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Communication surrounding initiation and withdrawal of non-invasive ventilation in adults with motor neurone disease
Chapman, Charlotte Bayes, Sara Jayne Sim, Moira
Chapman, Charlotte
Bayes, Sara Jayne
Sim, Moira
Abstract
Background: Motor neurone disease causes respiratory weakness that can lead to death. While non-invasive ventilation relieves symptoms, there are complex issues to consider prior to commencement.
Aim: To identify what is known and understood about the clinician communication of non-invasive ventilation by people with motor neurone disease.
Method: The Joanna Briggs Institute approach to systematic reviews was followed for literature retrieval and selection.
Data sources: Research literature published between 1990-2019 in English from the Medline, CINAHL, ProQuest Research Library and the Cochrane Library of Systematic Reviews databases were used.
Results: A total of two themes emerged: communication challenges doctors face when discussing non-invasive ventilation withdrawal, and the importance of well-timed, effective communication by clinicians-specifically the influence clinicians have on family decision-making.
Conclusions: Guidance on communications around palliative care, non-invasive ventilation introduction and withdrawal exist, however implementation is often not straightforward. Research into the communication surrounding non-invasive ventilation from those living with motor neuron disease, their families and clinicians is required to inform guideline implementation and practice.
Keywords
motor neurone disease, non-invasive ventilation, palliative care, respiratory weakness
Date
2022
Type
Journal article
Journal
Book
Volume
28
Issue
7
Page Range
298-306
Article Number
ACU Department
Faculty of Health Sciences
Relation URI
Event URL
Open Access Status
License
All rights reserved
File Access
Controlled
Notes
© 2022 MA Healthcare Ltd.