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Adopting a survivor identity after cancer in a peer support context

Morris, Browyn
Lepore, Stephen J.
Wilson, Bridget
Lieberman, Morton A.
Dunn, Jeffery
Chambers, Suzanne
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Abstract
Purpose The term cancer survivor can refer to individuals from diagnosis through the rest of their life. However, not all people with cancer identify as a survivor, and underlying factors and correlates are yet to be well-explored empirically. Methods Study 1 surveyed men in a prostate cancer peer support network (n = 514), exploring psychosocial variables related to adopting a survivor identity. Study 2 interviewed 160 women with breast cancer in an online support group and collected observational data, assessing how survivor identity relates to perceptions of and participation in online support groups. Results For men, survivor identity (35 %) was related to lower levels of threat appraisal (p = .000), more deliberate rumination (p = .042), gaining greater understanding of cancer experience through peers (p = .041) and a higher, though marginally significant, level of posttraumatic growth (p = .052). Women adopting a survivor identity (50 %) had higher rates of online support group posts (p = .048), a greater feeling of mattering to the group (p = .002), rated the group as more helpful (p = .004 to .01) and had less difficulty in relating to the group (p = .002) than women not identifying as a survivor. Conclusions Survivor identity was related to active and positive engagement with peers, and cognitive processing. Implications for cancer survivors While the cancer survivor metaphor may be salient for some people diagnosed with cancer, many did not associate with the term, highlighting the complexity surrounding survivorship discourse and the need to be sensitive to unique individual needs in psychosocial interventions that involve groups.
Keywords
cancer, survivor identity, peer support, posttraumatic growth
Date
2014
Type
Journal article
Journal
Book
Volume
8
Issue
3
Page Range
427-436
Article Number
ACU Department
Faculty of Health Sciences
Relation URI
Event URL
Open Access Status
License
All rights reserved
File Access
Controlled
Notes
© Springer Science+Business Media New York 2014
The authors wish to thank the Brisbane Prostate Support Network, the Prostate Cancer Foundation of Australia, Cancer Council Queensland and the National Cancer Institute of the National Institute of Health (Grant CA15887) for their support and assistance in this project. Prof. Suzanne Chambers is supported by an Australian Research Council Future Fellowship.