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Priorities for cancer caregiver intervention research : A three-round modified Delphi study to inform priorities for participants, interventions, outcomes, and study design characteristics
Ugalde, Anna Blaschke, Sarah-May Schofield, Penelope Lambert, Sylvie D. Aranda, Sanchia Boltong, Anna Chambers, Suzanne K. Krishnasamy, Meinir Livingston, Patricia
Ugalde, Anna
Blaschke, Sarah-May
Schofield, Penelope
Lambert, Sylvie D.
Aranda, Sanchia
Boltong, Anna
Chambers, Suzanne K.
Krishnasamy, Meinir
Livingston, Patricia
Abstract
Key points:
• A three-round modified Delphi study, guided by the PICO Framework, was conducted to ascertain cancer caregiver priorities in the areas of participants, interventions, outcomes, and study designs.
• Twenty-five Delphi participants, consisting of healthcare, allied health or academics with extensive clinical practice, or research experience in caregiver research, completed surveys over three rounds.
• Round 1 contributions were varied and extensive and 125 codes were generated, and over round 2 and round 3, 49 items were assessed for priority and consensus.
• High priorities included participants identified as minority groups or disadvantaged, those who are isolated and those identified as needing support; interventions that are sustainable and tailored; outcomes that are important to caregivers and studies that assess the long-term impact of interventions.
• Optimising approaches to conduct these studies, complementing these findings with qualitative data, and including caregiver perspectives are important avenues of future work.
Keywords
cancer, caregiver, carer, Delphi, experts
Date
2020
Type
Journal article
Journal
Psycho-Oncology
Book
Volume
29
Issue
12
Page Range
2091-2096
Article Number
ACU Department
Faculty of Health Sciences
Collections
Relation URI
DOI
Source URL
Event URL
Open Access Status
License
All rights reserved
File Access
Controlled