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Facing the Ethical Challenges : Consumer Involvement in COVID-19 Pandemic Research
Straiton, Nicola McKenzie, A Bowden, J Nichol, A Murphy, R Snelling, T Zalcberg, J Clements, J Stubbs, J Economides, A
Straiton, Nicola
McKenzie, A
Bowden, J
Nichol, A
Murphy, R
Snelling, T
Zalcberg, J
Clements, J
Stubbs, J
Economides, A
Abstract
Consumer involvement in clinical research is an essential component of a comprehensive response during emergent health challenges. During the COVID-19 pandemic, the moderation of research policies and regulation to facilitate research may raise ethical issues. Meaningful, diverse consumer involvement can help to identify practical approaches to prioritize, design, and conduct rapidly developed clinical research amid current events. Consumer involvement might also elucidate the acceptability of flexible ethics review approaches that aim to protect participants whilst being sensitive to the challenging context in which research is taking place. This article describes the main ethical challenges arising from pandemic research and how involving consumers and the community could enable resolution of such issues.
Keywords
Consumer, Community, Involvement, Ethics, Research, Pandemic
Date
2020
Type
Journal article
Journal
Book
Volume
17
Issue
4
Page Range
743-748
Article Number
ACU Department
Nursing Research Institute
Faculty of Health Sciences
Faculty of Health Sciences
Collections
Relation URI
Event URL
Open Access Status
License
All rights reserved
File Access
Controlled
Notes
# Journal of Bioethical Inquiry Pty Ltd. 2020