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Experiences of participation in daily life of adolescents and young adults with cerebral palsy : A scoping review
Cleary, Stacey L. Morgan, Prue E. Wallen, Margaret Honan, Ingrid Shields, Nora Munzel, Freya E. Plummer, James R. Assad, Cassandra Karlsson, Petra Culnane, Evelyn
Cleary, Stacey L.
Morgan, Prue E.
Wallen, Margaret
Honan, Ingrid
Shields, Nora
Munzel, Freya E.
Plummer, James R.
Assad, Cassandra
Karlsson, Petra
Culnane, Evelyn
Abstract
Aim
To synthesize the experiences of 15- to 34-year-olds with cerebral palsy (CP) as they participate in key life situations of young adulthood.
Method
A mixed-methods scoping review was undertaken and six electronic databases searched (January 2001 to August 2023). Participation foci and thematic outcomes were mapped to the International Classification of Functioning, Disability and Health. Results were integrated using a convergent integrated analysis framework, and data analysis completed through thematic synthesis. Themes were mapped to the family of Participation-Related Constructs.
Results
Thirty-eight publications (32 studies; 2759 participants) were included. More participants were male (n = 1435), walked independently (n = 1319), and lived with their families (n = 1171). ‘Claiming my adulthood and “doing” life’ was the unifying descriptor of participation, conveying the effortful work young people felt necessary to take their places in the adult world. The physical accessibility of the environment was a significant barrier to participation, as were people's negative attitudes or misconceptions about disability. A close-knit ‘circle of support’, typically family members, formed a supportive foundation during this period.
Interpretation
Young people with CP aim to participate fully in adult life, alongside their peers. Improved community accessibility, inclusion, and more supportive health environments would ensure they could live the lives they choose.
Keywords
Date
2025
Type
Journal article
Journal
Developmental Medicine and Child Neurology
Book
Volume
67
Issue
5
Page Range
572-590
Article Number
ACU Department
School of Allied Health
Faculty of Health Sciences
Faculty of Health Sciences
Collections
Relation URI
Source URL
Event URL
Open Access Status
License
All rights reserved
File Access
Controlled
Notes
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