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Parents’ perceptions of emerging adults with congenital heart disease : An integrative review of qualitative studies
Delaney, Amy E. Qiu, Jeanna M. Lee, Christopher S. Lyons, Karen S. Vessey, Judith A. Fu, Mei R.
Delaney, Amy E.
Qiu, Jeanna M.
Lee, Christopher S.
Lyons, Karen S.
Vessey, Judith A.
Fu, Mei R.
Abstract
Background
As the primary caregivers for children with congenital heart disease (CHD), parents' perceptions are important for emerging adults to achieve independence. This integrative review of qualitative studies aimed to describe parents' perceptions of emerging adults with CHD.
Method
Seven electronic databases were searched. Data extraction and quality assessment were performed. A meta-synthesis was conducted to inductively develop essential themes from five included studies.
Results
Three essential themes encompassing the parents' perspective of emerging adults with CHD were: (1) concerns about emerging adults' ability to be independent; (2) concerns about emerging adults' future; and (3) impact of disease on family. The themes depicted parents' concerns and worries about their children's ability to successfully achieve independence, especially in disease self-management and life goals.
Discussion
This review highlights parents' concerns about their emerging adult children's independence. Understanding these concerns allows for developing interventions to facilitate emerging adults' independence and ease parents' worries.
Keywords
congenital heart disease, parents, emerging adult, chronic disease, developmental transition
Date
2021
Type
Journal article
Journal
Journal of Pediatric Health Care
Book
Volume
35
Issue
4
Page Range
362-376
Article Number
ACU Department
Faculty of Health Sciences
Collections
Relation URI
Source URL
Event URL
Open Access Status
Published as ‘gold’ (paid) open access
License
CC BY-NC-ND 4.0
File Access
Open