gaining prominence in global health research. But community members, especially those from groups and communities that are considered disadvantaged and marginalized, rarely have a say in the agendas and priorities of the research projects that aim to help them. This article explores how to achieve their inclusion in priority-setting for global health research projects. A total of 29 in-depth interviews and one focus group were undertaken with researchers, research ethicists, community engagement practitioners, and community-based organization staff. Thematic analysis identified two core dimensions of inclusion—representation and voice—and what is necessary to realize them with marginalized groups and communities in global health research priority-setting. A set of ethical considerations is proposed to assist researchers and their partners design more inclusive priority-setting processes.
Keywords
priority-setting, health research, disadvantage, inclusion, equity, research ethics, engagement
Date
2019
Type
Journal article
Journal
Journal of Empirical Research on Human Research Ethics
Book
Volume
14
Issue
2
Page Range
169-181
Article Number
ACU Department
Queensland Bioethics Centre
Faculty of Theology and Philosophy
Faculty of Theology and Philosophy
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Open Access Status
License
All rights reserved
File Access
Controlled
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