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A cross-sectional study assessing concordance with advance care directives in a rural health district
Curley, Dan Kinsman, Leigh Mooney, Graeme Whiteford, Gail Lower, Tony Hobbs, Megan Morris, Beverley Bartlett, Kerry Jacob, Alycia
Curley, Dan
Kinsman, Leigh
Mooney, Graeme
Whiteford, Gail
Lower, Tony
Hobbs, Megan
Morris, Beverley
Bartlett, Kerry
Jacob, Alycia
Abstract
Objective
To measure compliance with Advance Care Directives (ACDs) for decedents in a rural setting.
Design
Observational, cross-sectional medical records audit comparing requests in ACDs with actual outcomes.
Setting
Rural Australian coastal district.
Participants
People who had an ACD, died during the study period (30 May 2020 to 15 December 2021) and participated in a local research project.
Main Outcome Measure(s)
Compliance was measured by comparing stated requests in the ACD with outcomes recorded in medical records. This included the place of death and a list of ‘unacceptable interventions’.
Results
Sixty-eight people met the inclusion criteria (age range of 46–92 [mean 67 years; median 74 years]; 42 [62%] male). The main cause of death was cancer (n = 48; 71%). Preferred place of death was not stated in 16 ACDs. Compliance with documented preferred place of death was 63% (33/52): 48% (16/33) when the preferred place of death was home; 78% (7/9) when sub-acute was preferred; and 100% (10/10) when hospital was preferred. Compliance was 100% with ‘unacceptable interventions’.
Conclusion
These results demonstrate strong compliance with rural patients' requests in ACDs, particularly ‘unacceptable interventions’. Home was the most common preferred place of death, but the compliance measure (48%) was the lowest in this study. This requires further exploration.
Keywords
advance care directive, end-of-life, palliative care, rural
Date
2024
Type
Journal article
Journal
Australian Journal of Rural Health
Book
Volume
32
Issue
5
Page Range
969-975
Article Number
ACU Department
Collections
Relation URI
Source URL
Event URL
Open Access Status
Published as ‘gold’ (paid) open access
License
CC BY 4.0
File Access
Open
Notes
© 2024 The Author(s). Australian Journal of Rural Health published by John Wiley & Sons Australia, Ltd on behalf of National Rural Health Alliance Ltd.
This is an open access article under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits use, distribution and reproduction in any medium, provided the original work is properly cited.