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Needs of people with dementia and their spousal carers: A study of those living in the community
Morrisby, Claire Joosten, Annette Ciccarelli, Marina
Morrisby, Claire
Joosten, Annette
Ciccarelli, Marina
Abstract
Objective To identify care and support needs, as reported by people with dementia and their spousal carers living in the community in metropolitan Western Australia. Methods An interpretive description approach was utilised. Semi‐structured interviews were conducted with 10 dyads of spousal carers and people with dementia. Comparative analysis was used to develop themes regarding need, which were reviewed using two focus groups of spousal carers. Results Three major themes were developed through analysis of data from the interviews and were refined by the focus groups: (a) environmental enablers to support care; (b) strong caring relationships; and (c) adaptation of daily life roles. Conclusions As dementia progresses, continued support to maintain participation in meaningful activity is needed. Strong caring relationships, knowledge and an understanding of dementia among health professionals, service providers and family members were key to maintaining support for the needs of people with dementia and their spousal carers.
Keywords
community, dementia, health services, spousal carers
Date
2019
Type
Journal article
Journal
Australasian Journal on Ageing
Book
Volume
38
Issue
2
Page Range
43-49
Article Number
ACU Department
School of Allied Health
Faculty of Health Sciences
Faculty of Health Sciences
Collections
Relation URI
Source URL
Event URL
Open Access Status
License
File Access
Controlled