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Review of health-related quality of life patient-reported outcome measures in cardiovascular nursing
Thompson, David Robert Ski, Chantal Garside, Joanne Astin, Felicity
Thompson, David Robert
Ski, Chantal
Garside, Joanne
Astin, Felicity
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Author
Thompson, David Robert
Ski, Chantal
Garside, Joanne
Astin, Felicity
Ski, Chantal
Garside, Joanne
Astin, Felicity
Abstract
Background: The traditional use of physically focused outcome measures fails to capture holistic, quality of life issues of importance to patients. The relatively recent, rapidly growing interest in patient-reported outcome measures (PROMs) attests to this and clinicians are faced with difficult decisions regarding their choice and use. Aims: The purpose of this review was to identify and synthesise the literature pertaining to the concept of quality of life and the main PROMs used to measure this in the cardiovascular field. Methods: A review of the recent literature was undertaken on commonly used cardiovascular health-related quality of life (HRQoL) PROMs. Results: Two types of HRQoL PROMs are available: disease-specific and generic. Both have limitations, and in many instances there is merit in using a combination, depending on the medical condition and treatment. In addition to psychometric considerations such as reliability, validity and responsiveness, the choice of a PROM will depend on factors such as the patient/investigator burden its use may impose, resources, costs, intellectual property and copyright issues. A new ‘hybrid’ HRQoL PROM for use in patients across the main cardiovascular disease presentations – angina, myocardial infarction and heart failure – appears to show promise. Conclusions: Cardiovascular HRQoL PROMs have a wide variety of uses and can help clinicians, researchers, managers and policy makers in decision making and provide indicators of clinical and institutional quality and outcomes. New HRQoL PROMs are emerging and their choice and use should be determined by a host of issues, including psychometric properties, acceptability, feasibility and cost.
Keywords
Health-related quality of life, patient-reported outcome measures, review
Date
2016
Type
Journal article
Journal
European Journal of Cardiovascular Nursing
Book
Volume
15
Issue
2
Page Range
114-125
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ACU Department
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Controlled
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