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Why would I choose death?: A qualitative study of patient understanding of the role and limitations of cardiac devices
Hadler, Rachel A. Goldstein, Nathan E. Bekelman, David B. Riegel, Barbara Allen, Larry A. Arnold, Robert M. Harinstein, Matthew E. Kavalieratos, Dio
Hadler, Rachel A.
Goldstein, Nathan E.
Bekelman, David B.
Riegel, Barbara
Allen, Larry A.
Arnold, Robert M.
Harinstein, Matthew E.
Kavalieratos, Dio
Abstract
Background: Although cardiology organizations recommend early introduction of palliative care for patients with heart failure (HF), integration has remained challenging, particularly in patients with cardiac devices such as cardiac implantable electronic devices and left ventricular assist devices. Study authors suggest that patients often have limited and erroneous understanding of these devices and their implications for future care. Objective: The aim of this study was to assess perceptions of cardiac devices in patients with HF and how these perceptions impacted advance care planning and future expectations. Methods: This study used qualitative semistructured interviews with 18 community-dwelling patients with New York Heart Association stage II to IV HF. Results: We interviewed 18 patients (mean ejection fraction, 38%; mean age, 64 years; 33% female; 83% white; 39% New York Heart Association class II, 39% class III, and 22% class IV). All had a cardiac implantable electronic device (6% permanent pacemaker, 56% implantable cardioverter-defibrillator, 28% biventricular implantable cardioverter-defibrillator); 11% had left ventricular assist devices. Patients with devices frequently misunderstood the impact of their device on cardiac function. A majority expressed the belief that the device would forestall further deterioration, regardless of whether this was the case. This anticipation of stability was often accompanied by the expectation that emerging technologies would continue to preempt decline. Citing this faith in technology, these patients frequently saw limited value in advance care planning. Conclusions: In our sample, patients with cardiac devices overestimated the impact of their devices on preventing disease progression and death and deprioritized advance care planning as a result.
Keywords
advance care planning, cardiac devices, heart failure, implantable cardioverter-defibrillator, palliative care, permanent pacemaker, ventricular assist device
Date
2019
Type
Journal article
Journal
Journal of Cardiovascular Nursing
Book
Volume
34
Issue
3
Page Range
275-282
Article Number
ACU Department
Mary MacKillop Institute for Health Research
Faculty of Health Sciences
Faculty of Health Sciences
Collections
Relation URI
Source URL
Event URL
Open Access Status
License
File Access
Controlled