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Contemporary consumer perspectives on prostate cancer survivorship : Fifty voices
Dunn, Jeff Ralph, Nicholas Green, Anna Frydenberg, Mark Chambers, Suzanne K.
Dunn, Jeff
Ralph, Nicholas
Green, Anna
Frydenberg, Mark
Chambers, Suzanne K.
Abstract
Objective
To describe contemporary consumer experiences and priorities of prostate cancer survivorship to inform the development of survivorship guidelines.
Method
In a cross-sectional qualitative design, semi-structured interviews were undertaken with fifty prostate cancer support group leaders (50% response) across urban and rural/regional Australia. An interpretative phenomenological approach was used to identify participants' experiences and priorities of survivorship.
Results
Three themes were identified for informing the development of prostate cancer survivorship guidelines: (a) the Experience of Diagnosis and Treatment, (b) Priorities for Survivorship and (c) Mechanisms for Support. Four priorities for prostate cancer survivorship were: delivering person and men-centred care; improving communication; improving care coordination; and facilitating access to care. Mechanisms for support were as follows: advocacy; peer support; prostate cancer specialist nurses; and communication training for health professionals.
Conclusions
The lack of progress in changing prostate cancer survivorship outcomes for men will become increasingly problematic as this patient population group grows. Co-production provides a way forward to ensure relevance and accessibility for future survivorship initiatives.
Keywords
care coordination, guidelines, personalised care, prostate cancer, survivorship
Date
2020
Type
Journal article
Journal
Psycho-Oncology
Book
Volume
29
Issue
3
Page Range
557-563
Article Number
ACU Department
Faculty of Health Sciences
Collections
Relation URI
DOI
Source URL
Event URL
Open Access Status
License
All rights reserved
File Access
Controlled