Treatment burden and chronic illness : Who is at most risk?

Journal article


Sav, Adem, Whitty, Jennifer A., McMillan, Sara S., Kendall, Elizabeth, Kelly, Fiona, King, Michelle A. and Wheeler, Amanda J.. (2016). Treatment burden and chronic illness : Who is at most risk? Patient. 9, pp. 559-569. https://doi.org/10.1007/s40271-016-0175-y
AuthorsSav, Adem, Whitty, Jennifer A., McMillan, Sara S., Kendall, Elizabeth, Kelly, Fiona, King, Michelle A. and Wheeler, Amanda J.
Abstract

Background
There is a need to ascertain the type and level of treatment burden experienced by people with co-morbidities. This is important to identify the characteristics of participants who are at most risk of treatment burden.

Objective
The aim of this study is to identify the characteristics of participants who are at most risk of treatment burden.

Methods
This cross-sectional study was part of a larger project and recruitment was conducted across four Australian regions: rural, semi-rural and metropolitan. Participants were asked about their treatment burden using an adapted version of a measure, which included the following five dimensions: medication, time and administrative, lifestyle change, social life and financial burden.

Results
In total, 581 participants with various chronic health conditions reported a mean global treatment burden of 56.5 out of 150 (standard deviation = 34.5). Number of chronic conditions (β = .34, p < 0.01), age, (β = −.27, p < 0.01), the presence of an unpaid carer (β = .22, p < 0.001) and the presence of diabetes mellitus and other endocrine conditions (β = .13, p < 0.01) were significant predictors of overall treatment burden. For the five dimensions of treatment burden, social, medicine and administrative burden were predicted by the same cluster of variables: number of conditions, age, presence of an unpaid carer and diabetes. However, in addition to these variables, financial dimensions were also predicted by education level, ethnicity and health insurance. Educational level also influenced lifestyle burden.

Conclusion
A substantial proportion of community-dwelling adults with chronic conditions have considerable levels of treatment burden. Specifically, health professionals should provide greater focus on managing overall treatment burden for persons who are of young age, have an endocrine condition or an unpaid carer, or a combination of these factors.

Year2016
JournalPatient
Journal citation9, pp. 559-569
PublisherSpringer
ISSN1178-1653
Digital Object Identifier (DOI)https://doi.org/10.1007/s40271-016-0175-y
Scopus EID2-s2.0-84965047350
Open accessPublished as green open access
Page range559-569
FunderDepartment of Health, Australian Government
Author's accepted manuscript
License
All rights reserved
File Access Level
Open
Publisher's version
License
All rights reserved
File Access Level
Controlled
Output statusPublished
Publication dates
Online03 May 2016
Publication process dates
Deposited20 Oct 2022
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https://acuresearchbank.acu.edu.au/item/8y5x3/treatment-burden-and-chronic-illness-who-is-at-most-risk

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