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What are important ways of sharing power in health research priority setting? Perspectives from people with lived experience and members of the public
Pratt, Bridget
Pratt, Bridget
Author
Abstract
Community engagement (patient and public involvement) is gaining prominence in health research worldwide. But there remains limited ethical guidance on how to share power with communities in health research priority setting, particularly that which has been informed by the perspectives of those being engaged. This article provides initial evidence about what they think are important ways to share power when setting health research projects’ topics and questions. Twenty-two people with lived experience, engagement practitioners, and members of the public who have been engaged in health research in the United Kingdom and Australia were interviewed. Thematic analysis identified 15 key ways to share power, many of which are relational. This study further demonstrates that tensions exist between certain ways of sharing power in health research priority setting. More research is needed to determine how to navigate those tensions.
Keywords
ethics, inclusion, power, priority setting, engagement, partnership, health research, patient and public involvement
Date
2021
Type
Journal article
Journal
Journal of Empirical Research on Human Research Ethics
Book
Volume
16
Issue
3
Page Range
200-211
Article Number
ACU Department
Queensland Bioethics Centre
Faculty of Theology and Philosophy
Faculty of Theology and Philosophy
Collections
Relation URI
Source URL
Event URL
Open Access Status
License
All rights reserved
File Access
Controlled