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What is the occupational impact of myalgic encephalomyelitis/chronic fatigue syndrome for adults living in Australia?
Thomas, Roshni Hughes, Julie Lesley Kotzur, Cheryl
Thomas, Roshni
Hughes, Julie Lesley
Kotzur, Cheryl
Abstract
Introduction:
Occupational recovery for people living with myalgic encephalomyelitis/chronic fatigue syndrome requires better assessment and understanding of the occupational impact of this debilitating condition. This study explores the lived experience of Australian adults with myalgic encephalomyelitis/chronic fatigue syndrome using the Model of Human Occupation.
Methods:
The research design was a cross-sectional descriptive study, and participants were recruited via social media to complete an online survey. A Model of Human Occupation Tool, The Occupational Self-Assessment, captured an individual’s perceptions of occupational identity and competence.
Results:
Results were analysed using descriptive statistics and non-parametric tests. The free-text responses were summarised. Twenty-nine participants completed the Occupational Self-Assessment. A decrease in occupational participation across all domains was evident. Qualitative themes of loneliness, feeling confined, feeling like a burden and loss of previous life/roles were collated, showing an adverse impact on occupational identity. A lack of independence and control showed a reduction in occupational competence.
Conclusions:
The study confirmed the impact of myalgic encephalomyelitis/chronic fatigue syndrome on occupational identity and competence. These individuals struggled with occupational adaptation and would benefit from occupational support. Occupational therapists could use the Occupational Self-Assessment to identify areas of need, set goals and facilitate better occupational adaptation.
Keywords
chronic fatigue syndrome, model of human occupation, participation, occupational adaptation, occupational self-assessment
Date
2024
Type
Journal article
Journal
British Journal of Occupational Therapy
Book
Volume
87
Issue
10
Page Range
636-644
Article Number
ACU Department
School of Allied Health
Faculty of Health Sciences
Faculty of Health Sciences
Collections
Relation URI
Source URL
Event URL
Open Access Status
License
All rights reserved
File Access
Controlled
Notes
© The Author(s) 2024.