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Challenging symptoms in children with rare life-limiting conditions: Findings from a prospective diary and interview study with families
Malcolm, Cari Hain, Richard Gibson, Faith Adams, Sally Anderson, G. Forbat, L.
Malcolm, Cari
Hain, Richard
Gibson, Faith
Adams, Sally
Anderson, G.
Forbat, L.
Abstract
Aim: The aim was to describe the nature, frequency, severity and management challenges of symptoms in children with two rare life-limiting conditions [Mucopolysaccharide ( MPS ) and Batten disease].
Keywords
Date
2012
Type
Journal article
Journal
Acta Paediatrica
Book
Volume
101
Issue
9
Page Range
985-992
Article Number
ACU Department
Non-faculty
Collections
Relation URI
Source URL
Event URL
Open Access Status
License
File Access
Controlled