Stakeholder consensus for decision making in eye-gaze control technology for children, adolescents and adults with cerebral palsy service provision : Findings from a Delphi study

Journal article

Karlsson, Petra, Griffiths, Tom, Clarke, Michael T., Monbaliu, Elegast, Himmelmann, Kate, Bekteshi, Saranda, Allsop, Abigail, Pereksles, René, Galea, Claire and Wallen, Margaret. (2021). Stakeholder consensus for decision making in eye-gaze control technology for children, adolescents and adults with cerebral palsy service provision : Findings from a Delphi study. BMC Neurology. 21, p. 63. https://doi.org/10.1186/s12883-021-02077-z
AuthorsKarlsson, Petra, Griffiths, Tom, Clarke, Michael T., Monbaliu, Elegast, Himmelmann, Kate, Bekteshi, Saranda, Allsop, Abigail, Pereksles, René, Galea, Claire and Wallen, Margaret
Abstract

Background
Limited research exists to guide clinical decisions about trialling, selecting, implementing and evaluating eye-gaze control technology. This paper reports on the outcomes of a Delphi study that was conducted to build international stakeholder consensus to inform decision making about trialling and implementing eye-gaze control technology with people with cerebral palsy.

Methods
A three-round online Delphi survey was conducted. In Round 1, 126 stakeholders responded to questions identified through an international stakeholder Advisory Panel and systematic reviews. In Round 2, 63 respondents rated the importance of 200 statements generated by in Round 1. In Round 3, 41 respondents rated the importance of the 105 highest ranked statements retained from Round 2.

Results
Stakeholders achieved consensus on 94 of the original 200 statements. These statements related to person factors, support networks, the environment, and technical aspects to consider during assessment, trial, implementation and follow-up. Findings reinforced the importance of an individualised approach and that information gathered from the user, their support network and professionals are central when measuring outcomes. Information required to support an application for funding was obtained.

Conclusion
This Delphi study has identified issues which are unique to eye-gaze control technology and will enhance its implementation with people with cerebral palsy.

Keywordsaccessibility; eye-gaze control technology; cerebral palsy; disabilities; clinical decision-making; assistive technology; augmentative and alternative communication
Year2021
JournalBMC Neurology
Journal citation21, p. 63
PublisherBiomed Central Ltd
ISSN1471-2377
Digital Object Identifier (DOI)https://doi.org/10.1186/s12883-021-02077-z
Scopus EID2-s2.0-85101015851
Open accessPublished as ‘gold’ (paid) open access
Research or scholarlyResearch
Page range1-24
Publisher's version
License
File Access Level
Open
Output statusPublished
Publication dates
Online10 Feb 2021
Publication process dates
Accepted25 Jan 2021
Deposited14 Jul 2021
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