Women- and clinician- important outcomes and priorities regarding vasa praevia : An international qualitative study to inform development of a core outcome set

Journal article


Javid, Nasrin, Donnolley, Natasha, Kingdom, John, Dadouch, Rachel and D'Souza, Rohan. (2024). Women- and clinician- important outcomes and priorities regarding vasa praevia : An international qualitative study to inform development of a core outcome set. Women and Birth. 37(4), p. Article 101614. https://doi.org/10.1016/j.wombi.2024.101614
AuthorsJavid, Nasrin, Donnolley, Natasha, Kingdom, John, Dadouch, Rachel and D'Souza, Rohan
Abstract

Background
Many studies have reported interventions for women with vasa praevia to improve perinatal outcomes. However, which outcomes are important for women remains unclear.

Aim
To explore what outcomes are important for women with lived experience of vasa praevia and why, in order to inform the development of a core outcome set for studies on vasa praevia.

Methods
An international qualitative study was conducted with women and clinicians. Semi-structured interviews were audio-recorded, transcribed, and analysed taking an inductive approach.

Findings
Eighteen women and six clinicians (four obstetricians, two midwives) from the United States, United Kingdom, Canada, and Australia were interviewed. Participants identified 47 patient-important outcomes and experience measures, which were grouped under five themes: baby’s survival and health, mother’s physical health, mother’s mental and emotional health, quality of health care delivery, and resource use and cost. While survival of the baby without short- and long-term morbidity remained the main priority, other important considerations included the physical, mental, social and financial wellbeing of families, future access to antenatal screening and diagnosis, information on management options and consequences, continuity of care, clear and effective communication, peer support and the appreciation of individual variations to risk tolerance, values and resource availability.

Conclusion
We have identified patient-important outcomes and experience measures that have been directly fed into the development of a core outcome set on vasa previa. Incorporating these considerations into both clinical practice and future research studies has the potential to improve outcomes and experiences for women with vasa praevia.

Keywordsvasa previa; premature birth; high-risk pregnancy; patient-reported outcomes; continuity of care; woman-centred care
Year2024
JournalWomen and Birth
Journal citation37 (4), p. Article 101614
PublisherElsevier Ltd
ISSN1871-5192
Digital Object Identifier (DOI)https://doi.org/10.1016/j.wombi.2024.101614
PubMed ID38669723
Scopus EID2-s2.0-85191177116
Open accessPublished as ‘gold’ (paid) open access
Page range1-8
FunderPerinatal Society of Australia and New Zealand
Publisher's version
License
File Access Level
Open
Output statusPublished
Publication dates
Online25 Apr 2024
Publication process dates
Accepted04 Apr 2024
Deposited02 May 2025
Additional information

© 2024 The Authors. Published by Elsevier Ltd on behalf of Australian College of Midwives. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).

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